{"id":153,"date":"2014-11-25T11:52:37","date_gmt":"2014-11-25T11:52:37","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?page_id=153"},"modified":"2026-10-08T15:25:32","modified_gmt":"2026-10-08T20:25:32","slug":"%e8%91%a3%e4%ba%8b%e4%bc%9a%e6%88%90%e5%91%98","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/zh\/boardstaff\/","title":{"rendered":"\u8463\u4e8b\u4f1a\/\u5458\u5de5"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.6&#8243; _module_preset=&#8221;default&#8221; background_image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png&#8221; background_position=&#8221;bottom_center&#8221; background_vertical_offset=&#8221;20%&#8221; custom_padding=&#8221;15px||15px||true|false&#8221; background_last_edited=&#8221;on|desktop&#8221; background_position_tablet=&#8221;bottom_right&#8221; background_position_phone=&#8221;center_right&#8221; global_module=&#8221;28071&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_heading title=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;title&#8221; _module_preset=&#8221;default&#8221; title_font=&#8221;&#8211;et_global_heading_font|300|||||||&#8221; title_text_color=&#8221;#FFFFFF&#8221; title_font_size=&#8221;40px&#8221; custom_margin=&#8221;||3px|||&#8221; title_font_size_tablet=&#8221;&#8221; title_font_size_phone=&#8221;25px&#8221; title_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_button button_url=&#8221;\/contact-us\/&#8221; button_text=&#8221;Contact Us&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;15px&#8221; button_text_color=&#8221;#C02E43&#8243; button_bg_color=&#8221;rgba(10,22,64,0.53)&#8221; button_border_width=&#8221;0px&#8221; button_icon=&#8221;&#xe60f;||divi||400&#8243; button_icon_color=&#8221;#C02E43&#8243; button_icon_placement=&#8221;left&#8221; button_on_hover=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; filter_opacity__hover_enabled=&#8221;on|hover&#8221; filter_opacity__hover=&#8221;70%&#8221;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>ECD Global Alliance Board of Directors<\/h2>\n<p>[\/et_pb_text][dpdfg_filtergrid custom_query=&#8221;advanced&#8221; multiple_cpt=&#8221;members&#8221; use_taxonomy_terms=&#8221;on&#8221; multiple_taxonomies=&#8221;member_categories&#8221; include_terms=&#8221;247&#8243; post_number=&#8221;100&#8243; order=&#8221;ASC&#8221; orderby=&#8221;meta_value&#8221; meta_key=&#8221;last_name&#8221; thumbnail_size=&#8221;dfg_full&#8221; use_overlay=&#8221;off&#8221; show_post_meta=&#8221;off&#8221; show_content=&#8221;on&#8221; strip_html=&#8221;off&#8221; show_filters=&#8221;off&#8221; show_pagination=&#8221;off&#8221; column_gutter=&#8221;4em&#8221; _builder_version=&#8221;4.27.7&#8243; _module_preset=&#8221;default&#8221; dpdfg_entry_title_text_align=&#8221;center&#8221; dpdfg_entry_summary_text_align=&#8221;center&#8221; dpdfg_entry_custom_text_align=&#8221;center&#8221; dpdfg_entry_custom_text_color=&#8221;#0A1640&#8243; read_more_button_alignment=&#8221;left&#8221; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221;][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>ECD Global Alliance\u00a0Staff<\/h2>\n<p>[\/et_pb_text][dpdfg_filtergrid custom_query=&#8221;advanced&#8221; multiple_cpt=&#8221;members&#8221; use_taxonomy_terms=&#8221;on&#8221; multiple_taxonomies=&#8221;member_categories&#8221; include_terms=&#8221;248&#8243; post_number=&#8221;100&#8243; thumbnail_size=&#8221;dfg_full&#8221; use_overlay=&#8221;off&#8221; show_post_meta=&#8221;off&#8221; show_custom_fields=&#8221;on&#8221; custom_fields=&#8221;%91{%22name%22:%22Job title%22,%22label%22:%22%22}%93&#8243; show_filters=&#8221;off&#8221; show_pagination=&#8221;off&#8221; column_gutter=&#8221;4em&#8221; _builder_version=&#8221;4.27.7&#8243; _module_preset=&#8221;default&#8221; dpdfg_entry_title_text_align=&#8221;center&#8221; dpdfg_entry_custom_text_align=&#8221;center&#8221; dpdfg_entry_custom_text_color=&#8221;#0A1640&#8243; read_more_button_alignment=&#8221;left&#8221; border_width_all=&#8221;0px&#8221; global_colors_info=&#8221;{}&#8221;][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#F2F2F2&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.5&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_text _builder_version=&#8221;4.27.9&#8243; _module_preset=&#8221;default&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<h2>ECD Global Alliance Past Board of Directors Members<\/h2>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.9&#8243; _module_preset=&#8221;default&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;]<\/p>\n<ul>\n<li>Carol Smith (2009)\n<ul>\n<li>Secretary 2009 -2009<\/li>\n<\/ul>\n<\/li>\n<li>Charles Balnaves (2009)\n<ul>\n<li>Vice President 2009 \u2013 2009<\/li>\n<\/ul>\n<\/li>\n<li>Ralph Stallard (2009 \u2013 2012)\n<ul>\n<li>Treasurer 2009 \u2013 2012<\/li>\n<\/ul>\n<\/li>\n<li>Brian Lestage (2009 \u2013 2012)<\/li>\n<li>Rachel Mitchell (2010 \u2013 2019)\n<ul>\n<li>Treasurer 2012 \u2013 2019<\/li>\n<\/ul>\n<\/li>\n<li>Linda Adams, PhD (2010 \u2013 2023)<\/li>\n<li>Pam Fleming (2012 \u2013 2019)<\/li>\n<li>Glenn Padnick (2011 \u2013 2022)<\/li>\n<li>Jean Campbell (2015 \u2013 2023)<\/li>\n<li>Juvianee Estrada-Veras, MD (2013-2026)<\/li>\n<\/ul>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>ECD Global Alliance Board of Directors<div class=\"et_pb_module dpdfg_filtergrid dpdfg_filtergrid_0\">\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t<div class=\"et_pb_module_inner\">\n\t\t\t\t\t<!-- DPDFG Start Main Container --><div class=\"dp-dfg-container dp-dfg-layout-grid dp-dfg-skin-default dp-dfg-skin-top-filters\" data-active-filter=\"all\" data-page=\"1\" data-found-posts=\"1136\" data-post-number=\"0\" data-default-filter=\"All\" data-link-filter=\"\" data-cache=\"off\" data-ratio=\"0\" data-show-thumb=\"on\" data-action=\"link\" data-new-window=\"off\" data-filters=\"off\" data-date-filters=\"off\" data-multifilter=\"off|OR\" data-multilevel=\"off|AND|off\" data-sorting=\"off\" data-order=\"&#8221;ASC&#8221;\" data-orderby=\"&#8221;meta_value&#8221;\" data-initorderby=\"&#8221;meta_value&#8221;\" data-url-navigation=\"off\" data-url-history=\"on|reload\" data-ajax-filters=\"off\" data-doing-ajax=\"off\" data-module=\"dpdfg_filtergrid_0\" data-search=\"off\" data-search-position=\"above\" data-terms-tags=\"on\" data-pagination=\"&#8221;off&#8221;\" data-filter-method=\"default\" data-third-party=\"\" data-lightbox=\"on|||\" data-video-preview=\"off\" data-no-init=\"off\" data-st=\"on\" data-no-results=\"off\"><div class=\"dp-dfg-items\"><article id=\"post-176990\" class=\"dp-dfg-item post-176990 post type-post status-publish format-standard has-post-thumbnail hentry category-news tag-ecdga tag-erdheimchester tag-histiocytosis tag-raredisease tag-year-endcampaign\"     data-position=\"0\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/zh\/the-match-opportunity\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/11\/Post-4-90000-edited-fund.png\" alt=\"The Match Opportunity\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">The Match Opportunity<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">Your generosity can reach further this year-end.\r\n\r\nDonations to ECDGA\u2019s Year-End Campaign will be matched up to a ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-176987\" class=\"dp-dfg-item post-176987 post type-post status-publish format-standard has-post-thumbnail hentry category-uncategorized\"     data-position=\"1\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/zh\/ecdga-a-diagnosis-is-only-the-beginning-of-the-questions\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/11\/Help-our-families-find-answers.png\" alt=\"ECDGA: A diagnosis is only the beginning of the questions\" width=\"1536\" height=\"1024\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">ECDGA: A diagnosis is only the beginning of the questions<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">Dear Friend,\r\n\r\n\u201cWhere do we go from here?