{"id":1324,"date":"2015-12-02T19:45:09","date_gmt":"2015-12-02T19:45:09","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?page_id=1324"},"modified":"2025-04-02T10:00:51","modified_gmt":"2025-04-02T14:00:51","slug":"%e6%96%b0%e9%97%bb%e4%ba%8b%e4%bb%b6","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/zh\/news-events\/","title":{"rendered":"\u6d3b\u52a8"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_image=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png&#8221; background_position=&#8221;bottom_center&#8221; background_vertical_offset=&#8221;20%&#8221; custom_padding=&#8221;20px||20px||true|false&#8221; background_last_edited=&#8221;on|desktop&#8221; background_position_tablet=&#8221;bottom_right&#8221; background_position_phone=&#8221;center_right&#8221; global_module=&#8221;28071&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_dmb_breadcrumbs _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; body_text_color=&#8221;#FFFFFF&#8221; body_font_size=&#8221;12px&#8221; link_text_color=&#8221;#35A4BB&#8221; custom_margin=&#8221;||5px||false|false&#8221; custom_padding=&#8221;||0px||false|false&#8221; body_font_size_tablet=&#8221;12px&#8221; body_font_size_phone=&#8221;10px&#8221; body_font_size_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_dmb_breadcrumbs][et_pb_heading title=&#8221;@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@&#8221; _builder_version=&#8221;4.27.4&#8243; _dynamic_attributes=&#8221;title&#8221; _module_preset=&#8221;default&#8221; title_font=&#8221;&#8211;et_global_heading_font|300|||||||&#8221; title_text_color=&#8221;#FFFFFF&#8221; title_font_size=&#8221;40px&#8221; custom_margin=&#8221;||3px|||&#8221; title_font_size_tablet=&#8221;&#8221; title_font_size_phone=&#8221;25px&#8221; title_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_heading][et_pb_button button_text=&#8221;Contact Us&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_button=&#8221;on&#8221; button_text_size=&#8221;15px&#8221; button_text_color=&#8221;#C02E43&#8243; button_bg_color=&#8221;rgba(10,22,64,0.53)&#8221; button_border_width=&#8221;0px&#8221; button_icon=&#8221;&#xe60f;||divi||400&#8243; button_icon_color=&#8221;#C02E43&#8243; button_icon_placement=&#8221;left&#8221; button_on_hover=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; filter_opacity__hover_enabled=&#8221;on|hover&#8221; filter_opacity__hover=&#8221;70%&#8221;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;section&#8221; _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_row admin_label=&#8221;row&#8221; _builder_version=&#8221;4.27.4&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; custom_padding=&#8221;||||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text admin_label=&#8221;Text&#8221; _builder_version=&#8221;4.27.4&#8243; background_size=&#8221;initial&#8221; background_position=&#8221;top_left&#8221; background_repeat=&#8221;repeat&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Find information on ECD related events held around the globe.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_3,2_3&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#F2F2F2&#8243; custom_padding=&#8221;40px|40px|40px|40px|true|true&#8221; border_radii=&#8221;on|20px|20px|20px|20px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2016\/03\/2017-Patient-Caregiver-Attendees-Small-e1516487954105.jpg&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][et_pb_column type=&#8221;2_3&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_blurb title=&#8221;ECD Patient &#038; Family Gathering&#8221; icon_alignment=&#8221;left&#8221; content_max_width=&#8221;100%&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||12px|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>The ECDGA has hosted five Patient &amp; Family Gatherings, bringing families, patients and medical professionals together to learn more about Erdheim-Chester Disease.\u00a0 During past events, educational\u00a0presentations have been given by ECD-knowledgeable physicians from around the world. \u00a0The sessions provided disease management strategies and updates, allowing patients and families to become more educated about ECD; helping them to be stronger advocates. \u00a0In addition to learning opportunities, the patients and their families enjoyed fellowship time, allowing them\u00a0to share their stories and experiences with one another. \u00a0These annual events have proven to be a valuable\u00a0contribution to this strong ECD community! \u00a0To find out more about these events, including presentation recordings and photos and future events, please select the learn more button below.