{"id":103245,"date":"2025-09-30T09:13:07","date_gmt":"2025-09-30T14:13:07","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/%e8%81%af%e5%90%88%e7%bd%95%e8%a6%8b%e7%96%be%e7%97%85%e7%a0%94%e7%a9%b6%ef%bc%9aecdga-%e5%9c%a8%e7%ac%ac-41-%e5%b1%86%e7%b5%84%e7%b9%94%e7%b4%b0%e8%83%9e%e5%ad%b8%e6%9c%83%e5%b9%b4%e6%9c%83%e4%b8%8a\/"},"modified":"2025-12-02T12:15:46","modified_gmt":"2025-12-02T18:15:46","slug":"%e8%81%af%e5%90%88%e7%bd%95%e8%a6%8b%e7%96%be%e7%97%85%e7%a0%94%e7%a9%b6%ef%bc%9aecdga-%e5%9c%a8%e7%ac%ac-41-%e5%b1%86%e7%b5%84%e7%b9%94%e7%b4%b0%e8%83%9e%e5%ad%b8%e6%9c%83%e5%b9%b4%e6%9c%83%e4%b8%8a","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh-hant\/%e8%81%af%e5%90%88%e7%bd%95%e8%a6%8b%e7%96%be%e7%97%85%e7%a0%94%e7%a9%b6%ef%bc%9aecdga-%e5%9c%a8%e7%ac%ac-41-%e5%b1%86%e7%b5%84%e7%b9%94%e7%b4%b0%e8%83%9e%e5%ad%b8%e6%9c%83%e5%b9%b4%e6%9c%83%e4%b8%8a\/","title":{"rendered":"\u7f55\u898b\u75be\u75c5\u7814\u7a76\u5718\u7d50\uff1aECDGA\u65bc\u7b2c41\u5c46\u7d44\u7e54\u7d30\u80de\u5b78\u6703\u5e74\u6703"},"content":{"rendered":"<div id=\"attachment_103270\" style=\"width: 1810px\" class=\"wp-caption alignnone\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Schriner_Fitzgerald_Henson.jpg\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-103270\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Schriner_Fitzgerald_Henson.jpg\" alt=\"\u5408\u4f5c\u7814\u7a76\u5c55\u793a\uff01\u5f9e\u5de6\u81f3\u53f3\uff1aDiane Schriner\uff08ECDGA\uff09\u3001Elise Fitzerald\uff08UAB \u91ab\u5b78\u751f\u66a8 ECDGA \u5fd7\u5de5\uff09\u3001Jerome Henson\uff08ECDGA\uff09\u8a0e\u8ad6\u6d77\u5831\u300a\u586b\u88dc\u672a\u88ab\u6eff\u8db3\u7684\u9700\u6c42\uff1aECDGA \u767b\u8a18\u518a\u56de\u9867\u300b\u3002ECDGA \u806f\u7d61\u4eba\u767b\u8a18\u518a\u6709\u52a9\u65bc\u63a8\u52d5\u4ee5\u6578\u64da\u70ba\u57fa\u790e\u7684\u65e9\u671f\u5152\u7ae5\u767c\u5c55\u7814\u7a76\u8207\u7167\u8b77\u9032\u5c55\u3002\" width=\"1800\" height=\"1200\" class=\"size-full 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width=\"1800\" height=\"1200\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Henson_Gotz_Schriner_DiGirolamo.jpg 1800w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Henson_Gotz_Schriner_DiGirolamo-1280x853.jpg 1280w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Henson_Gotz_Schriner_DiGirolamo-980x653.jpg 980w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Henson_Gotz_Schriner_DiGirolamo-480x320.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 1800px, 100vw\" \/><\/a><p id=\"caption-attachment-103294\" class=\"wp-caption-text\"><b>\u5354\u4f5c\u5c0d\u8a71\u7684\u5be6\u8e10\uff01  <\/b>\u5f9e\u5de6\u81f3\u53f3\uff1aJerome Henson\uff08ECDGA\uff09\u3001Fernando Gotz\uff08\u4fc4\u52d2\u5ca1\u5354\u6703\uff09\u3001Diane Schriner\uff08ECDGA\uff09\u3001Claudio Di 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https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Henson_Eurelings_Schriner-1280x853.jpg 1280w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Henson_Eurelings_Schriner-980x653.jpg 980w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Henson_Eurelings_Schriner-480x320.