{"id":63747,"date":"2021-09-13T14:39:45","date_gmt":"2021-09-13T18:39:45","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/2021-ecd-%e5%ae%a3%e5%82%b3%e5%91%a8\/"},"modified":"2025-08-23T18:17:23","modified_gmt":"2025-08-23T22:17:23","slug":"2021-ecd-%e5%ae%a3%e5%82%b3%e5%91%a8","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh-hant\/2021-ecd-%e5%ae%a3%e5%82%b3%e5%91%a8\/","title":{"rendered":"2021 ECD \u5ba3\u50b3\u5468"},"content":{"rendered":"

 <\/p>\n

Erdheim-Chester \u9152\u5e97\uff09\u75be\u75c5\u5ba3\u50b3\u5468<\/h2>\n

2021 \u5e74 9 \u6708 13 \u65e5\u81f3 18 \u65e5<\/em><\/p>\n

#SharingIsKey #ECDawareness #AwarenessWeek<\/p>\n

 <\/p>\n

ECD\u806f\u76df\u5c07\u8209\u8fa6\u7b2c 7 \u5c46\u5e74\u5ea6 Erdheim-Chester \u75be\u75c5\u5ba3\u50b3\u5468\uff01\u73fe\u5728\u81f3 2021 \u5e74 9 \u6708 18 \u65e5\uff0c\u52a0\u5165\u6211\u5011\u7684\u793e\u5340\uff0c\u63d0\u9ad8\u4eba\u5011\u5c0d\u8d85\u7a00\u6709 ECD \u7684\u8a8d\u8b58\u3002   <\/p>\n

\u8acb\u8003\u616e\u5e6b\u52a9\u6211\u5011\u7684\u5718\u968a\u8207\u4ed6\u4eba\u5206\u4eab\u6709\u95dc Erdheim-Chester \u75c5\u7684\u8cc7\u8a0a\u3002\u6211\u5011\u652f\u63f4\u8005\u7684\u8072\u97f3\u5c0d\u65bc\u6e1b\u5c11\u627e\u5230\u9019\u7a2e\u7f55\u898b\u75be\u75c5\u7684\u8a3a\u65b7\u6240\u9700\u7684\u6642\u9593\u81f3\u95dc\u91cd\u8981\u3002<\/strong><\/p>\n

 <\/p>\n

\u5206\u4eab\u662f\u95dc\u9375\uff01<\/h3>\n

\u4f7f\u7528\u60a8\u7684\u4e3b\u984c\u6a19\u7c64\u5728\u60a8\u7684\u5a92\u9ad4\u9801\u9762\u4e0a\u5206\u4eab<\/strong>\u6211\u5011\u7684\u5a92\u9ad4\u5e16\u5b50\u548c\u60a8\u81ea\u5df1\u7684\u5ba3\u50b3\u5de5\u4f5c\uff0c\u4ee5\u7372\u5f97\u66f4\u591a\u66dd\u5149\uff01
\n#ErdheimChester #SharingIsKey #AwarenessWeek  #ECDawareness #Histio #endECD<\/p>\n

\u6a19\u8a18\u6211\u5011\uff0c\u4ee5\u4fbf\u6211\u5011\u770b\u5230\u60a8\u7684\u5e16\u5b50\uff01<\/strong><\/p>\n

\u81c9\u66f8\uff1a@ErdheimChesterDisease<\/p>\n

Instagram\uff1a @erdheim_chester<\/p>\n

\u63a8\u7279\uff1a@ECDGA<\/p>\n

\u7a7f\u4e0a <\/strong>\u60a8\u7684 ECD \u88dd\u5099\u6216\u7d72\u5e36\uff0c\u4e26\u5411\u6211\u5011\u767c\u9001\u7167\u7247\u3002\u8003\u616e\u6dfb\u52a0\u4e00\u6bb5\u95dc\u65bc\u70ba\u4ec0\u9ebc\u610f\u8b58\u5c0d\u60a8\u548c\u60a8\u7684\u5bb6\u4eba\u5f88\u91cd\u8981\u7684\u5f15\u8ff0\u3002   \u9019\u4e9b\u5716\u7247\u548c\u5f15\u8a00\u5c07\u88ab\u653e\u7f6e\u5728\u4e0a\u8ff0\u5a92\u9ad4\u9801\u9762\u4e0a\uff0c\u4ee5\u63d0\u9ad8\u66dd\u5149\u7387\u3002<\/p>\n

