{"id":59158,"date":"2015-04-22T08:59:25","date_gmt":"2015-04-22T13:59:25","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/erdheim-chester-%e7%97%85%e8%aa%8d%e7%9f%a5%e7%9a%84%e8%87%a8%e5%ba%8a%e3%80%81%e7%b5%90%e6%a7%8b%e5%92%8c%e5%8a%9f%e8%83%bd%e7%a5%9e%e7%b6%93%e5%bd%b1%e5%83%8f%e5%ad%b8%e7%a0%94%e7%a9%b6\/"},"modified":"2025-09-11T09:44:40","modified_gmt":"2025-09-11T14:44:40","slug":"erdheim-chester-%e7%97%85%e8%aa%8d%e7%9f%a5%e7%9a%84%e8%87%a8%e5%ba%8a%e3%80%81%e7%b5%90%e6%a7%8b%e5%92%8c%e5%8a%9f%e8%83%bd%e7%a5%9e%e7%b6%93%e5%bd%b1%e5%83%8f%e5%ad%b8%e7%a0%94%e7%a9%b6","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh-hant\/erdheim-chester-%e7%97%85%e8%aa%8d%e7%9f%a5%e7%9a%84%e8%87%a8%e5%ba%8a%e3%80%81%e7%b5%90%e6%a7%8b%e5%92%8c%e5%8a%9f%e8%83%bd%e7%a5%9e%e7%b6%93%e5%bd%b1%e5%83%8f%e5%ad%b8%e7%a0%94%e7%a9%b6\/","title":{"rendered":"Erdheim-Chester \u75c5\u8a8d\u77e5\u7684\u81e8\u5e8a\u3001\u7d50\u69cb\u548c\u529f\u80fd\u795e\u7d93\u5f71\u50cf\u5b78\u7814\u7a76"},"content":{"rendered":"

[et_pb_section global_module=\"48012\"][\/et_pb_section]<\/h3>\n

\u6388\u4e88\u5e74\u4efd\uff1a<\/strong> 2015
\n\u91d1\u984d\uff1a<\/strong> 43,000 \u7f8e\u5143<\/h4>\n

\u91ab\u5b78\u535a\u58eb Eli L. Diamond \u548c\u91ab\u5b78\u535a\u58eb Vaios Hatzoglou \u7684\u5c08\u6848\u201cErdheim-Chester \u75c5\u8a8d\u77e5\u7684\u81e8\u5e8a\u3001\u7d50\u69cb\u548c\u529f\u80fd\u795e\u7d93\u5f71\u50cf\u5b78\u7814\u7a76\u201d\u7372\u5f97\u4e86 43,000 \u7f8e\u5143\u7684\u8d08\u6b3e\u3002\u672c\u7814\u7a76\u7684\u76ee\u7684\u662f\u77ad\u89e3ECD\u7684\u795e\u7d93\/\u8a8d\u77e5\u5f71\u97ff\u3002 <\/p>\n

\u6700\u7d42\u5831\u544a<\/h3>\n

\u672c\u7814\u7a76\u6aa2\u67e5\u4e86 ECD \u6c92\u6709\u795e\u7d93\u7cfb\u7d71\u53c3\u8207\u4e14\u65e2\u5f80\u6c92\u6709\u53ef\u80fd\u5c0d\u8a8d\u77e5\u6216\u8166\u6210\u50cf\u7570\u5e38\u9020\u6210\u7368\u7acb\u640d\u50b7\u7684\u65e2\u5f80\u6cbb\u7642\u6216\u75c5\u53f2\u7684 ECD \u60a3\u8005\u3002\u53c3\u8207\u8005\u63a5\u53d7\u4e86\u8a73\u7d30\u7684\u8a8d\u77e5\u6e2c\u8a66\u3001\u89c0\u5bdf\u767d\u8cea\u5b8c\u6574\u6027\u548c\u6574\u9ad4\u8166\u5bb9\u91cf\u7684\u7d50\u69cb MRI\uff0c\u4ee5\u53ca\u529f\u80fd\u6027 MRI \u4ee5\u8a55\u4f30\u5927\u8166\u7db2\u8def\u7684\u9023\u901a\u6027\u3002\u5c07\u6240\u6709\u60a3\u8005\u8207\u5e74\u9f61\u5339\u914d\u7684\u5065\u5eb7\u5c0d\u7167\u9032\u884c\u6bd4\u8f03\u3002 <\/p>\n

