{"id":102151,"date":"2014-04-01T18:22:36","date_gmt":"2014-04-01T23:22:36","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=102151"},"modified":"2026-07-10T12:10:54","modified_gmt":"2026-07-10T17:10:54","slug":"2nd-annual-ecd-medical-symposium-bethesda-maryland","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh\/2nd-annual-ecd-medical-symposium-bethesda-maryland\/","title":{"rendered":"\u7b2c\u4e8c\u5c4a ECD \u533b\u5b66\u7814\u8ba8\u4f1a\uff0c\u9a6c\u91cc\u5170\u5dde\u8d1d\u585e\u65af\u8fbe"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”20px||50px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||10px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_heading title=”2nd Annual ECD Medical Symposium Bethesda, Maryland” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||0px||false|false” custom_padding=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_button button_text=”Juvianee Estrada-Veras, MD” _builder_version=”4.27.7″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”National Institutes of Health (NIH)” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||900″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”Bethesda, Maryland” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||divi||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”April 1, 2014″ _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/07\/2nd-ms.png” title_text=”2nd ms” align=”center” force_fullwidth=”on” module_class=”past-event-image” _builder_version=”4.27.7″ _module_preset=”default” hover_enabled=”0″ border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}” theme_builder_area=”post_content” custom_margin=”||10px||false|false” sticky_enabled=”0″][\/et_pb_image][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” text_font_size=”14px” text_line_height=”-0.1em” text_orientation=”center” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

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Bethesda Medical Symposium Group Picture 2014<\/p>\n<\/div>\n<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”10px||||false|false” locked=”off” global_colors_info=”{}” width__hover_enabled=”off|desktop” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Symposium Summary<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]Approximately fifty-three medical professionals from six countries attended the Annual ECD Medical Symposium in 2014. Fourteen oral abstracts were presented. As an invited speaker, Kenneth McClain, delivered an invited talk titled \u201cAdvances in ECD.\u201d An evening reception provided time for discussions supporting current and future collaborations among this highly knowledgeable group of physicians and scientists, all interested in learning more about Erdheim-Chester Disease. [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”10px||20px||false|false” locked=”off” global_colors_info=”{}” width__hover_enabled=”off|desktop” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Programs with Symposium Agenda<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/2014-Bethesda-Graphics.jpg” title_text=”2014 Bethesda Graphics” url=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/2014_08_PFG_Final_Program.pdf” url_new_window=”on” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_image][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Photographs<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”20px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Medical Symposium<\/h3>\n

