{"id":59139,"date":"2025-03-21T16:10:29","date_gmt":"2025-03-21T20:10:29","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/%e5%bd%8c%e5%90%88%e6%82%a3%e8%80%85%e5%92%8c%e9%86%ab%e7%94%9f%e4%b9%8b%e9%96%93%e7%9a%84%e9%b4%bb%e6%ba%9d%ef%bc%9a%e5%9c%98%e7%b5%90%e4%b8%80%e8%87%b4%ef%bc%8c%e6%8e%a8%e5%8b%95ecd%e9%80%b2\/"},"modified":"2025-08-23T17:27:07","modified_gmt":"2025-08-23T21:27:07","slug":"%e5%bd%8c%e5%90%88%e6%82%a3%e8%80%85%e5%92%8c%e9%86%ab%e7%94%9f%e4%b9%8b%e9%96%93%e7%9a%84%e9%b4%bb%e6%ba%9d%ef%bc%9a%e5%9c%98%e7%b5%90%e4%b8%80%e8%87%b4%ef%bc%8c%e6%8e%a8%e5%8b%95ecd%e9%80%b2","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh-hant\/%e5%bd%8c%e5%90%88%e6%82%a3%e8%80%85%e5%92%8c%e9%86%ab%e7%94%9f%e4%b9%8b%e9%96%93%e7%9a%84%e9%b4%bb%e6%ba%9d%ef%bc%9a%e5%9c%98%e7%b5%90%e4%b8%80%e8%87%b4%ef%bc%8c%e6%8e%a8%e5%8b%95ecd%e9%80%b2\/","title":{"rendered":"\u5f4c\u5408\u60a3\u8005\u548c\u91ab\u751f\u4e4b\u9593\u7684\u9d3b\u6e9d\uff1a\u5718\u7d50\u4e00\u81f4\uff0c\u63a8\u52d5ECD\u9032\u6b65"},"content":{"rendered":"<p>\u5728<strong>\u5df4\u585e\u7f85\u90a3\u8209\u884c\u7684\u7b2c 10 \u5c46 ECD \u5e74\u6703<\/strong>\u4e0a\uff0c\u767c\u751f\u4e86\u771f\u6b63\u7368\u7279\u7684\u4e8b\u60c5 \u2014 <strong>\u60a3\u8005\u3001\u5bb6\u5c6c\u548c\u91ab\u5b78\u5c08\u5bb6\u9f4a<\/strong>\u805a\u4e00\u5802\uff0c\u80a9\u8ca0\u8457\u5171\u540c\u7684\u76ee\u6a19\uff1a\u63a8\u52d5\u5c0d <strong>Erdheim-Chester \u75c5 \uff08ECD\uff09<\/strong> \u7684\u7406\u89e3\u3001\u8b77\u7406\u548c\u6cbb\u7642\u53d6\u5f97\u9032\u5c55\u3002\u9019\u662f\u552f\u4e00\u4e00\u500b\u81f4\u529b\u65bc\u5728 ECD \u60a3\u8005\u548c\u81f4\u529b\u65bc\u6539\u5584\u7d50\u679c\u7684\u91ab\u7642\u4fdd\u5065\u5c08\u696d\u4eba\u54e1\u4e4b\u9593\u5efa\u7acb\u76f4\u63a5\u806f\u7e6b\u7684\u6d3b\u52d5\u3002 <\/p>\n<p>\u7576\u60a3\u8005\u548c\u91ab\u751f\u5408\u4f5c\u6642\uff0c\u751f\u6d3b\u6703\u767c\u751f\u8b8a\u5316\u3002\u672c\u6b21\u6703\u8b70\u671f\u9593\u7684\u516c\u958b\u5c0d\u8a71\u6709\u52a9\u65bc\u66f4\u6df1\u5165\u5730\u77ad\u89e3\u8207 ECD \u5171\u5b58\u7684\u611f\u89ba\uff0c\u540c\u6642\u8b93\u60a3\u8005\u80fd\u5920\u89aa\u8033\u807d\u5230\u4e16\u754c\u77e5\u540d\u5c08\u5bb6\u95dc\u65bc\u7814\u7a76\u3001\u8a3a\u65b7\u548c\u8b77\u7406\u7b56\u7565\u7684\u6700\u65b0\u9032\u5c55\u3002\u5c0d\u8a31\u591a\u4eba\u4f86\u8aaa\uff0c\u9019\u662f\u4e00\u7a2e\u8ce6\u6b0a\u9ad4\u9a57\u2014\u2014\u5f4c\u5408\u81e8\u5e8a\u79d1\u5b78\u548c\u500b\u4eba\u65c5\u7a0b\u4e4b\u9593\u7684\u5dee\u8ddd\u3002  <\/p>\n<p data-start=\"1072\" data-end=\"1428\">\u6703\u8b70\u5305\u62ec\u5169\u500b\u91cd\u8981\u6d3b\u52d5\uff1a<\/p>\n<ul>\n<li><strong>\u60a3\u8005\u548c\u5bb6\u5ead\u805a\u6703<\/strong>\uff0c\u53d7 ECD \u5f71\u97ff\u7684\u500b\u4eba\u548c\u5bb6\u5ead\u5728\u9019\u88e1\u7372\u5f97\u77e5\u8b58\u3001\u63d0\u51fa\u554f\u984c\u4e26\u5c0b\u6c42\u793e\u5340\u652f\u63f4\u3002<\/li>\n<li><strong>\u91ab\u5b78\u7814\u8a0e\u6703<\/strong>\uff0c\u4f86\u81ea\u4e16\u754c\u5404\u5730\u7684\u91ab\u7642\u4fdd\u5065\u63d0\u4f9b\u8005\u5728\u9019\u88e1\u5206\u4eab\u4ed6\u5011\u5728 ECD \u65b9\u9762\u7684\u5c08\u696d\u77e5\u8b58\u3001\u6848\u4f8b\u7814\u7a76\u548c\u6700\u65b0\u7684\u79d1\u5b78\u767c\u73fe\u3002<\/li>\n<\/ul>\n<p>\u901a\u904e\u9f4a\u5fc3\u5354\u529b\uff0c\u6211\u5011\u6b63\u5728\u5851\u9020 ECD \u8b77\u7406\u7684\u672a\u4f86 \u2014 \u5efa\u7acb\u95dc\u4fc2\u3001\u4ea4\u6d41\u77e5\u8b58\u548c\u6fc0\u767c\u5e0c\u671b\u3002<\/p>\n<p><strong>\u60a3\u8005\u548c\u5bb6\u5c6c\uff0c\u5728\u9019\u88e1\u8a3b\u518a\uff1a<\/strong><a href=\"https:\/\/secure.qgiv.com\/for\/bpfg\/event\/barcelonapatientfamilygathering\/\" target=\"_blank\" rel=\"noopener\" aria-label=\"Patient and Family Gathering - 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