{"id":59321,"date":"2025-03-21T10:15:49","date_gmt":"2025-03-21T14:15:49","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-%e6%9c%83%e8%ad%b0-%e6%97%a9%e9%b3%a5%e8%a8%bb%e5%86%8a%e5%92%8c%e6%8f%90%e5%90%8d%e5%8d%b3%e5%b0%87%e7%b5%90%e6%9d%9f%ef%bc%81%e4%b8%8d%e8%a6%81%e7%ad%89%e5%be%85%e3%80%82\/"},"modified":"2025-08-23T17:21:07","modified_gmt":"2025-08-23T21:21:07","slug":"ecd-%e6%9c%83%e8%ad%b0-%e6%97%a9%e9%b3%a5%e8%a8%bb%e5%86%8a%e5%92%8c%e6%8f%90%e5%90%8d%e5%8d%b3%e5%b0%87%e7%b5%90%e6%9d%9f%ef%bc%81%e4%b8%8d%e8%a6%81%e7%ad%89%e5%be%85%e3%80%82","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh-hant\/ecd-%e6%9c%83%e8%ad%b0-%e6%97%a9%e9%b3%a5%e8%a8%bb%e5%86%8a%e5%92%8c%e6%8f%90%e5%90%8d%e5%8d%b3%e5%b0%87%e7%b5%90%e6%9d%9f%ef%bc%81%e4%b8%8d%e8%a6%81%e7%ad%89%e5%be%85%e3%80%82\/","title":{"rendered":"ECD \u6703\u8b70 \u2013 \u65e9\u9ce5\u8a3b\u518a\u548c\u63d0\u540d\u5373\u5c07\u7d50\u675f\uff01\u4e0d\u8981\u7b49\u5f85\u3002"},"content":{"rendered":"<p>\u8acb\u52a0\u5165\u6211\u5011\uff01ECD \u60a3\u8005\u548c\u5bb6\u5ead\u805a\u6703 \uff08PFG\uff09 \u5c07\u60a3\u8005\u548c\u5bb6\u5ead\u6210\u54e1\u5718\u7d50\u5728\u4e00\u8d77\uff0c\u540c\u6642\u589e\u52a0\u5c0d Erdheim-Chester \u75c5\u7684\u77e5\u8b58\u548c\u7406\u89e3\u3002 <\/p>\n<p>PFG \u70ba\u51fa\u5e2d\u8005\u63d0\u4f9b\u4e86\u4e00\u500b\u6703\u9762\u5834\u6240\uff0c\u4e26\u6709\u6a5f\u6703\u5c07\u554f\u984c\u548c\u7591\u616e\u76f4\u63a5\u63d0\u4ea4\u7d66\u5177\u6709\u8b77\u7406 ECD \u60a3\u8005\u7d93\u9a57\u4e26\u5728\u8a72\u9818\u57df\u9032\u884c\u7814\u7a76\u7684\u570b\u969b\u91ab\u7642\u5c08\u696d\u4eba\u54e1\u5718\u9ad4\u3002\u5171\u7528\u7684\u8cc7\u8a0a\u53ef\u4ee5\u8aac\u660e\u60a3\u8005\u5feb\u901f\u77ad\u89e3\u6709\u95dc ECD \u548c\u53ef\u80fd\u7684\u6cbb\u7642\u65b9\u6848\u7684\u66f4\u591a\u8cc7\u8a0a\uff0c\u4e26\u77ad\u89e3\u6700\u65b0\u7684\u7814\u7a76\u7d50\u679c\u3002 <\/p>\n<p>\u7acb\u5373\u8a3b\u518a\uff0c\u77ad\u89e3\u65e9\u9ce5\u50f9\uff1a <a href=\"https:\/\/secure.qgiv.com\/for\/bpfg\/event\/barcelonapatientfamilygathering\/\" target=\"_blank\" rel=\"noopener\" aria-label=\"https:\/\/secure.qgiv.com\/for\/bpfg\/event\/barcelonapatientfamilygathering\/ - opens in new tab\">https:\/\/secure.qgiv.com\/for\/bpfg\/event\/barcelonapatientfamilygathering\/<\/a><\/p>\n<p><strong>ECD \u60a3\u8005\u548c\u5bb6\u5ead\u805a\u6703<\/strong><br \/>\n<strong>\u6703\u8b70\u65e5\u671f\uff1a<\/strong> 2025 \u5e74 5 \u6708 26 \u65e5<br \/>\n<strong>\u6703\u8b70\u5730\u9ede\uff1a<\/strong> \u897f\u73ed\u7259 \u5df4\u585e\u7f85\u7d0d<\/p>\n<p>\u8acb\u7acb\u5373\u8a3b\u518a\uff0c\u4ee5\u5e6b\u52a9\u6211\u5011\u898f\u5283\u6700\u5927\u7a0b\u5ea6\u7684\u540c\u8072\u50b3\u8b6f\u652f\u63f4\u3002\u4ee5\u82f1\u8a9e\u63d0\u4f9b\u7684\u6f14\u793a\u6587\u7a3f\u5c07\u7531\u4eba\u5de5\u53e3\u8b6f\u54e1\u5373\u6642\u7ffb\u8b6f\uff0c\u4ee5\u5141\u8a31\u6703\u8aaa\u897f\u73ed\u7259\u6587\u3001\u6cd5\u8a9e\u3001\u5fb7\u8a9e\u548c\u7fa9\u5927\u5229\u8a9e\u7684\u4eba\u53c3\u8207\u3002\u5982\u679c\u5728 