[\/et_pb_text][et_pb_gallery gallery_ids=”143745,143746,143747,143748,143749,143750,143751,143752,143753,143754,143755,143756,143757,143758,143759,143760,143761,143762,143763,143764,143765,143766,143767,143768,143769,143770,143771,143772,143773,143774,143775,143776,143777,143778,143779,143780,143781,143782,143783,143784,143785,143786,143787,143788,143789,143790,143791,143792,143793,143794,143795,143796,143797,143798,143799,143800,143801,143802,143803,143804,143805,143806,143807,143808,143809,143810,143811,143812,143813,143814,143815,143816,143817,143818,143819,143820,143821,143822,143823,143824,143825,143826,143827,143828,143829,143830,143831,143832,143833,143834,143835,143836,143837,143838,143839,143840,143841,143842,143843,143844,143845,143846,143847,143848,143849,143850,143851,143852,143853,143854,143855,143856,143857,143858,143859,143860,143861,143862,143863,143864,143865,143866,143867,143868,143869,143870,143871,143872,143873,143874,143875,143876,143877,143878,143879,143880,143881,143882,143883,143884,143885,143886,143887,143888,143889,143890,143891,143892,143893,143894,143895,143896,143897,143898,143899,143900,143901,143902,143903,143904,143905,143906,143907,143908,143909,143910,143911,143912,143913,143914,143915,143916,143917,143918,143919,143920,143921,143922,143923,143924,143925,143926,143927,143928,143929,143930,143931,143932,143933,143934,143935,143936,143937,143938,143939,143940,143941,143942,143943,143944,143945,143946,143947,143949,143948″ posts_number=”100″ orientation=”portrait” show_title_and_caption=”off” module_class=”event-gallery” _builder_version=”4.27.6″ _module_preset=”default” db_images_per_row=”5″ db_image_max_width=”95%” db_image_max_height=”88px” db_image_row_spacing=”1%” dbdb_version=”5.6″ db_image_object_fit=”cover” border_radii_image=”on|8px|8px|8px|8px” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_gallery][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” background_color=”#1a254c” custom_padding=”40px||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row column_structure=”3_5,2_5″ _builder_version=”4.27.4″ _module_preset=”default” border_width_bottom=”1px” border_color_bottom=”rgba(255,255,255,0.2)” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”3_5″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_search show_button=”off” placeholder=”Search” button_color=”#35A4BB” placeholder_color=”rgba(255,255,255,0.4)” _builder_version=”4.27.4″ _module_preset=”default” form_field_background_color=”RGBA(255,255,255,0)” form_field_text_color=”#FFFFFF” button_text_color=”#FFFFFF” background_color=”RGBA(255,255,255,0)” custom_padding=”16px|20px|16px|20px|true|true” border_radii=”on|100px|100px|100px|100px” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_search][et_pb_button button_url=”https:\/\/secure.qgiv.com\/for\/erdheim-chesterdiseaseglobalalliance” url_new_window=”on” button_text=”Donate” disabled_on=”off|off|on” module_class=”full-button” _builder_version=”4.27.4″ _module_preset=”default” custom_button=”on” custom_padding=”12px||12px||true|false” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][\/et_pb_column][et_pb_column type=”2_5″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” link_text_color=”rgba(255,255,255,0.9)” link_font_size=”24px” link_line_height=”1.6em” custom_padding=”||2px|||” link_text_align_tablet=”center” link_text_align_phone=”center” link_text_align_last_edited=”on|tablet” link_font_size_tablet=”20px” link_font_size_phone=”20px” link_font_size_last_edited=”on|phone” text_orientation_tablet=”center” text_orientation_phone=”center” text_orientation_last_edited=”on|desktop” custom_css_main_element=”float:right;” global_colors_info=”{}” custom_css_main_element_last_edited=”on|phone” custom_css_main_element_phone=”float:unset;” custom_css_main_element_tablet=”float:unset;” link_text_color__hover_enabled=”on|hover” link_text_color__hover=”#35A4BB” theme_builder_area=”post_content”]<\/p>\n

+1-337-202-5200<\/a>
support@erdheim-chester.org<\/a><\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_5,1_5,1_5,1_5,1_5″ _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”50px||50px||true|false” border_width_bottom=”1px” border_color_bottom=”rgba(255,255,255,0.2)” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”1_5″ _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font=”||||||||” text_text_color=”rgba(255,255,255,0.9)” text_font_size=”17px” header_5_font=”|600|||||||” header_5_text_color=”#FFFFFF” header_5_font_size=”17px” header_6_text_color=”#FFFFFF” custom_margin=”||16px|||” text_orientation_tablet=”center” text_orientation_phone=”center” text_orientation_last_edited=”on|tablet” global_colors_info=”{}” theme_builder_area=”post_content”]What is ECD?[\/et_pb_text][et_pb_menu menu_id=”3464″ module_class=”footer-menu” _builder_version=”4.27.4″ _module_preset=”default” menu_text_color=”rgba(255,255,255,0.6)” menu_font_size=”15px” background_enable_color=”off” custom_margin=”||0px||false|false” custom_padding=”||0px||false|false” db_link_spacing=”32px” global_colors_info=”{}” menu_text_color__hover_enabled=”on|hover” menu_text_color__hover=”#35A4BB” theme_builder_area=”post_content”][\/et_pb_menu][\/et_pb_column][et_pb_column type=”1_5″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font=”||||||||” text_text_color=”rgba(255,255,255,0.9)” text_font_size=”17px” header_5_font=”|600|||||||” header_5_text_color=”#FFFFFF” header_5_font_size=”17px” header_6_text_color=”#FFFFFF” custom_margin=”||16px|||” text_orientation_tablet=”center” text_orientation_phone=”center” text_orientation_last_edited=”on|tablet” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

