{"id":63750,"date":"2021-06-24T14:45:50","date_gmt":"2021-06-24T18:45:50","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/%e7%82%ba%e6%b2%bb%e7%99%92%e8%80%8c%e6%94%80%e7%99%bb\/"},"modified":"2025-08-23T18:17:10","modified_gmt":"2025-08-23T22:17:10","slug":"%e7%82%ba%e6%b2%bb%e7%99%92%e8%80%8c%e6%94%80%e7%99%bb","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh-hant\/%e7%82%ba%e6%b2%bb%e7%99%92%e8%80%8c%e6%94%80%e7%99%bb\/","title":{"rendered":"\u70ba\u6cbb\u7652\u800c\u6500\u767b"},"content":{"rendered":"

\u672c\u6708\u7531\u6703\u54e1\u4e3b\u8fa6\u7684 ECD \u865b\u64ec\u8dd1\u6b65\/\u6b65\u884c\u6d3b\u52d5\u65e8\u5728\u70ba\u9019\u7a2e\u7f55\u898b\u75be\u75c5\u7684\u7814\u7a76\u7c4c\u96c6\u8cc7\u91d1\uff0c\u63d0\u9ad8\u8a8d\u8b58\uff0c\u4f75\u70ba\u6240\u6709\u8207 ECD \u4f5c\u9b25\u722d\u7684\u4eba\u53ec\u96c6\u652f\u63f4\u8005\u3002 <\/p>\n

Atnip \u4e00\u5bb6\u5728\u6700\u8fd1\u7684\u7236\u89aa\u7bc0\u9f4a\u805a\u4e00\u5802\uff0c\u5171\u540c\u9054\u5230\u65b0\u7684\u9ad8\u5ea6\uff0c\u4ee5\u652f\u6301\u4ed6\u5011\u7684\u7236\u89aa\u548c\u4e08\u592b\uff0c\u4ee5\u53ca\u6574\u500b\u793e\u5340\uff01  <\/p>\n

\u70ba\u6cbb\u7652\u800c\u6500\u767b<\/h3>\n

\u4f5c\u8005\uff1aMelinda Atnip<\/em><\/p>\n

\"\"<\/p>\n

Atnip \u5bb6\u65cf\u5728\u9019\u500b\u7236\u89aa\u7bc0\u5b8c\u6210\u4e86\u6211\u5011\u7684 5K\u3002\u6211\u5011\u5ea6\u904e\u4e86\u7f8e\u597d\u7684\u4e00\u5929\uff0c\u6176\u795d\u6211\u7684\u4e08\u592b Barry Atnip\uff0855 \u6b72\uff09\uff0c\u4e0d\u50c5\u662f\u6211\u5011\u5169\u500b\u5152\u5b50 Richard\uff0825 \u6b72\uff09\u548c Bradley\uff0820 \u6b72\uff09\u7684\u7236\u89aa\uff0c\u9084\u56e0\u70ba\u4ed6\u5805\u97cc\u4e0d\u62d4\u5730\u5c0d\u6297 ECD\u3002   <\/p>\n

\u6211\u4e08\u592b\u7684\u4e00\u9ede\u80cc\u666f\u6545\u4e8b……\u4ed6\u662f\u4e00\u540d\u9ad8\u4e2d\u548c\u5927\u5b78\u6c34\u7403\u904b\u52d5\u54e1\uff0c\u4e5f\u662f\u4e00\u540d\u6551\u751f\u54e1\u548c\u6e38\u6cf3\u6559\u7df4\u3002\u5927\u5b78\u7562\u696d\u540e\uff0c\u5df4\u91cc\u958b\u59cb\u70ba\u5bb6\u65cf\u4f01\u696d\u5de5\u4f5c\uff0c\u7576\u6211\u5011\u7684\u5152\u5b50\u51fa\u751f\u4e26\u8db3\u5920\u5927\u6642\uff0c\u4ed6\u958b\u59cb\u64d4\u4efb\u68d2\u7403\u548c\u6c34\u7403\u6559\u7df4\u8d85\u904e12\u5e74\u3002\u7537\u5b69\u5011\u9ad8\u4e2d\u7562\u696d\u540e\uff0c\u4ed6\u5c31\u5f9e\u6559\u7df4\u5d17\u4f4d\u4e0a\u9000\u4f11\u4e86\u3002  <\/p>\n

\u5169\u5e74\u524d\uff0cBarry \u88ab\u8a3a\u65b7\u51fa\u60a3\u6709\u5c3f\u5d29\u75c7\uff08\u5728\u4ed6\u57f7\u6559\u7684\u6700\u5f8c\u4e00\u5e74\uff09\u3002\u4ed6\u505a\u5230\u4e86\u9019\u4e00\u5207\uff0c\u76f4\u5230 2020 \u5e74 4 \u6708\uff0c\u4e00\u5207\u4f3c\u4e4e\u90fd\u5f88\u597d\u3002 Barry \u8b8a\u5f97\u6975\u5ea6\u75b2\u52de\uff0c\u4e26\u4e14\u6709\u5e7e\u500b\u8de1\u8c61\u8868\u660e\u51fa\u4e86\u4ec0\u9ebc\u554f\u984c\u3002 <\/strong> <\/p>\n

