{"id":71846,"date":"2025-03-21T09:53:02","date_gmt":"2025-03-21T13:53:02","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/%e7%8f%be%e5%9c%a8%e5%b0%b1%e8%a8%bb%e5%86%8a%e5%8f%83%e5%8a%a02025%e5%b9%b4-ecd-%e5%92%8c%e5%ae%b6%e5%ba%ad%e8%81%9a%e6%9c%83-%e6%97%a9%e9%b3%a5%e5%83%b9%e5%8f%af%e7%94%a8%ef%bc%81\/"},"modified":"2025-08-23T17:16:37","modified_gmt":"2025-08-23T21:16:37","slug":"%e7%8f%be%e5%9c%a8%e5%b0%b1%e8%a8%bb%e5%86%8a%e5%8f%83%e5%8a%a02025%e5%b9%b4-ecd-%e5%92%8c%e5%ae%b6%e5%ba%ad%e8%81%9a%e6%9c%83-%e6%97%a9%e9%b3%a5%e5%83%b9%e5%8f%af%e7%94%a8%ef%bc%81","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh-hant\/%e7%8f%be%e5%9c%a8%e5%b0%b1%e8%a8%bb%e5%86%8a%e5%8f%83%e5%8a%a02025%e5%b9%b4-ecd-%e5%92%8c%e5%ae%b6%e5%ba%ad%e8%81%9a%e6%9c%83-%e6%97%a9%e9%b3%a5%e5%83%b9%e5%8f%af%e7%94%a8%ef%bc%81\/","title":{"rendered":"\u73fe\u5728\u5c31\u8a3b\u518a\u53c3\u52a02025\u5e74 ECD \u548c\u5bb6\u5ead\u805a\u6703 &#8211; \u65e9\u9ce5\u50f9\u53ef\u7528\uff01"},"content":{"rendered":"<p><a href=\"https:\/\/secure.qgiv.com\/for\/bpfg\/event\/barcelonapatientfamilygathering\/\"><img loading=\"lazy\" decoding=\"async\" class=\"alignleft size-medium wp-image-46263\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Picture1-1-256x300.png\" alt=\"\" width=\"256\" height=\"300\"><\/a><b>2025\u5e74ECD\u60a3\u8005\u8207\u5bb6\u5ead\u805a\u6703<\/b>\u7684\u8a3b\u518a\u5df2\u7d93\u6b63\u5f0f\u958b\u653e\uff0c\u9019\u5c0d<b>Erdheim-Chester\u75c5\uff08ECD\uff09\u60a3\u8005\u3001\u8b77\u7406\u4eba\u54e1\u548c\u5bb6\u5ead<\/b>\u4f86\u8aaa\u662f\u4e00\u500b\u7d55\u4f73\u7684\u6a5f\u6703\u3002\u4eca\u5e74\u7684\u805a\u6703\u5c07\u65bc 5 \u6708 26 \u65e5\u5728\u5df4\u585e\u7f85\u90a3\u8209\u884c\uff0c\u9019\u63d0\u4f9b\u4e86\u4e00\u500b\u5bf6\u8cb4\u7684\u6a5f\u6703\uff0c\u53ef\u4ee5\u76f4\u63a5\u807d\u53d6\u8655\u65bc <b>ECD \u6cbb\u7642\u548c\u7814\u7a76<\/b>\u524d\u6cbf<b>\u7684\u9818\u5148 ECD \u7814\u7a76\u4eba\u54e1\u548c\u91ab\u7642\u4fdd\u5065\u5c08\u696d\u4eba\u54e1<\/b>\u7684\u610f\u898b\u3002 <\/p>\n<h3><strong>\u70ba\u4ec0\u9ebc\u4f60\u61c9\u8a72\u53c3\u52a0\uff1a<\/strong><\/h3>\n<ul>\n<li><strong>\u7368\u5bb6\u63a5\u89f8 ECD \u5c08\u5bb6<\/strong> \u2013 \u5411\u81f4\u529b\u65bc\u6539\u9032 