\u201d\r\n\r\nFor a family facing Erdheim-Chester Disease, receiving a diagnosis ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-176995\" class=\"dp-dfg-item post-176995 post type-post status-publish format-standard has-post-thumbnail hentry category-home-featured-news-two tag-ecdga tag-erdheimchester tag-raredisease\"     data-position=\"2\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/zh\/after-an-ecd-diagnosis-the-questions-continue\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/11\/Website-and-Email-2-graphic-edited.png\" alt=\"After an ECD Diagnosis the Questions Continue\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">After an ECD Diagnosis the Questions Continue<\/h2><\/div><div class=\"dp-dfg-content entry-summary\"><em>Your support helps patients and caregivers find information and connections as they consider their next ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-176915\" class=\"dp-dfg-item post-176915 post type-post status-publish format-standard has-post-thumbnail hentry category-news tag-ecdga tag-endofyearcampaign tag-erdheimchester tag-histiocytosis tag-raredisease\"     data-position=\"3\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/zh\/after-the-diagnosis\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/11\/Post-3-fund-edited.png\" alt=\"After the Diagnosis\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">After the Diagnosis<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">A diagnosis gives a disease a name. It does not answer every question.\r\n\r\nWhere can I find experienced care? How ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-176911\" class=\"dp-dfg-item post-176911 post type-post status-publish format-standard has-post-thumbnail hentry category-news tag-ecdga tag-endofyearcampaign tag-erdheimchester tag-histiocytosis tag-raredisease\"     data-position=\"4\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/zh\/where-our-story-began\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/11\/Post-2-fundecd-edited.png\" alt=\"Where our story began\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Where our story began<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">Kathy Brewer learned that her husband, Gary, had Erdheim-Chester Disease only after his death. She could not ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-176890\" class=\"dp-dfg-item post-176890 post type-post status-publish format-standard has-post-thumbnail hentry category-news tag-ecdga tag-endofyearcampaign tag-erdheimchester tag-histiocytosis tag-raredisease\"     data-position=\"5\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/zh\/help-the-next-family-find-answers\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/11\/Post-1-fund-ecd-edited.png\" alt=\"Help the Next Family Find Answers.\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Help the Next Family Find Answers.<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">An Erdheim-Chester Disease diagnosis brings questions no family should have to navigate alone. Your support helps ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-176889\" class=\"dp-dfg-item post-176889 post type-post status-publish format-standard has-post-thumbnail hentry category-uncategorized\"     data-position=\"6\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/zh\/one-familys-search-for-answers-became-a-place-to-turn\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/11\/Website-Graphic-1-edited.png\" alt=\"One family\u2019s search for answers became a place to turn\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">One family\u2019s search for answers became a place to turn<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">Dear Friend,\r\n\r\nKathy Brewer finally learned the name of the disease that had made her husband, Gary, so ill. But ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-176892\" class=\"dp-dfg-item post-176892 post type-post status-publish format-standard has-post-thumbnail hentry category-home-featured-news-two tag-ecdga tag-erdheimchester tag-raredisease\"     data-position=\"7\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/zh\/one-familys-search-for-answers-became-a-community\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/11\/Website-Graphic-1-edited.png\" alt=\"One Family\u2019s Search for Answers Became a Community\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">One Family\u2019s Search for Answers Became a Community<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">Kathy Brewer finally learned the name