\u5728\u904e\u53bb\u7684\u4e00\u5e74\u88e1\uff0c\u9664\u4e86\u6211\u5011\u5728 COVID-19 \u5927\u6d41\u884c\u671f\u9593\u9762\u81e8\u7684\u6311\u6230\u5916\uff0c\u6211\u5011\u9084\u8e0f\u4e0a\u4e86\u70ba\u671f 9 \u500b\u6708\u7684\u8271\u8f9b\u65c5\u7a0b\uff0c\u4ee5\u5c0b\u627e Barry \u75c5\u60c5\u7684\u8a3a\u65b7\u3002\u5b83\u59cb\u65bc Barry \u7684\u773c\u775b\u523a\u6fc0\u548c\u8179\u75db\u3002\u6211\u5011\u4ee5\u70ba\u53ea\u662f\u4e00\u4e9b\u5149\u5b78\u967d\u5149\u640d\u50b7\u548c\u53ef\u80fd\u7684\u61a9\u5ba4\u708e\u767c\u4f5c\uff0c\u7d50\u679c\u8b8a\u5f97\u66f4\u5927\u4e86\u3002\u516d\u500b\u591a\u6708\u4f86\uff0c\u91ab\u751f\u8a8d\u70ba\u4ed6\u60a3\u6709\u6dcb\u5df4\u7624\u6216\u8089\u7624\u3002 \u5f9e2020\u5e744\u6708\u5230\u73fe\u5728\uff0cBarry\u5df2\u7d93\u9810\u7d04\u4e8620\u591a\u6b21 Zoom \u91ab\u751f\u300117\u6b21\u9762\u5c0d\u9762\u91ab\u751f\u9810\u7d04\u548c20\u4f4d\u4e0d\u540c\u7684\u91ab\u751f\uff086\u4f4d\u773c\u79d1\u5c08\u5bb6\uff09\u3002<\/strong> \u6240\u6709\u91ab\u751f\u90fd\u4f86\u81ea\u56db\u500b\u4e0d\u540c\u7684\u91ab\u7642\u4e2d\u5fc3\uff08St. Jude\u3001UCI\u3001\u65af\u5766\u798f\u5927\u5b78\u3001\u7d10\u7d04\u5e02\u7d00\u5ff5\u65af\u9686\u51f1\u7279\u7433\uff09\u3002\u4ed6\u9032\u884c\u4e86\u4e00\u6b21 CT \u6383\u63cf\u3001\u56db\u6b21 MRI\u3001\u5169\u6b21 PET \u6383\u63cf\u3001\u5169\u6b21\u814e\u81df\u540e\u8179\u90e8\u816b\u584a\u6d3b\u6aa2\u3001\u4e00\u6b21\u9aa8\u9ad3\u6d3b\u6aa2\u3001\u5169\u6b21\u8d85\u8072\u5fc3\u52d5\u5716\u3001\u816b\u7624\u57fa\u56e0\u7d44\u5206\u6790\u3001\u4e00\u7d44 X \u5149\u7247\uff08whoop-de-doo\uff09\u3001\u4e09\u6b21 covid \u6e2c\u8a66\uff08\u5176\u4e2d\u4e00\u6b21\u5448\u967d\u6027\uff0c\u7665\u72c0\u8f15\u5fae\uff0c\u5728\u5bb6\u88e1\u5446\u4e86 14 \u5929\uff09\uff0c\u5169\u6b21\u6839\u7ba1\u6cbb\u7642\uff08\u7121\u95dc\u4f46\u6c92\u6a02\u8da3\uff09\uff0c \u62bd\u53d6\u4e86\u4e00\u500b\u7687\u51a0\u548c\u4e00\u767e\u4e94\u5341\u591a\u74f6\u8840\u3002  <\/p>\n

