{"id":66925,"date":"2020-01-02T20:06:04","date_gmt":"2020-01-03T01:06:04","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/%e7%b5%a6%e8%a6%aa%e4%ba%ba%e7%9a%84%e5%bb%ba%e8%ad%b0\/"},"modified":"2025-08-23T17:29:21","modified_gmt":"2025-08-23T21:29:21","slug":"%e7%b5%a6%e8%a6%aa%e4%ba%ba%e7%9a%84%e5%bb%ba%e8%ad%b0","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh-hant\/%e7%b5%a6%e8%a6%aa%e4%ba%ba%e7%9a%84%e5%bb%ba%e8%ad%b0\/","title":{"rendered":"\u7d66\u89aa\u4eba\u7684\u5efa\u8b70"},"content":{"rendered":"

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\u6ce8\u610f\uff1a\u6709\u6642 Erdheim-Chester \u75c5 \uff08ECD\uff09 \u4e0d\u90a3\u9ebc\u6975\u7aef\uff0c\u800c\u8b77\u7406\u9700\u6c42\u4e5f\u76f8\u61c9\u5730\u4e0d\u90a3\u9ebc\u6975\u7aef\u3002\u9019\u5f88\u5947\u5999\uff0c\u4e5f\u5f88\u6b63\u5e38\uff0c\u4f46\u591a\u5e74\u4f86\uff0c\u672c\u7bc0\u4e2d\u7684\u5efa\u8b70\u4ecd\u7136\u53ef\u80fd\u6709\u6240\u8aac\u660e\u3002 <\/p>\n

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\u4f5c\u70ba\u8b77\u7406\u4eba\u54e1\uff0c\u8207\u5bb6\u4eba\u3001\u670b\u53cb\u548c\u5176\u4ed6\u77ad\u89e3\u60a8\u6b63\u5728\u7d93\u6b77\u7684\u4eba\u4fdd\u6301\u806f\u7e6b\u4e5f\u5f88\u91cd\u8981\u3002 <\/strong> \u82b1\u6642\u9593\u8207\u4ed6\u4eba\u4ea4\u6d41\u3002\u4e0d\u8981\u628a\u4f60\u7684\u6050\u61fc\u3001\u58d3\u529b\u3001\u64d4\u6182\u7b49\u85cf\u5728\u5fc3\u88e1\u3002\u627e\u4e00\u500b\u4f60\u53ef\u4ee5\u4fe1\u4efb\u7684\u4eba\u4f86\u5206\u4eab\u4f60\u7684\u60f3\u6cd5\u548c\u64d4\u6182\u3002\u70ba\u6b64\uff0c\u60a8\u53ef\u4ee5\u53c3\u8003\u60a8\u4ee5\u524d\u7684\u5bb6\u4eba\u3001\u670b\u53cb\u6216\u6559\u6703\u6210\u54e1\u7684\u652f\u6301\u7d50\u69cb\u3002\u6216\u8005\uff0c\u60a8\u53ef\u80fd\u60f3\u6c42\u52a9\u65bc\u7167\u6599\u8005\u4e92\u52a9\u5c0f\u7d44\u3002\u9019\u4e9b\u4e92\u52a9\u5c0f\u7d44\u901a\u5e38\u53ef\u4ee5\u901a\u904e\u60a8\u7684\u6559\u5802\u3001\u91ab\u751f\u8fa6\u516c\u5ba4\u6216\u5728\u7dda\u627e\u5230\u3002\u4e00\u500b\u9019\u6a23\u7684\u5728\u7dda\u7d44\u7e54\u662f\u5168\u570b\u5bb6\u5ead\u7167\u9867\u8005\u5354\u6703 \uff08http:\/\/www.nfcacares.org\uff09\u3002 <\/p>\n

\u4f5c\u70ba\u8b77\u7406\u4eba\u54e1\u8981\u8a18\u4f4f\u7684\u53e6\u4e00\u4ef6\u91cd\u8981\u4e8b\u60c5\u662f\u5bc6\u5207\u95dc\u6ce8\u60a8\u7684\u500b\u4eba\u5065\u5eb7\u60c5\u6cc1\u3002<\/strong> \u8a18\u4f4f\u5403\u5065\u5eb7\u7684\u98df\u7269\u3001\u5145\u8db3\u7684\u7761\u7720\u3001\u935b\u7149\u3001\u5b9a\u671f\u53bb\u770b\u91ab\u751f\u6aa2\u67e5\uff0c\u4e26\u5728\u9700\u8981\u6642\u82b1\u6642\u9593\u4f11\u606f\u3002\u5982\u679c\u60a8\u4f5c\u70ba\u8b77\u7406\u4eba\u54e1\u751f\u75c5\u4e86\uff0c\u8acb\u8a18\u4f4f\u505a\u5fc5\u8981\u7684\u4e8b\u60c5\u4f86\u8b93\u60a8\u597d\u8d77\u4f86\u3002\u7576\u60a8\u7167\u9867\u751f\u75c5\u7684\u89aa\u4eba\u6642\uff0c\u6240\u6709\u9019\u4e9b\u90fd\u8981\u56f0\u96e3\u5f97\u591a\uff0c\u4f46\u8acb\u8a18\u4f4f\uff0c\u60a8\u9700\u8981\u76e1\u53ef\u80fd\u4fdd\u6301\u5065\u5eb7\uff0c\u5982\u679c\u4e0d\u662f\u70ba\u4e86\u60a8\u81ea\u5df1\uff0c\u90a3\u9ebc\u662f\u70ba\u4e86\u60a8\u6240\u611b\u7684\u4eba\u3002 <\/p>\n