ECD \u6cbb\u7642\u65b9\u6848\u548c\u60a3\u8005\u8b77\u7406\u7684\u9802\u7d1a\u91ab\u751f\u3001\u7814\u7a76\u4eba\u54e1\u548c\u5c08\u5bb6\u5b78\u7fd2\u3002<\/li>\n<li><strong>\u8207\u91ab\u7642\u5c08\u696d\u4eba\u54e1\u7684\u554f\u7b54\u74b0\u7bc0<\/strong> \u2013 \u8b93 <strong>Erdheim-Chester \u75c5\u8b77\u7406<\/strong>\u5c08\u5bb6\u56de\u7b54\u60a8\u6700\u7dca\u8feb\u7684\u554f\u984c\u3002<\/li>\n<li><strong>\u8207 ECD \u793e\u5340\u806f\u7e6b<\/strong> \u2013 \u8207\u771f\u6b63\u77ad\u89e3\u9019\u7a2e\u7f55\u898b\u75be\u75c5\u751f\u6d3b\u65c5\u7a0b\u7684 <strong>ECD \u60a3\u8005\u3001\u8b77\u7406\u4eba\u54e1\u548c\u5bb6\u5ead<\/strong> \u4e92\u52d5\u3002<\/li>\n<li><strong>\u63a8\u9032\u652f\u63f4\u6027\u8b77\u7406<\/strong> \u2013 \u60a8\u7684\u63d0\u524d\u8a3b\u518a\u6709\u52a9\u65bc\u6211\u5011\u63d0\u4f9b <strong>\u9996\u9078\u8a9e\u8a00\u53e3\u8b6f\u670d\u52d9<\/strong>\uff0c\u4f7f\u6b64\u6d3b\u52d5\u66f4\u6613\u65bc\u8a2a\u554f\u3002<\/li>\n<li><strong>\u60a3\u8005\u5ba3\u5c0e\u548c\u7814\u7a76\u66f4\u65b0<\/strong> \u2013 \u96a8\u6642\u77ad\u89e3 <strong>ECD \u6cbb\u7642\u3001\u7814\u7a76\u548c\u5ba3\u50b3\u5de5\u4f5c<\/strong>\u7684\u6700\u65b0\u9032\u5c55\u3002<\/li>\n<\/ul>\n<h3><strong>\u7acb\u5373\u8a3b\u518a\u4e26\u7bc0\u7701\u8cbb\u7528\uff01<\/strong><\/h3>\n<p>\u5229\u7528 <strong>\u65e9\u9ce5\u50f9<\/strong> \uff0c\u78ba\u4fdd\u4f60\u5728\u9019\u500b\u6709\u5f71\u97ff\u529b\u7684\u6d3b\u52d5\u4e2d\u4f54\u6709\u4e00\u5e2d\u4e4b\u5730\u3002\u4e0d\u8981\u932f\u904e\u9019\u500b\u7372\u5f97 <strong>\u77e5\u8b58\u3001\u652f\u63f4\u548c\u8cc7\u6e90\u7684\u6a5f\u6703\uff0c\u9019\u4e9b\u77e5\u8b58\u3001\u652f\u63f4\u548c\u8cc7\u6e90<\/strong> \u53ef\u4ee5\u5728\u60a8\u7684 ECD \u65c5\u7a0b\u4e2d\u767c\u63ee\u4f5c\u7528\u3002 <\/p>\n<p><img decoding=\"async\" class=\"emoji\" role=\"img\" draggable=\"false\" src=\"https:\/\/s.w.org\/images\/core\/emoji\/15.0.3\/svg\/1f517.svg\" alt=\"\ud83d\udd17\"> <strong>\u73fe\u5728\u8a3b\u518a<\/strong>\uff1a <a href=\"https:\/\/secure.qgiv.com\/for\/bpfg\/event\/barcelonapatientfamilygathering\/\" target=\"_blank\" rel=\"noopener\" aria-label=\"ECD Patient &amp; 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