of the disease that had made her husband, Gary, so ill. But the answer came ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-176765\" class=\"dp-dfg-item post-176765 post type-post status-publish format-standard has-post-thumbnail hentry category-news\"     data-position=\"8\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/zh\/erdheim-chester-disease-global-alliance-end-of-year-campaign-2026\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/11\/Year-End-Giving-Matching-Gift-Appeal.png\" alt=\"Erdheim-Chester Disease Global Alliance End of Year Campaign 2026\" width=\"1536\" height=\"1024\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Erdheim-Chester Disease Global Alliance End of Year Campaign 2026<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">Dear Community Member\r\n\r\nYou have been part of the Erdheim-Chester Disease Global Alliance\u2019s work to bring ...<\/div><\/article><!-- DPDFG End Post Item Container --><article id=\"post-176752\" class=\"dp-dfg-item post-176752 post type-post status-publish format-standard has-post-thumbnail hentry category-uncategorized tag-earlycareerresearchers tag-ecd tag-erdheimchesterdisease tag-rarediseaseresearch tag-researchgrant\"     data-position=\"9\"   data-new-tab=\"off\"   data-action-priority=\"item\"><figure class=\"dp-dfg-image entry-thumb\"><a href=\"https:\/\/www.erdheim-chester.org\/zh\/research-funding-opportunity-2\/\" class=\"dp-dfg-image-link\" ><img loading=\"lazy\" decoding=\"async\" class=\"dp-dfg-featured-image\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/10\/LOI-Graphic-edited.png\" alt=\"Research Funding Opportunity\" width=\"1800\" height=\"1200\" data-ratio=\"0.66666666666667\"\/><\/a><\/figure><div class=\"dp-dfg-header entry-header\"><h2 class=\"entry-title\">Research Funding Opportunity<\/h2><\/div><div class=\"dp-dfg-content entry-summary\">The ECD Global Alliance is accepting Letters of Intent for its 2026 Early Career Investigator Grant. Up to $60,000 ...<\/div><\/article><!-- DPDFG End Post Item Container --><\/div><div class=\"dp-dfg-announcer screen-reader-text\" aria-live=\"polite\" aria-atomic=\"true\"><\/div><\/div><!-- DPDFG End Main Container --><div class=\"dp-dfg-data dp-dfg-hide\"><div class=\"dp-dfg-ajax-data\" 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data-signature=\"9c6818612d9a9741825c2472d562351d1025f20a48710e83568a5f5a7708bc00\"><\/div><div class=\"dp-dfg-no-results-data\"><div class=\"dp-dfg-no-results\">No results found.<\/div><\/div><div class=\"dp-dfg-loader-data\"><\/div><\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div><\/p>\n","protected":false},"author":14,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<h2>ECD Global Alliance Board of Directors<\/h2>\r\n<ul class=\"staff-list\">\r\n \t<li>\r\n<div class=\"staff-thumb\"><img src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/04\/place-holder.png\" alt=\"\"><\/div>\r\n<div class=\"staff-des\">\r\n\r\n<strong>Kathy Brewer, President<\/strong>\r\n715 Davella Dr.\r\nDeRidder, LA 70634\r\n337-515-6987\r\n\r\nMasters in Engineering (1983), B.S. in Mechanical Engineering (1981). Kathy worked in the aerospace industry for 15 years, where she spent 10 years as an engineering software development manager. Since 1998 she has been involved in non-profit work and various contract work, and is currently a partner in a management consulting firm. She lost her beloved husband, F. Gary Brewer, to Erdheim-Chester Disease in 2007. He remained undiagnosed throughout his life, with the diagnosis of ECD occurring as the result of an autopsy.\r\n\r\n<\/div><\/li>\r\n \t<li>\r\n<div class=\"staff-thumb\"><img src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/04\/place-holder.png\" alt=\"\"><\/div>\r\n<div class=\"staff-des\">\r\n\r\n<strong>Pamela Fleming<\/strong>\r\n149 Sagamore Pkwy\r\nLaPorte, IN 46350\r\npkf99@netscape.com\r\n219-326-8008\r\n\r\nGraduated from Oklahoma State University, 1960. Pam learned to fly and became a flight instructor in 1967. She worked with her husband in a small business for over 30 years that grew to employ more than 300 employees. Her duties included office management, finances and computer programming. She is presently partly retired, with oversight over operations. Pam has three children. She was diagnosed with ECD in 2003.