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 1800px, 100vw\" \/><\/a><p id=\"caption-attachment-103306\" class=\"wp-caption-text\"><b>ECD\u7814\u7a76\u6b63\u5728\u5206\u4eab\uff01<\/b>  \u5f9e\u5de6\u81f3\u53f3\uff1aJerome Henson\uff08ECDGA\uff09\u3001Laura Eurelings \u91ab\u5e2b\uff08Erasmus MC University Medical Center\uff09\u3001Diane Schriner\uff08ECDGA\uff09\uff0c\u8a0e\u8ad6\u6d77\u5831\u300aAnti-IL-6 Therapy in Erdheim-Chester Disease\u300b\u3002\u9019\u985e\u5c0d\u8a71\u6709\u52a9\u65bc\u63a8\u52d5\u5c0dECD\u7684\u79d1\u5b78\u7406\u89e3\u3002<\/p><\/div>\n<p>&nbsp;<\/p>\n<div id=\"attachment_103318\" style=\"width: 1810px\" class=\"wp-caption alignnone\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Diane_booth.jpg\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-103318\" class=\"wp-image-103318 size-full\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Diane_booth.jpg\" alt=\"\" width=\"1800\" height=\"1200\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Diane_booth.jpg 1800w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Diane_booth-1280x853.jpg 1280w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Diane_booth-980x653.jpg 980w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Diane_booth-480x320.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 1800px, 100vw\" \/><\/a><p id=\"caption-attachment-103318\" class=\"wp-caption-text\"><b>\u63d0\u5347\u5c0dECDGA\u8a08\u756b\u7684\u8a8d\u8b58\uff01  <\/b>\u9edb\u5b89\u00b7\u65bd\u840a\u7d0d\u5728ECDGA\u8cc7\u8a0a\u684c\u5206\u4eabECDGA\u7684\u652f\u6301\u8a08\u756b\u7d30\u7bc0\u2014\u2014\u5305\u62ec\u6211\u5011\u65e5\u76ca\u58ef\u5927\u7684\u5168\u7403ECD\u8f49\u4ecb\u7167\u8b77\u4e2d\u5fc3\u7db2\u7d61\u3002<\/p><\/div>\n<p>&nbsp;<\/p>\n<div id=\"attachment_103330\" style=\"width: 1810px\" class=\"wp-caption alignnone\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Henson_Schriner_Pegararo.jpg\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-103330\" class=\"wp-image-103330 size-full\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Henson_Schriner_Pegararo.jpg\" alt=\"\" width=\"1800\" height=\"1200\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Henson_Schriner_Pegararo.jpg 1800w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Henson_Schriner_Pegararo-1280x853.jpg 1280w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Henson_Schriner_Pegararo-980x653.jpg 980w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Henson_Schriner_Pegararo-480x320.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 1800px, 100vw\" \/><\/a><p id=\"caption-attachment-103330\" class=\"wp-caption-text\"><b>\u570b\u969b\u5408\u4f5c\u884c\u52d5\uff01  <\/b>\u5de6\u81f3\u7b2c\u516b\u4f4d\uff1aJerome Henson\uff08ECDGA\uff09\u3001Diane 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1280w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Schriner_Go_Henson-980x653.jpg 980w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Schriner_Go_Henson-480x320.jpg 480w\" sizes=\"(min-width: 0px) and (max-width: 480px) 480px, (min-width: 481px) and (max-width: 980px) 980px, (min-width: 981px) and (max-width: 1280px) 1280px, (min-width: 1281px) 1800px, 100vw\" \/><\/a><p id=\"caption-attachment-103342\" class=\"wp-caption-text\"><b>\u4f86\u81eaECDGA\u91ab\u5b78\u8aee\u8a62\u59d4\u54e1\u6703\u7684\u898b\u89e3\uff01  <\/b>\u5f9e\u5de6\u81f3\u53f3\uff1aDiane Schriner\uff08ECDGA\uff09\u3001Dr. Ronald Go\uff08\u6885\u5967\u8a3a\u6240\uff0c\u7f85\u5fb9\u65af\u7279\uff09\u8207Jerome Henson\uff08ECDGA\uff09\u8a0e\u8ad6\u7167\u8b77\u7b56\u7565\u8207\u7814\u7a76\u512a\u5148\u4e8b\u9805\u3002Go \u91ab\u5e2b\u662f ECDGA 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