{"id":102317,"date":"2017-04-27T19:09:39","date_gmt":"2017-04-28T00:09:39","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/%e7%ac%ac%e4%ba%94%e5%b1%86%e5%b9%b4%e5%ba%a6%e5%9c%8b%e9%9a%9b-ecd-%e6%82%a3%e8%80%85%e8%88%87%e5%ae%b6%e5%ba%ad%e8%81%9a%e6%9c%83%ef%bc%8c%e7%b4%90%e7%b4%84%e5%b7%9e%e7%b4%90%e7%b4%84\/"},"modified":"2026-06-18T09:57:08","modified_gmt":"2026-06-18T14:57:08","slug":"%e7%ac%ac%e4%ba%94%e5%b1%86%e5%b9%b4%e5%ba%a6%e5%9c%8b%e9%9a%9b-ecd-%e6%82%a3%e8%80%85%e8%88%87%e5%ae%b6%e5%ba%ad%e8%81%9a%e6%9c%83%ef%bc%8c%e7%b4%90%e7%b4%84%e5%b7%9e%e7%b4%90%e7%b4%84","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh-hant\/%e7%ac%ac%e4%ba%94%e5%b1%86%e5%b9%b4%e5%ba%a6%e5%9c%8b%e9%9a%9b-ecd-%e6%82%a3%e8%80%85%e8%88%87%e5%ae%b6%e5%ba%ad%e8%81%9a%e6%9c%83%ef%bc%8c%e7%b4%90%e7%b4%84%e5%b7%9e%e7%b4%90%e7%b4%84\/","title":{"rendered":"\u7b2c 5 \u5c46\u5e74\u5ea6 ECD \u60a3\u8005\u8207\u5bb6\u5c6c\u805a\u6703\uff0c\u7d10\u7d04\u5dde\u7d10\u7d04\u5e02"},"content":{"rendered":"

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2017 \u5e74\u7d10\u7d04\u75c5\u53cb\u8207\u5bb6\u5c6c\u805a\u6703\u5718\u9ad4\u5408\u7167<\/p>\n<\/div>\n<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ disabled_on=”off|off|off” _builder_version=”4.27.5″ _module_preset=”default” custom_padding=”0px||||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”10px||||false|false” global_colors_info=”{}” width__hover_enabled=”off|desktop” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text disabled_on=”off|off|off” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

\u75c5\u53cb\u8207\u5bb6\u5c6c\u805a\u6703\u6458\u8981<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” hover_enabled=”0″ global_colors_info=”{}” theme_builder_area=”post_content” sticky_enabled=”0″]2017 \u5e74\u60a3\u8005\u8207\u5bb6\u5ead\u805a\u6703 (PFG) \u532f\u96c6\u4e86\u4f86\u81ea 6 \u500b\u570b\u5bb6\u7684 93 \u540d\u60a3\u8005\u53ca\u5176\u5bb6\u5c6c\u3002\u60a3\u8005\u8207\u5bb6\u5c6c\u793e\u7fa4\u8207 65 \u540d\u5c0d\u7167\u8b77\u60a3\u8005\u53ca\u6df1\u5165\u7814\u7a76 Erdheim-Chester Disease \u5145\u6eff\u71b1\u5ff1\u7684\u81e8\u5e8a\u91ab\u751f\u548c\u79d1\u5b78\u5bb6\u9f4a\u805a\u4e00\u5802\u3002\u5171\u6709 15 \u4f4d\u81e8\u5e8a\u91ab\u751f\u8207\u79d1\u5b78\u5bb6\u91dd\u5c0d ECD \u4ee5\u53ca ECD \u652f\u63f4\u9700\u6c42\u767c\u8868\u4e86\u6f14\u8aaa\u3002\u6240\u6709\u8207\u6703\u8005\u5171\u540c\u4eab\u7528\u4e86\u6176\u795d\u665a\u5bb4\uff0c\u8b93\u5927\u5bb6\u6709\u6642\u9593\u9032\u884c\u4ea4\u6d41\uff0c\u4e26\u8868\u5f70\u90a3\u4e9b\u6295\u5165\u6642\u9593\u8207\u8cc7\u6e90\u5354\u52a9 ECD \u793e\u7fa4\u7684\u9818\u8896\u3002\u8acb\u53c3\u95b1\u4e0b\u65b9\u8cc7\u8a0a\u4ee5\u4e86\u89e3\u66f4\u591a\u95dc\u65bc PFG \u6d3b\u52d5\u8207\u7c21\u5831\u7684\u5167\u5bb9\uff0c\u4ee5\u53ca\u6703\u8b70\u7167\u7247\u3002[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”10px||20px||false|false” locked=”off” global_colors_info=”{}” width__hover_enabled=”off|desktop” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

\u542b\u805a\u6703\u8b70\u7a0b\u7684\u8a08\u756b<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/Picture14-1.png” title_text=”\u5716\u72471\uff084\uff09” url=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/2017-PFG-Program-Draft-Review.pdf” url_new_window=”on” _builder_version=”4.27.6″ _module_preset=”default” hover_enabled=”0″ border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}” theme_builder_area=”post_content” sticky_enabled=”0″][\/et_pb_image][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

\u7c21\u5831<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]\u4ee5\u4e0b\u7c21\u5831\u5df2\u65b0\u589e\uff0c\u671f\u76fc\u80fd\u5354\u52a9\u6709\u8208\u8da3\u9032\u4e00\u6b65\u4e86\u89e3 ECD<\/a> \u7684\u60a3\u8005\u3001\u5bb6\u5c6c\u8207\u91ab\u5e2b\u3002ECDGA \u611f\u8b1d\u91ab\u7642\u754c\u70ba\u63d0\u5347 ECD \u60a3\u8005\u7167\u8b77\u6240\u4ed8\u51fa\u7684\u52aa\u529b\u8207\u8ca2\u737b\u3002[\/et_pb_text][et_pb_text module_class=”event-table” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Slides<\/th>\n<\/tr>\n<\/thead>\n
Craig Blinderman, MD, MA, FAAHPM<\/td>Pain management in Erdheim-Chester Disease<\/a><\/td>\n<\/tr>\n
Eli L. Diamond, MD<\/td>ECD and the Brain Slides coming soon<\/td>\n<\/tr>\n
Mary Elizabeth Davis, RN, MSN, AOCNS and Allison Hyde, RN, BSN<\/td>Demystifying the Clinical Trial<\/a>
\nSee also printable ECD Studies & Trials Guide<\/a><\/td>\n<\/tr>\n
Ronald Go, MD<\/td>ECD Treatment Options<\/a><\/td>\n<\/tr>\n
Mark Heaney, MD<\/td>An Overview of ECD<\/a><\/td>\n<\/tr>\n
Filip Janku, MD, PhD<\/td>ECD and Clinical Trials<\/a>
\nSee also printable ECD Studies & Trials Guide<\/a><\/td>\n<\/tr>\n
Meenal Kheterpal, MD<\/td>Skin Care Pearls ECD Management<\/a><\/td>\n<\/tr>\n
Andy J. Roth, MD<\/td>Psychological Effects on the Chronically Ill and Their Families<\/a><\/td>\n<\/tr>\n
Buster Brewer, Jessica Corkran, Kathy Brewer<\/td>ECDGA Close<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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\u7167\u7247<\/h2>\n

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\u63a5\u5f85\u7167\u7247<\/h3>\n

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