\u5c0d10\u4f8b\u60a3\u8005\u9032\u884c\u4e86\u8a55\u4f30\u3002\u770b\u5230\u4e86\u9a5a\u4eba\u7684\u6578\u64da\uff0c\u652f\u6301\u983b\u7e41\u7684\u975e\u6b63\u5f0f\u89c0\u5bdf\uff0c\u5373 ECD \u60a3\u8005\u5373\u4f7f\u6c92\u6709 ECD\u7684\u795e\u7d93\u7cfb\u7d71\u6d78\u6f64\uff0c\u4e5f\u6703\u5728\u601d\u8003\u548c\u8a18\u61b6\u65b9\u9762\u9047\u5230\u56f0\u96e3\u3002MRI \u7d50\u679c\u540c\u6a23\u5f15\u4eba\u6ce8\u76ee\uff0c\u5373\u8207\u5c0d\u7167\u7d44\u76f8\u6bd4\uff0c ECD \u60a3\u8005\u7684\u767d\u8cea\u5b8c\u6574\u6027\u986f\u8457\u964d\u4f4e\u3002\u5728\u89c0\u5bdf\u7e3d\u9ad4\u8166\u5bb9\u91cf\u6642\uff0c\u8207\u5c0d\u7167\u7d44\u76f8\u6bd4\uff0c\u60a3\u8005\u4e5f\u6709\u6240\u6e1b\u5c11\u3002\u529f\u80fd\u6027 MRI \u7d50\u679c\u66f4\u5f15\u4eba\u6ce8\u76ee\u3002\u8207\u5c0d\u7167\u7d44\u76f8\u6bd4\uff0c\u60a3\u8005\u7684\u8a18\u61b6\u548c\u6ce8\u610f\u529b\u529f\u80fd\u7db2\u8def\u5b58\u5728\u7570\u5e38\u3002\u9810\u8a08\u6703\u767c\u4f48\u7372\u53d6\u7684\u6578\u64da\u3002 <\/p>\n

2015\u5e74\u9812\u767c\u4e86\u4e09\u7b46\u8cc7\u52a9\uff0c\u4ee5\u4e86\u89e3\u6709\u95dc ECD\u7684\u66f4\u591a\u8cc7\u8a0a\u3002<\/p>\n