Patients\/Loved Ones<\/p>\n

[\/et_pb_text][et_pb_menu menu_id=”3465″ module_class=”footer-menu” _builder_version=”4.27.4″ _module_preset=”default” menu_text_color=”rgba(255,255,255,0.6)” menu_font_size=”15px” background_enable_color=”off” text_orientation_tablet=”center” text_orientation_phone=”center” text_orientation_last_edited=”on|tablet” global_colors_info=”{}” menu_text_color__hover_enabled=”on|hover” menu_text_color__hover=”#35A4BB” theme_builder_area=”post_content”][\/et_pb_menu][\/et_pb_column][et_pb_column type=”1_5″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font=”||||||||” text_text_color=”rgba(255,255,255,0.9)” text_font_size=”17px” header_5_font=”|600|||||||” header_5_text_color=”#FFFFFF” header_5_font_size=”17px” header_6_text_color=”#FFFFFF” custom_margin=”||16px|||” text_orientation_tablet=”center” text_orientation_phone=”center” text_orientation_last_edited=”on|tablet” global_colors_info=”{}” theme_builder_area=”post_content”]About Us[\/et_pb_text][et_pb_menu menu_id=”3466″ module_class=”footer-menu” _builder_version=”4.27.4″ _module_preset=”default” menu_text_color=”rgba(255,255,255,0.6)” menu_font_size=”15px” background_enable_color=”off” global_colors_info=”{}” menu_text_color__hover_enabled=”on|hover” menu_text_color__hover=”#35A4BB” theme_builder_area=”post_content”][\/et_pb_menu][\/et_pb_column][et_pb_column type=”1_5″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font=”||||||||” text_text_color=”rgba(255,255,255,0.9)” text_font_size=”17px” header_5_font=”|600|||||||” header_5_text_color=”#FFFFFF” header_5_font_size=”17px” header_6_text_color=”#FFFFFF” custom_margin=”||16px|||” text_orientation_tablet=”center” text_orientation_phone=”center” text_orientation_last_edited=”on|tablet” global_colors_info=”{}” theme_builder_area=”post_content”]How to Help[\/et_pb_text][et_pb_menu menu_id=”3467″ module_class=”footer-menu” _builder_version=”4.27.4″ _module_preset=”default” menu_text_color=”rgba(255,255,255,0.6)” menu_font_size=”15px” background_enable_color=”off” global_colors_info=”{}” menu_text_color__hover_enabled=”on|hover” menu_text_color__hover=”#35A4BB” theme_builder_area=”post_content”][\/et_pb_menu][\/et_pb_column][et_pb_column type=”1_5″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font=”||||||||” text_text_color=”rgba(255,255,255,0.9)” text_font_size=”17px” header_5_font=”|600|||||||” header_5_text_color=”#FFFFFF” header_5_font_size=”17px” header_6_text_color=”#FFFFFF” custom_margin=”||16px|||” text_orientation_tablet=”center” text_orientation_phone=”center” text_orientation_last_edited=”on|tablet” global_colors_info=”{}” theme_builder_area=”post_content”]Medical Professionals[\/et_pb_text][et_pb_menu menu_id=”3468″ module_class=”footer-menu” _builder_version=”4.27.4″ _module_preset=”default” menu_text_color=”rgba(255,255,255,0.6)” menu_font_size=”15px” background_enable_color=”off” global_colors_info=”{}” menu_text_color__hover_enabled=”on|hover” menu_text_color__hover=”#35A4BB” theme_builder_area=”post_content”][\/et_pb_menu][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”50px||50px||true|false” border_width_bottom=”1px” border_color_bottom=”rgba(255,255,255,0.2)” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”1_2″ module_class=”social-icon-new” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_social_media_follow use_icon_font_size=”on” 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This website is for informational purposes only.<\/p>\n

Designed by The Egghead.\u00a0<\/span><\/a>Copyright 2026. All rights Reserved ECD GLOBAL ALLIANCE. A 501(c)(3) organization. EIN# 27-0759192.<\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ make_equal=”on” _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2022\/10\/logo-1.png” alt=”ECD Global Alliance Logo” title_text=”Logo Round” align_tablet=”center” align_phone=”center” align_last_edited=”on|tablet” _builder_version=”4.27.4″ _module_preset=”default” width=”30%” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_image][\/et_pb_column][et_pb_column type=”1_3″ module_class=”icons-middle” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_code _builder_version=”4.27.4″ _module_preset=”default” custom_margin=”|14px||0px|false|false” global_colors_info=”{}” theme_builder_area=”post_content”]\"Charity<\/a>[\/et_pb_code][et_pb_text content_phone=”<\/p>\n

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