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X-ORIGINAL-URL:https://www.erdheim-chester.org/zh
X-WR-CALDESC:Erdheim-Chester Disease Global Alliance的活动
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DTSTART;TZID=America/Chicago:20260922T110000
DTEND;TZID=America/Chicago:20260922T120000
DTSTAMP:20260826T162643Z
CREATED:20260826T145434Z
LAST-MODIFIED:20260826T162643Z
UID:10001695-1790074800-1790078400@www.erdheim-chester.org
SUMMARY:Erdheim-Chester Disease (ECD): Educational guidance for patients\, families\, and medical practitioners
DESCRIPTION:Speaker: Dr. Hind Salama\, Consultant\nHematology/Oncology at King Abdulaziz Medical City\nRiyadh/Saudi Arabia\nDate: Tuesday\, September 22\, 2026\nTime: 11:00 AM CDT \nDr. Hind Salama is a Consultant Adult Hematologist at King Abdulaziz Medical City (KAMC) in Riyadh\, Saudi Arabia\, and an Assistant Professor at King Saud bin Abdulaziz University for Health Sciences (KASU). She is recognized as a leading specialist in adult hematology\, with a strong focus on acute lymphoblastic leukemia (ALL) and histiocytic diseases. Register Here
URL:https://www.erdheim-chester.org/zh/event/erdheim-chester-disease-ecd-educational-guidance-for-patients-families-and-medical-practitioners/
CATEGORIES:Webinars
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2026/08/Educational-guidance-for-patients-families-and-medical.png
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20260929T130000
DTEND;TZID=America/Chicago:20260929T140000
DTSTAMP:20260826T141806Z
CREATED:20260826T141806Z
LAST-MODIFIED:20260826T141806Z
UID:10001693-1790686800-1790690400@www.erdheim-chester.org
SUMMARY:Peer-to-Peer Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/zh/event/peer-to-peer-community-chat-14-2/
CATEGORIES:Peer-to-Peer Community Chats
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/Peer-to-Peer-Chat.png
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20261008T080000
DTEND;TZID=America/Chicago:20261008T090000
DTSTAMP:20260826T141850Z
CREATED:20260826T141850Z
LAST-MODIFIED:20260826T141850Z
UID:10001694-1791446400-1791450000@www.erdheim-chester.org
SUMMARY:French Community Chat
DESCRIPTION:Register Today \nChats are open for any discussion topic within reason. Often discussed topics include ECD diagnosis issues\, treatments\, tests\, knowledgeable doctors\, symptoms\, treatment side effects\, and sometimes just friendly discussions about pleasant things happening in participants’ lives. Most who attend the sessions have found connections and continue to correspond outside of the chat sessions. The meetings also provide a support structure for those who are interested in learning as much as they can about ECD and providing mutual support to each other. \nPlease read our Virtual Participation Policy before joining an ECD Global Alliance meeting or webinar. \nNOTE: Check your time zone here: Time Zone Converter. \nThere will not be a medical professional assisting with these calls. Every patient is unique and medical advice cannot be offered here; we encourage all ideas to be shared with doctors. Please read our Virtual Participation Policy.
URL:https://www.erdheim-chester.org/zh/event/french-community-chat-6/
CATEGORIES:French Community Chats
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/French-Chat.jpg
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20270801
DTEND;VALUE=DATE:20270901
DTSTAMP:20260825T141056Z
CREATED:20260519T170441Z
LAST-MODIFIED:20260825T141056Z
UID:10001490-1817078400-1819756799@www.erdheim-chester.org
SUMMARY:12th Annual ECD Patient & Family Gathering – Glasgow\, Scotland 2027
DESCRIPTION:We are excited to announce that the 12th Annual ECDGA Patient and Family Gathering will be held in Glasgow\, Scotland in August 2027. This special event will bring together patients\, families\, researchers\, clinicians\, and advocates from around the world to connect\, learn\, and support one another. The gathering will be held in conjunction with the Histiocyte Society meeting. Additional details\, including exact dates\, venue information\, and registration details\, will be announced soon.
URL:https://www.erdheim-chester.org/zh/event/12th-annual-ecd-patient-family-gathering-glasgow-scotland-2027/
CATEGORIES:ECD Patient & Family Gathering,Featured
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2026/05/pfg-2027-white.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20270801
DTEND;VALUE=DATE:20270901
DTSTAMP:20260825T141158Z
CREATED:20260519T170446Z
LAST-MODIFIED:20260825T141158Z
UID:10001491-1817078400-1819756799@www.erdheim-chester.org
SUMMARY:12th Annual ECD Medical Symposium – Glasgow\, Scotland 2027
DESCRIPTION:We are excited to announce that the 12th Annual ECDGA Medical Symposium will be held in Glasgow\, Scotland in August 2027. This special event will bring together researchers and clinicians from around the world to connect\, learn\, and support one another. The gathering will be held in conjunction with the Histiocyte Society meeting. Additional details\, including exact dates\, venue information\, and registration details\, will be announced soon.
URL:https://www.erdheim-chester.org/zh/event/12th-annual-ecd-medical-symposium-glasgow-scotland-2027/
CATEGORIES:ECD Medical Symposium,Featured
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2026/05/ms-2027-white.jpg
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