    \n
  1. Filip Janku \u91ab\u5b78\u535a\u58eb\u548c Abdel-Wahab \u91ab\u5b78\u535a\u58eb\u7372\u5f97\u4e86 50,000 \u7f8e\u5143\u7684\u8cc7\u52a9\uff0c\u7528\u65bc\u4ed6\u5011\u7684\u5c08\u6848\u201c\u77ad\u89e3\u548c\u9776\u5411\u7121 BRAFV600E \u7a81\u8b8a\u7684 Erdheim-Chester \u75c5\u4e2d\u7684\u65b0\u5206\u5b50\u6539\u8b8a\u201d\u3002\u672c\u7814\u7a76\u7684\u76ee\u7684\u662f\u767c\u73fe\u5728 BRAF \u9670\u6027 ECD \u60a3\u8005\u4e2d\u767c\u73fe\u7684\u53ef\u6cbb\u7642\u7a81\u8b8a\uff0c\u4e26\u5728\u5be6\u9a57\u5ba4\u4e2d\u6e2c\u8a66\u54ea\u4e9b\u6cbb\u7642\u65b9\u6cd5\u6700\u6709\u53ef\u80fd\u5c0d\u9019\u4e9b\u60a3\u8005\u6700\u6709\u6548\u3002 <\/li>\n
  2. \u91ab\u5b78\u535a\u58eb Eli Diamond \u548c\u91ab\u5b78\u535a\u58eb Vaios Hatzoglou \u7684\u9805\u76ee\u7372\u5f97\u4e86 43,000 \u7f8e\u5143\u7684\u8d08\u6b3e\uff0c\u201cErdheim-Chester \u75c5\u8a8d\u77e5\u7684\u81e8\u5e8a\u3001\u7d50\u69cb\u548c\u529f\u80fd\u795e\u7d93\u5f71\u50cf\u5b78\u7814\u7a76\u201d\u3002\u672c\u7814\u7a76\u7684\u76ee\u7684\u662f\u77ad\u89e3ECD\u7684\u795e\u7d93\/\u8a8d\u77e5\u5f71\u97ff\u3002 <\/li>\n
  3. \u91ab\u5b78\u535a\u58eb Marina Ferrarini \u548c\u91ab\u5b78\u535a\u58eb Lorenzo Dagna \u56e0\u5176\u5c08\u6848\u201cErdheim-Chester Disease\u201d\u800c\u7372\u5f97 50,000 \u7f8e\u5143\u3002Ferrarini \u548c Dagna \u7814\u7a76\u7684\u91cd\u9ede\u662f\u77ad\u89e3 ECD \u60a3\u8005\u7684\u60e1\u6027\u7d30\u80de\u5982\u4f55\u7a4d\u7d2f\u4e26\u8207\u9130\u8fd1\u7684\u6b63\u5e38\u7d30\u80de\u76f8\u4e92\u4f5c\u7528\u4ee5\u52a9\u9577\u75be\u75c5\uff0c\u5f9e\u800c\u5c0e\u81f4\u75c5\u8b8a\u548c\u816b\u7624\u7684\u5f62\u6210\u3002\u6709\u4e86\u9019\u7a2e\u7406\u89e3\uff0c\u5c31\u6709\u53ef\u80fd\u767c\u73fe\u4e00\u7a2e\u53ef\u4ee5\u4e2d\u65b7\u904e\u7a0b\u3001\u963b\u6b62\u75be\u75c5\u9032\u5c55\u7684\u6cbb\u7642\u7b56\u7565\u3002 <\/li>\n<\/ol>\n

    <\/h4>\n","protected":false},"excerpt":{"rendered":"

    Eli L. Diamond \u548c Vaios Hatzoglou \u535a\u58eb\u7372\u5f97\u4e86 43,000 \u7f8e\u5143\u7684\u8d08\u6b3e\uff0c\u7528\u65bc\u7814\u7a76 Erdheim-Chester \u75c5\u60a3\u8005\u7684\u8a8d\u77e5\u5f71\u97ff\u3002\u8a72\u7814\u7a76\u63ed\u793a\u4e86\u986f\u8457\u7684\u795e\u7d93\u7cfb\u7d71\u5f71\u97ff\uff0c\u5305\u62ec\u767d\u8cea\u5b8c\u6574\u6027\u964d\u4f4e\u548c\u5927\u8166\u7db2\u8def\u529f\u80fd\u7570\u5e38\uff0c\u5373\u4f7f\u5728\u6c92\u6709\u76f4\u63a5\u795e\u7d93\u7cfb\u7d71 ECD \u53c3\u8207\u7684\u60a3\u8005\u4e2d\u4e5f\u662f\u5982\u6b64\u3002 <\/p>\n","protected":false},"author":20,"featured_media":92382,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[604],"tags":[643],"class_list":["post-59158","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-604","tag-2015-zh-hant"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/posts\/59158","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/comments?post=59158"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/posts\/59158\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/media\/92382"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/media?parent=59158"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/categories?post=59158"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/zh-hant\/wp-json\/wp\/v2\/tags?post=59158"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}