{"id":59361,"date":"2025-03-21T10:23:31","date_gmt":"2025-03-21T14:23:31","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/2%e6%9c%8828%e6%97%a5%e6%98%af%e7%bd%95%e8%a6%8b%e7%97%85%e6%97%a5%ef%bc%9a%e6%82%a8%e6%89%93%e7%ae%97%e5%81%9a%e4%bb%80%e9%ba%bc%ef%bc%9f\/"},"modified":"2025-08-23T17:31:50","modified_gmt":"2025-08-23T21:31:50","slug":"2%e6%9c%8828%e6%97%a5%e6%98%af%e7%bd%95%e8%a6%8b%e7%97%85%e6%97%a5%ef%bc%9a%e6%82%a8%e6%89%93%e7%ae%97%e5%81%9a%e4%bb%80%e9%ba%bc%ef%bc%9f","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh-hant\/2%e6%9c%8828%e6%97%a5%e6%98%af%e7%bd%95%e8%a6%8b%e7%97%85%e6%97%a5%ef%bc%9a%e6%82%a8%e6%89%93%e7%ae%97%e5%81%9a%e4%bb%80%e9%ba%bc%ef%bc%9f\/","title":{"rendered":"2\u670828\u65e5\u662f\u7f55\u898b\u75c5\u65e5\uff1a\u60a8\u6253\u7b97\u505a\u4ec0\u9ebc\uff1f"},"content":{"rendered":"<p data-start=\"65\" data-end=\"360\">\u5728\u7814\u7a76 Erdheim-Chester \u75c5 \uff08ECD\uff09 \u548c\u6240\u6709\u7f55\u898b\u75c5\u7684\u6cbb\u7642\u65b9\u6cd5\u65b9\u9762\uff0c\u9084\u6709\u5f88\u591a\u9032\u5c55\u6709\u5f85\u53d6\u5f97\u3002\u4f5c\u70ba\u4e00\u7a2e\u5f71\u97ff\u591a\u500b\u5668\u5b98\u7684\u6975\u5176\u7f55\u898b\u7684\u8840\u764c\uff0cECD \u4ecd\u7136\u88ab\u5ee3\u6cdb\u4f4e\u4f30\uff0c\u8a31\u591a\u60a3\u8005\u9762\u81e8\u8a3a\u65b7\u5ef6\u8aa4\u548c\u6cbb\u7642\u9078\u64c7\u6709\u9650\u3002 <\/p>\n<p data-start=\"362\" data-end=\"661\">\u9019\u5c31\u662f\u70ba\u4ec0\u9ebc\u6211\u5011\u8207\u7f55\u898b\u75c5\u793e\u5340\u7ad9\u5728\u4e00\u8d77\uff0c\u57282\u670828\u65e5\u652f\u63f4 <strong data-start=\"428\" data-end=\"447\">#RareDiseaseDay<\/strong> \u3002\u610f\u8b58\u81f3\u95dc\u91cd\u8981\u2014\u2014\u5b83\u53ef\u4ee5\u5c0e\u81f4\u65e9\u671f\u8a3a\u65b7\u3001\u589e\u52a0\u7814\u7a76\u548c\u66f4\u597d\u7684\u6cbb\u7642\u3002\u6211\u5011\u53ef\u4ee5\u4e00\u8d77\u70ba\u5168\u7403 3 \u5104\u7f55\u898b\u75c5\u60a3\u8005\u5e36\u4f86\u6539\u8b8a\u3002  <\/p>\n<p data-start=\"663\" data-end=\"1138\">ECD \u53ea\u662f 7,000 \u591a\u7a2e\u7f55\u898b\u75be\u75c5\u4e2d\u7684\u4e00\u7a2e\uff0c\u8207\u8a31\u591a\u5176\u4ed6\u75be\u75c5\u4e00\u6a23\uff0c\u5b83\u6c92\u6709\u5df2\u77e5\u7684\u6cbb\u7652\u65b9\u6cd5\u3002\u4f46\u662f\uff0c\u7531\u65bc\u7814\u7a76\u610f\u8b58\u7684\u63d0\u9ad8\u548c\u9032\u6b65\uff0c\u6b63\u5728\u53d6\u5f97\u9032\u5c55\u3002Erdheim-Chester \u75c5\u5168\u7403\u806f\u76df \uff08ECDGA \u5e6b\u52a9\u8cc7\u52a9\u4e86\u591a\u9805\u7814\u7a76\u8a08\u5283\uff0c\u6211\u5011\u5c07\u7e7c\u7e8c\u63a8\u52d5\u65b0\u7684\u767c\u73fe\uff0c\u70ba\u60a3\u8005\u548c\u5bb6\u5ead\u5e36\u4f86\u5e0c\u671b\u3002\u60a8\u7684\u8072\u97f3\u3001\u60a8\u7684\u5ba3\u5c0e\u548c\u652f\u63f4\u5728\u722d\u53d6\u66f4\u597d\u7684\u6cbb\u7642\u65b9\u6cd5\u548c\u66f4\u5149\u660e\u7684\u672a\u4f86\u4e2d\u81f3\u95dc\u91cd\u8981\u3002   <\/p>\n<p>\u652f\u63f4 #RareDiseaseDay\uff0c2 \u6708 28 \u65e5\u3002<\/p>\n<p>\u77ad\u89e3\u60a8\u53ef\u4ee5\u505a\u4e9b\u4ec0\u9ebc\u4f86\u63d0\u4f9b\u8aac\u660e\uff1a <a href=\"http:\/\/bit.ly\/rdd2025\" target=\"_blank\" rel=\"noopener\" aria-label=\"http:\/\/bit.ly\/rdd2025 - opens in new tab\">http:\/\/bit.ly\/rdd2025<\/a><\/p>\n<p>\u5206\u4eab\u60a8\u7684\u984f\u8272\uff1a <a href=\"https:\/\/www.rarediseaseday.org\/#share-your-colours\" target=\"_blank\" rel=\"noopener\" aria-label=\"https:\/\/www.rarediseaseday.org\/#share-your-colours - opens in new tab\">https:\/\/www.rarediseaseday.org\/#share-your-colours<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u5728\u7814\u7a76 Erdheim-Chester \u75c5 \uff08ECD\uff09 \u548c\u6240 [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":46372,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[422],"tags":[],"class_list":["post-59361","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-ecdga-"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/posts\/59361","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/comments?post=59361"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/posts\/59361\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/media\/46372"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/media?parent=59361"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/categories?post=59361"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/tags?post=59361"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}