<\/p>\n<p>[\/et_pb_blurb][et_pb_button button_url=&#8221;\/events\/category\/ecd-patient-family-gathering\/&#8221; button_text=&#8221;Learn More&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8221;1_3,2_3&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; background_color=&#8221;#F2F2F2&#8243; custom_margin=&#8221;50px||||false|false&#8221; custom_padding=&#8221;40px|40px|40px|40px|true|true&#8221; border_radii=&#8221;on|20px|20px|20px|20px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_image src=&#8221;https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2017\/11\/2017-MS-Group-Photo_All-attendees-300&#215;200.jpg&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_image][\/et_pb_column][et_pb_column type=&#8221;2_3&#8243; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_blurb title=&#8221;ECD Medical Symposium&#8221; icon_alignment=&#8221;left&#8221; content_max_width=&#8221;100%&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; custom_margin=&#8221;||12px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p>Medical professionals from around the world gather at this annual event to share scientific findings, patient outcomes, case studies, and new developments in the research and treatment of this disease.\u00a0 This also allows time for collaboration among scientists and encourages the development of a stronger network of ECD Referral Care Centers.\u00a0 Find past event summaries and future event information by selecting the learn more button.<\/p>\n<p>[\/et_pb_blurb][et_pb_button button_url=&#8221;\/events\/category\/ecd-medical-symposium\/&#8221; button_text=&#8221;Learn More&#8221; _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; hover_enabled=&#8221;0&#8243; global_colors_info=&#8221;{}&#8221; sticky_enabled=&#8221;0&#8243;][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>[et_pb_dmb_breadcrumbs _builder_version=&#8221;4.27.4&#8243; _module_preset=&#8221;default&#8221; body_text_color=&#8221;#FFFFFF&#8221; body_font_size=&#8221;12px&#8221; link_text_color=&#8221;#35A4BB&#8221; custom_margin=&#8221;||5px||false|false&#8221; custom_padding=&#8221;||0px||false|false&#8221; body_font_size_tablet=&#8221;12px&#8221; body_font_size_phone=&#8221;10px&#8221; body_font_size_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221;][\/et_pb_dmb_breadcrumbs]Find information on ECD related events held around the globe.The ECDGA has hosted five Patient &amp; Family Gatherings, bringing [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"<h2>Events<\/h2>\r\n<h4>Find information on ECD related events held around the globe.<\/h4>\r\n[caption id=\"\" align=\"alignright\" width=\"341\"]<a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2016\/03\/2017-Patient-Caregiver-Attendees-Small-e1516487954105.jpg\" target=\"_blank\" rel=\"noopener\"><img src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2016\/03\/2017-Patient-Caregiver-Attendees-Small-e1516487954105.jpg\" alt=\"\" width=\"341\" height=\"227\" \/><\/a> 2017 New York City Attendees[\/caption]\r\n\r\n<strong>ECD Patient &amp; Family Gathering<\/strong>\r\n\r\nThe ECDGA has hosted five Patient &amp; Family Gatherings, bringing families, patients and medical professionals together to learn more about Erdheim-Chester Disease.\u00a0 During past events, educational\u00a0presentations have been given by ECD-knowledgeable physicians from around the world. \u00a0The sessions provided disease management strategies and updates, allowing patients and families to become more educated about ECD; helping them to be stronger advocates. \u00a0In addition to learning opportunities, the patients and their families enjoyed fellowship time, allowing them\u00a0to share their stories and experiences with one another. \u00a0These annual events have proven to be a valuable\u00a0contribution to this strong ECD community! \u00a0To find out more about these events, including presentation recordings and photos and future events, please select the learn more button below.\r\n<a href=\"https:\/\/www.erdheim-chester.org\/news\/ecd-patient-family-gathering\/\"><img class=\"alignnone\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/themes\/ECD\/images\/learn-more-btn.png\" alt=\"learn-more\" width=\"171\" height=\"51\" \/><\/a>\r\n\r\n&nbsp;\r\n\r\n[caption id=\"\" align=\"alignright\" width=\"341\"]<a href=\" https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2017\/11\/2017-MS-Group-Photo_All-attendees-300x200.jpg \" target=\"_blank\" rel=\"noopener\"><img src=\" https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2017\/11\/2017-MS-Group-Photo_All-attendees-300x200.jpg \" alt=\"\" width=\"341\" height=\"227\" \/><\/a> 2017 New York City Medical Attendees[\/caption]\r\n<h3>ECD Medical Symposium<\/h3>\r\nMedical professionals from around the world gather at this annual event to share scientific findings, patient outcomes, case studies, and new developments in the research and treatment of this disease.\u00a0 This also allows time for collaboration among scientists and encourages the development of a stronger network of ECD Referral Care Centers.\u00a0 Find past event summaries and future event information by selecting the learn more button.\r\n\r\n<a class=\"learn-more\" href=\"https:\/\/www.erdheim-chester.org\/news\/ecd-medical-symposium\/\"><img src=\"https:\/\/www.erdheim-chester.org\/wp-content\/themes\/ECD\/images\/learn-more-btn.png\" alt=\"learn-more\" \/><\/a>\r\n\r\n&nbsp;","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-1324","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/pages\/1324","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/comments?post=1324"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/pages\/1324\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh\/wp-json\/wp\/v2\/media?parent=1324"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}