\"2021<\/a><\/p>\n

\u591a\u4ed8\u51fa\u4e00\u9ede\uff01<\/h3>\n

\u5f35\u8cbc\u6216\u5217\u5370\u6b64 ECD \u5ba3\u50b3\u55ae\uff0c\u4e26\u5c07\u5176\u63d0\u4f9b\u7d66\u60a8\u7684\u5bb6\u4eba\u3001\u670b\u53cb\u548c\u91ab\u7642\u5718\u968a\u3002  \u5ba3\u50b3\u55ae<\/a><\/p>\n

\u8207\u7814\u7a76\u7d44\u7e54\u7d30\u80de\u75be\u75c5\u7684\u540c\u4e8b\u5206\u4eab\u6b64\u6559\u80b2\u7db2\u8def\u7814\u8a0e\u6703\u9304\u50cf\u3002  \u7db2\u8def\u7814\u8a0e\u6703\u9304\u50cf<\/a><\/p>\n

\u5efa\u8b70\u60a8\u5728\u60a8\u7684\u91ab\u7642\u4e2d\u5fc3\u4f7f\u7528\u6211\u5011\u7684\u8cc7\u8a0a\u624b\u518a\u3002  \u7d22\u53d6\u7522\u54c1\u624b\u518a<\/a><\/p>\n

\u9080\u8acb\u60a8\u7684\u91ab\u7642\u5718\u968a\u8a3b\u518a ECD \u5168\u7403\u806f\u76df\uff0c\u4ee5\u4fbf\u4ed6\u5011\u96a8\u6642\u4e86\u89e3\u60c5\u6cc1\u3002  \u52a0\u5165\u8868\u55ae<\/a><\/p>\n

 <\/p>\n

\u65b0\u60a3\u8005\u6545\u4e8b\uff01<\/h3>\n

\u6642\u9593\u81f3\u95dc\u91cd\u8981<\/a><\/h3>\n

 <\/p>\n

\u5728\u6b64\u64ad\u5ba2\u4e2d\u5411\u5c08\u5bb6\u5b78\u7fd2\uff01<\/h3>\n

\u6211\u5011\u7684\u7e3d\u88c1\u517c\u806f\u5408\u5275\u59cb\u4eba Kathy Brewer \u8207 Gaurav Goyal \u535a\u58eb\u3001\u7d44\u7e54\u7d30\u80de\u589e\u591a\u75c7\u5354\u6703\u548c\u52a0\u62ff\u5927\u7d44\u7e54\u7d30\u80de\u589e\u591a\u75c7\u5354\u6703\u4e00\u8d77\u53c3\u52a0\u4e86\u4e00\u500b\u95dc\u65bc\u63d0\u9ad8\u8a8d\u8b58\u7684\u64ad\u5ba2\uff01\u8a72\u5c0f\u7d44\u5206\u4eab\u4e86\u4ed6\u5011\u5728\u7f55\u898b\u75c5\u65b9\u9762\u7684\u8c50\u5bcc\u7d93\u9a57\uff0c\u8b49\u660e\u77ad\u63d0\u9ad8\u8a8d\u8b58\u7684\u91cd\u8981\u6027\u3002   \u7acb\u5373\u6536\u807d<\/a><\/p>\n

\u4e00\u5982\u65e2\u5f80\uff0c\u611f\u8b1d\u60a8\u5e6b\u52a9\u6211\u5011\u63d0\u9ad8\u5c0d Erdheim-Chester \u75c5\u7684\u8a8d\u8b58\u3002\u6211\u5011\u7684\u793e\u5340\u975e\u5e38\u611f\u8b1d\u60a8\u7684\u52aa\u529b\uff01 <\/p>\n

\u61f7\u8457\u611f\u6fc0\u4e4b\u60c5\uff0c<\/p>\n

ECD \u5168\u7403\u806f\u76df\u57f7\u884c\u8463\u4e8b
\n\u6f54\u897f\u5609\u00b7\u79d1\u514b\u862d<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

  Erdheim-Chester \u9152\u5e97\uff09\u75be\u75c5\u5ba3\u50b3 […]<\/p>\n","protected":false},"author":14,"featured_media":63749,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[422,891],"tags":[1531,1626,959,961,967,1811,960,1178,952,965,956,966,1177,962],"class_list":["post-63747","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-ecdga-","category-891","tag-histio-zh-hant","tag-histio-","tag-959","tag-961","tag-967","tag-1811","tag-960","tag-1178","tag--zh-hant","tag-965","tag-956","tag-966","tag-1177","tag-962"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/posts\/63747","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/comments?post=63747"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/posts\/63747\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/media\/63749"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/media?parent=63747"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/categories?post=63747"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/tags?post=63747"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}