3 \u6708 1 \u65e5\u4e4b\u524d\u6c92\u6709\u4eba\u8a3b\u518a\u6703\u8aaa\u5176\u4e2d\u4e00\u7a2e\u8a9e\u8a00\u7684\u4eba\uff0c\u6211\u5011\u5c07\u7121\u6cd5\u63d0\u4f9b\u8a72\u8a9e\u8a00\u7684\u7ffb\u8b6f\u3002  <\/p>\n<p>\u901a\u904e\u5728 2 \u6708 28 \u65e5\u4e4b\u524d\u8a3b\u518a\uff0c\u60a8\u5c07\u5e6b\u52a9\u898f\u5283\u6700\u9700\u8981\u7684\u8a9e\u8a00\u7684\u53e3\u8b6f\u3002<\/p>\n<p><strong>\u77ad\u89e3\u66f4\u591a\uff1a<\/strong> <a href=\"https:\/\/www.erdheim-chester.org\/zh-hant\/ecd-%e6%82%a3%e8%80%85%e5%92%8c%e5%ae%b6%e5%ba%ad%e8%81%9a%e6%9c%83\/\" target=\"_blank\" rel=\"noopener\" aria-label=\"https:\/\/www.erdheim-chester.org\/ecd-patient-family-gathering\/ - opens in new tab\">https:\/\/www.erdheim-chester.org\/ecd-patient-family-gathering\/<\/a><\/p>\n<p><strong>\u975e\u82f1\u8a9e\u4eba\u58eb\u9808\u77e5\uff1a<\/strong><a href=\"https:\/\/www.erdheim-chester.org\/zh-hant\/2025-%e5%b9%b4-5-%e6%9c%88-26-%e6%97%a5%e5%9c%a8%e5%b7%b4%e5%a1%9e%e7%be%85%e9%82%a3%e8%88%89%e8%a1%8c%e7%9a%84-ecd-%e6%9c%83%e8%ad%b0%e8%a8%bb%e5%86%8a%e7%9a%84%e7%bf%bb%e8%ad%af%e8%aa%aa%e6%98%8e\/\" target=\"_blank\" rel=\"noopener\" aria-label=\"https:\/\/www.erdheim-chester.org\/translation-instructions-to-register-for-the-ecd-conference-in-barcelona-on-26-may-2025\/ - opens in new tab\">https:\/\/www.erdheim-chester.org\/translation-instructions-to-register-for-the-ecd-conference-in-barcelona-on-26-may-2025\/<\/a><\/p>\n<p><strong>\u63d0\u540d\u60a8\u7684 ECD \u51a0\u8ecd\uff1a<\/strong><a href=\"https:\/\/ecdga.questionpro.com\/2025-ECDGA-Award-Nomination\" target=\"_blank\" rel=\"noopener\" aria-label=\"https:\/\/ecdga.questionpro.com\/2025-ECDGA-Award-Nomination - opens in new tab\">ECDGA<\/a><\/p>\n<p>\u5982\u6709\u554f\u984c\uff0c\u8acb\u806f\u7e6b\u6211\u5011\uff1a <a href=\"mailto:support@erdheim-chester.org\" aria-label=\"support@erdheim chester.org\">support@erdheim-chester.org<\/a><\/p>\n","protected":false},"excerpt":{"rendered":"<p>\u8acb\u52a0\u5165\u6211\u5011\uff01ECD \u60a3\u8005\u548c\u5bb6\u5ead\u805a\u6703 \uff08PFG\uff09 \u5c07\u60a3\u8005\u548c\u5bb6\u5ead [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":46352,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[422],"tags":[],"class_list":["post-59321","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-ecdga-"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/posts\/59321","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/comments?post=59321"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/posts\/59321\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/media\/46352"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/media?parent=59321"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/categories?post=59321"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/tags?post=59321"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}