\u52aa\u529b\u6709\u610f\u8b58\u5730\u5728\u60a8\u6240\u611b\u7684\u4eba\u7684\u9700\u6c42\u548c\u60a8\u81ea\u5df1\u7684\u9700\u6c42\u4e4b\u9593\u4fdd\u6301\u5e73\u8861\uff0c\u5c0d\u60a8\u548c\u60a8\u6240\u611b\u7684\u4eba\u7684\u5065\u5eb7\u6975\u70ba\u91cd\u8981\u3002<\/strong> \u5728\u89aa\u4eba\u751f\u75c5\u6642\u7167\u9867\u4ed6\u5011\u662f\u60a8\u9762\u81e8\u7684\u6700\u56f0\u96e3\u7684\u5de5\u4f5c\u4e4b\u4e00\u3002\u58d3\u529b\u5f88\u5927\uff0c\u800c\u4e14\u7d93\u5e38\u975e\u5e38\u5b64\u7368\u3002\u9019\u4e5f\u662f\u60a8\u6709\u6a5f\u6703\u505a\u7684\u6700\u6709\u611b\u5fc3\u548c\u5949\u737b\u7cbe\u795e\u7684\u5de5\u4f5c\u4e4b\u4e00\u3002\u6709\u4e86\u5e73\u8861\uff0c\u60a8\u5c07\u8655\u65bc\u66f4\u597d\u7684\u4f4d\u7f6e\uff0c\u53ef\u4ee5\u7e7c\u7e8c\u4ee5\u611b\u548c\u540c\u60c5\u5fc3\u505a\u9700\u8981\u505a\u7684\u4e8b\u60c5\uff0c\u540c\u6642\u964d\u4f4e\u8b77\u7406\u4eba\u54e1\u5026\u6020\u7684\u98a8\u96aa\u3002 <\/p>\n

\u7db2\u7ad9\u8cc7\u6e90<\/h3>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Information<\/th>Website<\/th>\n<\/tr>\n<\/thead>\n
Offers consulting services and educational content with a message to empower caregivers to prepare to care.<\/td>http:\/\/www.caregivingclub.com\/<\/a><\/td>\n<\/tr>\n
A visual Education Center for Family Caregivers<\/td>http:\/\/www.videocaregiving.org\/caregiving.php<\/a><\/td>\n<\/tr>\n
Tool box of resources for caregivers<\/td>http:\/\/caregiveraction.org\/resources\/toolbox\/<\/a><\/td>\n<\/tr>\n
Caregiver assessment tool<\/td>http:\/\/www.ama-assn.org\/ama\/pub\/physician-resources\/public-health\/promoting-healthy-lifestyles\/geriatric-health\/caregiver-health\/caregiver-self-assessment.page<\/a><\/td>\n<\/tr>\n
Checklists and information to help the caregiver<\/td>http:\/\/www.agis.com\/caregiverkit\/caregiverkit.pdf<\/a><\/td>\n<\/tr>\n
Caregivers Coping with Chronic Illness from the National Dysautonomia Research Foundation<\/td>http:\/\/www.ndrf.org\/Caregiving.htm<\/a><\/td>\n<\/tr>\n
Website that provides a tool for family, friends, neighbors, and colleagues to organize activities during times of need.<\/td>http:\/\/www.lotsahelpinghands.com\/<\/a><\/td>\n<\/tr>\n
General information regarding caregivers or carers.<\/td>http:\/\/en.wikipedia.org\/wiki\/Caregiver<\/a><\/td>\n<\/tr>\n
Caregiving: A Universal Occupation \u2013 Caring for Adults with Cognitive and Memory Impairments<\/td>http:\/\/www.caregiver.org\/caregiver\/jsp\/content_node.jsp?nodeid=392<\/a><\/td>\n<\/tr>\n
Personal growth and self-help website<\/td>http:\/\/www.healyourlife.com\/wisdom<\/a><\/td>\n<\/tr>\n
A national consumer and community engagement initiative to improve care at the end of life.<\/td>http:\/\/www.caringinfo.org<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

\u770b\u8b77\u4eba\u535a\u5ba2<\/h3>\n\n\n\n\n\t\n\n\t
Description of Blog<\/th>Website<\/th>\n<\/tr>\n<\/thead>\n
Caregiver to a chronically ill husband writes about her experiences<\/td>http:\/\/spousalcare.blogspot.com<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n","protected":false},"excerpt":{"rendered":"

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