\"\"<\/a>Barry \u65bc 2021 \u5e74 1 \u6708 19 \u65e5\u88ab\u8a3a\u65b7\u51fa\u60a3\u6709 Erdheim-Chester \u75c5\u3002Barry \u7d42\u65bc\u5728 2021 \u5e74 4 \u6708 1 \u65e5\u958b\u59cb\u6cbb\u7642\u3002\u4ed6\u6b63\u5728\u670d\u7528 BRAF \u548c MEK \u6291\u88fd\u5291\u3002\u597d\u6d88\u606f\u662f\u5df4\u91cc\u7d42\u65bc\u611f\u89ba\u597d\u591a\u4e86\uff01\uff01<\/strong>\u5df4\u91cc\u6b63\u5728\u5de5\u4f5c\u3001\u935b\u7149\u3001\u6ed1\u96ea\u3001\u9a0e\u5c71\u5730\u81ea\u884c\u8eca\uff0c\u4e26\u5e0c\u671b\u80fd\u963b\u6b62\u4ed6\u7684\u75be\u75c5\u767c\u5c55\u3002\u6211\u5011\u6bcf\u5929\u90fd\u7528\u5fc3\u904e\uff0c\u5f88\u5e78\u904b\u5728\u6211\u5011\u7684\u751f\u6d3b\u4e2d\u6709\u6211\u5011\u7684\u5bb6\u4eba\u548c\u670b\u53cb\u3002\u5982\u60a8\u6240\u77e5\uff0c\u5982\u679c\u6c92\u6709 2016 \u5e74\u4e4b\u524d\u9032\u884c\u7684\u7814\u7a76\u548c\u81e8\u5e8a\u8a66\u9a57\uff0cECD \u7684\u6cbb\u7642\u8a08\u5283\u975e\u5e38\u7a00\u7f3a\u3002 \u6211\u5011\u611f\u8b1d\u5728\u6211\u5011\u4e4b\u524d\u7684\u60a3\u8005\uff0c\u4ed6\u5011\u4ed8\u51fa\u4e86\u8271\u82e6\u7684\u52aa\u529b\uff0c\u8b93 Barry \u80fd\u5920\u7372\u5f97\u9069\u7576\u7684\u85e5\u7269\u4f86\u6cbb\u7642\u9019\u7a2e\u7f55\u898b\u75be\u75c5\u3002<\/strong><\/p>\n

\"\"<\/a>\u6240\u4ee5\u3002\u3002\u3002\u3002\u61c9 Barry \u6559\u7df4\u7684\u8981\u6c42\uff0c\u5728 ECD 5K \u671f\u9593\uff0c\u6211\u5011\u5168\u5bb6\u4e0d\u5f97\u4e0d\u9032\u884c\u300c\u722c\u6a13\u68af\u6311\u6230\u300d\u3002\u6211\u5011\u5f9e\u5bcc\u52d2\u9813\u5e02\u90a3\u689d\u60a0\u9592\u7684\u5c0f\u5f91\u958b\u59cb\uff0c\u7136\u5f8c\u8d70\u5230\u300c\u6a13\u68af\u300d\u4e0a\u3002Barry \u8981\u6c42\u6211\u5011\u90fd\u8d70\u6a13\u68af\uff0c\u56db\u6b21\uff01\u6b63\u5e38\u4e0a\u5347\u4e00\u500b\u7b49\u7d1a\uff0c\u7136\u5f8c\u9010\u6f38\u589e\u52a0\uff0c\u8df3\u904e\u53f0\u968e\u5230\u9802\u90e8\u3002\u6211\u5011\u5728\u7576\u5730\u516c\u5712\u7684\u5674\u6cc9\u65c1\u7d50\u675f\u4e86\u6563\u6b65\u3002\u6ce8\u610f\uff1a\u6211\u4e0d\u9ad8\u8208\u8df3\u904e\u9019\u4e9b\u6b65\u9a5f\u3002<\/p>\n

\u96d6\u7136\u6211\u5011\u624d\u525b\u525b\u958b\u59cb Erdheim-Chester \u75c5\u7684\u65c5\u7a0b\uff0c\u4f46\u63d0\u9ad8\u8a8d\u8b58\u4e26\u70ba\u5c0b\u627e\u6cbb\u7652\u65b9\u6cd5\u505a\u51fa\u8ca2\u737b\u5c0d\u6211\u5011\u4f86\u8aaa\u975e\u5e38\u91cd\u8981\u3002Atnip \u5718\u968a\u5411\u524d\u9081\u51fa\u4e00\u6b65\uff0c\u96e2\u6cbb\u7652\u66f4\u8fd1\u4e00\u6b65\uff01 <\/strong><\/p>\n

 <\/p>\n","protected":false},"excerpt":{"rendered":"

\u672c\u6708\u7531\u6703\u54e1\u4e3b\u8fa6\u7684 ECD \u865b\u64ec\u8dd1\u6b65\/\u6b65\u884c\u6d3b\u52d5\u65e8\u5728\u70ba\u9019\u7a2e\u7f55\u898b\u75be […]<\/p>\n","protected":false},"author":14,"featured_media":63756,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[422,891,890],"tags":[1816,959,961,1815,1814,1342,960,1178,952,965,1813,956,966,1812,1177,962],"class_list":["post-63750","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-ecdga-","category-891","category--ecd-","tag-uci-zh-hant","tag-959","tag-961","tag-1815","tag-1814","tag--covid-19","tag-960","tag-1178","tag--zh-hant","tag-965","tag-1813","tag-956","tag-966","tag-1812","tag-1177","tag-962"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/posts\/63750","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/comments?post=63750"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/posts\/63750\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/media\/63756"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/media?parent=63750"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/categories?post=63750"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/tags?post=63750"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}