{"id":61505,"date":"2021-02-17T17:02:46","date_gmt":"2021-02-17T22:02:46","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/2021-%e5%b9%b4%e7%bd%95%e8%a6%8b%e7%97%85%e6%97%a5\/"},"modified":"2025-08-23T18:19:01","modified_gmt":"2025-08-23T22:19:01","slug":"2021-%e5%b9%b4%e7%bd%95%e8%a6%8b%e7%97%85%e6%97%a5","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh-hant\/2021-%e5%b9%b4%e7%bd%95%e8%a6%8b%e7%97%85%e6%97%a5\/","title":{"rendered":"2021 \u5e74\u7f55\u898b\u75c5\u65e5"},"content":{"rendered":"

\u4ec0\u9ebc\u662f\u7f55\u898b\u75c5\u65e5\uff1f<\/strong><\/h1>\n

2021\u5e742\u670828<\/em>\u65e5\u5c07\u662fEURORDIS\u5354\u8abf\u7684\u7b2c14\u500b\u570b\u969b\u7f55\u898b\u75c5\u65e5\u3002\u5728\u9019\u4e00\u5929\u53ca\u524d\u5f8c\uff0c\u4f86\u81ea\u4e16\u754c\u5404\u570b\u548c\u5730\u5340\u7684\u6578\u767e\u500b\u60a3\u8005\u7d44\u7e54\u5c07\u8209\u8fa6\u5ba3\u50b3\u6d3b\u52d5\u3002   <\/p>\n

\u5927\u7d043\u5104\u4eba\uff08\u7d04\u4f54\u4eba\u53e3\u76845%\uff09\u60a3\u6709\u7f55\u898b\u75c5\u3002\u5728\u9019 5% \u4e2d\uff0c\u5168\u7403\u53ea\u6709\u4e0d\u5230 1,000 \u4eba\u60a3\u6709 Erdheim-Chester \u75c5\u3002   <\/p>\n

\u52a0\u5165 ECD \u5168\u7403\u806f\u76df\uff0c\u901a\u904e\u5206\u4eab\u60a8\u7684 ECD\u7d93\u9a57\u4f86\u5206\u4eab\u5c0d\u7f55\u898b\u75c5\u7684\u8a8d\u8b58\u3002<\/strong>  <\/p>\n

\u5b98\u65b9\u7f55\u898b\u75c5\u65e5\u8996\u983b <\/a><\/p>\n

\u5728\u6211\u5011\u7684 Spread the Word<\/a> \u7db2\u9801\u6216 Rare Disease Day\u7db2\u7ad9\u4e0a<\/a>\u67e5\u627e\u66f4\u591a\u63d0\u9ad8\u8a8d\u8b58\u7684\u8cc7\u6e90\u548c\u65b9\u6cd5\u3002<\/p>\n

\u901a\u904e\u5728\u5a92\u9ad4\u4e0a\u8207\u6211\u5011\u5206\u4eab\u60a8\u7684\u4e00\u5929\uff0c\u901a\u904e\u5728Facebook\u4e0a\u6a19\u8a18 @ECDGA \u4e26\u5728\u4efb\u4f55\u5a92\u9ad4\u7db2\u7ad9\u4e0a\u4f7f\u7528 #ECDawareness\u3002\u5982\u679c\u60a8\u4e5f\u8207\u6211\u5011\u806f\u7e6b\u4ee5\u5728 ECDGA \u7684\u5a92\u9ad4\u9801\u9762\u4e0a\u4f7f\u7528\u60a8\u7684\u6545\u4e8b\u3001\u5831\u50f9\u3001\u7167\u7247\u548c\/\u6216\u5e16\u5b50\uff0c\u6211\u5011\u5c07\u4e0d\u52dd\u611f\u6fc0\u3002 <\/p>\n

\u95b1\u8b80\u6211\u5011\u70ba\u4eca\u5e74\u7f55\u898b\u75c5\u65e5\u767c\u4f48\u7684\u6700\u65b0\u60a3\u8005\u6545\u4e8b\uff1aECD\u7684\u7cbe\u795e\u4e4b\u65c5<\/a><\/strong><\/p>\n

\u5728\u60a8\u7684\u5a92\u9ad4\u9801\u9762\u4e0a\u6216\u901a\u904e\u96fb\u5b50\u90f5\u4ef6\u8207\u60a8\u7684\u806f\u7e6b\u4eba\u5206\u4eab\u6b64\u50b3\u55ae <\/strong>\uff01<\/strong><\/p>\n

\"\"<\/a><\/p>\n

 <\/p>\n

 <\/p>\n

 <\/p>\n

 <\/p>\n

 <\/p>\n

 <\/p>\n

 <\/p>\n

 <\/p>\n

\u7121\u8ad6\u60a8\u70ba\u9019\u500b\u7f55\u898b\u75c5\u65e5\u505a\u4ec0\u9ebc\uff0c\u60a8\u7684\u5ba3\u5c0e\u5c0f\u7d44\u90fd\u6703\u5728\u60a8\u7684\u65c5\u7a0b\u4e2d\u70ba\u60a8\u63d0\u4f9b\u652f\u63f4\uff01\u611f\u8b1d\u60a8\u81ea\u8c6a\u5730\u651c\u5e36\u60a8\u7684\u7a00\u6709\u7d72\u5e36\uff01 <\/strong><\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

\u4ec0\u9ebc\u662f\u7f55\u898b\u75c5\u65e5\uff1f 2021\u5e742\u670828\u65e5\u5c07\u662fEURORDIS\u5354 […]<\/p>\n","protected":false},"author":14,"featured_media":61509,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[422,891],"tags":[959,961,967,958,960,963,954,952,964,965,956,966,962],"class_list":["post-61505","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-ecdga-","category-891","tag-959","tag-961","tag-967","tag-958","tag-960","tag-963","tag-954","tag--zh-hant","tag-964","tag-965","tag-956","tag-966","tag-962"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/posts\/61505","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/comments?post=61505"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/posts\/61505\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/media\/61509"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/media?parent=61505"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/categories?post=61505"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/tags?post=61505"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}