\r\n\r\n<\/div><\/li>\r\n \t<li>\r\n<div class=\"staff-thumb\"><img src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/04\/place-holder.png\" alt=\"\"><\/div>\r\n<div class=\"staff-des\">\r\n\r\n<strong>Rachel Mitchell, Treasurer<\/strong>\r\nLaurel, MD\r\n\r\nMasters in Business Administration with focus in Healthcare Management (2004), B.S. in Accounting, minor in music (1997). Ms. Rachel Mitchell is currently employed by the Department of Veterans Affairs (VA) as the Chief Financial Officer for the VA Capitol Healthcare Network located in the DC\/ Baltimore area. She has worked at various medical centers throughout the country over her past 13 years of service with VA including Des Moines, IA, Pittsburgh, PA, and Mountain Home, TN. In her free time, Ms. Mitchell enjoys crafting, spending time with family and friends, traveling and spoiling her nieces. Rachel lost her sister-in-law to ECD in 2010.\r\n\r\n<\/div><\/li>\r\n \t<li>\r\n<div class=\"staff-thumb\"><img src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/04\/place-holder.png\" alt=\"\"><\/div>\r\n<div class=\"staff-des\">\r\n\r\n<strong>Glenn Padnick<\/strong>\r\n\r\nGlenn Padnick is a retired television executive. He was a co-founder of Castle Rock Entertainment, where he helped develop and produce the TV series Seinfeld. Before that, he was president of Embassy Television, where he helped develop and produce, among others, Who\u2019s the Boss, 227 and Married\u2026With Children. He is a graduate of Harvard College and Harvard Law School. He is married to Dr. Eleanor Padnick, a dentist. They have three children. He was diagnosed with Erdheim-Chester Disease in 2001.\r\n\r\n<\/div><\/li>\r\n \t<li>\r\n<div class=\"staff-thumb\"><img src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/04\/place-holder.png\" alt=\"\"><\/div>\r\n<div class=\"staff-des\">\r\n\r\n<strong>Juvianee Estrada-Veras, MD<\/strong>\r\nMedical Biochemical Genetics\r\nNational Human Genome Research\r\nInstitute\r\nNational Institutes of Health\r\n10 Center Drive, Bldg 10, CRC- Room 3-2551\r\nBethesda, MD 20892-1851\r\n301-594-2952\r\nestradaverasji@mail.nih.gov\r\njuvianee.i.estradaveras.ctr@mail.mil\r\n\r\nDr. Estrada-Veras interests are the diagnosis and treatment of inborn errors of metabolism in children as well as other genetic disorders. Current research interest include inborn errors of metabolism and non-Langerhans cell histiocytic disorders especially Erdheim-Chester disease. Dr. Estrada-Veras is a collaborator with the NIH study, \u201cClinical and Basic Investigation into Erdheim-Chester Disease\u201d and \u201cDabrafenib and Trametinib Trial for Treating Patients With Erdheim-Chester Disease and BRAF Mutation.\u201d\r\n\r\n<\/div><\/li>\r\n<\/ul>\r\n\u00a0\r\n\r\n\u00a0\r\n<h2>ECD Global Alliance\u00a0Staff<\/h2>\r\n<ul class=\"staff-list\">\r\n \t<li>\r\n<div class=\"staff-thumb\"><img src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2019\/04\/place-holder.png\" alt=\"\"><\/div>\r\n<div class=\"staff-des\">\r\n\r\n<strong>Jessica Corkran\r\n<\/strong>Executive Director\r\nJessica.Corkran@Erdheim-Chester.org\r\n\r\nJessica holds a Bachelor of Science in Management and Marketing.\u00a0 She joined ECDGA in 2014 with an extensive background in management and finance.\u00a0 She is devoted to bettering the lives of those affected by ECD.\u00a0 When Jessica is not active with the ECDGA, she and her husband love spending time with their two wonderful children.\r\n\r\n<\/div><\/li>\r\n<\/ul>","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-153","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/pages\/153","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=153"}],"version-history":[{"count":7,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/pages\/153\/revisions"}],"predecessor-version":[{"id":176457,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/pages\/153\/revisions\/176457"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=153"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}