{"id":102295,"date":"2016-03-16T19:06:48","date_gmt":"2016-03-17T00:06:48","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/%e7%ac%ac%e5%9b%9b%e5%b1%86%e5%9c%8b%e9%9a%9b%e5%b9%bc%e5%85%92%e7%99%bc%e5%b1%95%e6%82%a3%e8%80%85%e8%88%87%e5%ae%b6%e5%b1%ac%e8%81%9a%e6%9c%83%ef%bc%8c%e6%b3%95%e5%9c%8b%e5%b7%b4%e9%bb%8e\/"},"modified":"2026-05-25T10:07:09","modified_gmt":"2026-05-25T15:07:09","slug":"%e7%ac%ac%e5%9b%9b%e5%b1%86%e5%9c%8b%e9%9a%9b%e5%b9%bc%e5%85%92%e7%99%bc%e5%b1%95%e6%82%a3%e8%80%85%e8%88%87%e5%ae%b6%e5%b1%ac%e8%81%9a%e6%9c%83%ef%bc%8c%e6%b3%95%e5%9c%8b%e5%b7%b4%e9%bb%8e","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh-hant\/%e7%ac%ac%e5%9b%9b%e5%b1%86%e5%9c%8b%e9%9a%9b%e5%b9%bc%e5%85%92%e7%99%bc%e5%b1%95%e6%82%a3%e8%80%85%e8%88%87%e5%ae%b6%e5%b1%ac%e8%81%9a%e6%9c%83%ef%bc%8c%e6%b3%95%e5%9c%8b%e5%b7%b4%e9%bb%8e\/","title":{"rendered":"\u7b2c\u56db\u5c46\u5e74\u5ea6 ECD \u60a3\u8005\u8207\u5bb6\u5c6c\u805a\u6703\uff0c\u6cd5\u570b\u5df4\u9ece"},"content":{"rendered":"

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2016 \u5e74\u5df4\u9ece\u570b\u969b ECD \u75c5\u53cb\u8207\u5bb6\u5c6c\u805a\u6703\u5718\u9ad4\u5408\u7167<\/p>\n<\/div>\n<\/div>\n

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\u75c5\u53cb\u8207\u5bb6\u5c6c\u805a\u6703\u6458\u8981<\/h2>\n

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\u7c21\u5831<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”]\u4ee5\u4e0b\u7c21\u5831\u5df2\u5217\u5165\u65bc\u6cd5\u570b\u5df4\u9ece\u8209\u884c\u7684 2016 \u5e74\u75c5\u53cb\u8207\u5bb6\u5c6c\u805a\u6703\u8b70\u7a0b\u3002\u8acb\u9020\u8a2a ECD Global Alliance YouTube \u983b\u9053<\/a>\u4ee5\u89c0\u770b\u6240\u6709\u5df2\u767c\u4f48\u7684 ECD \u76f8\u95dc\u5f71\u7247<\/a>\u3002[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text module_class=”event-table” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Presentation Slides<\/th>Presentation Video<\/th>\n<\/tr>\n<\/thead>\n
St\u00e9phane Barete, MD<\/td>ECD Skin Issues<\/a><\/td>ECD Skin Issues<\/a><\/td>\n<\/tr>\n
Giulio Cavalli, MD<\/td>ECD Lung & Heart Issues<\/a><\/td>ECD Lung & Heart Issues<\/a><\/td>\n<\/tr>\n
Carine Courtillot, MD<\/td>Endocrinological Consequences of ECD<\/a><\/td>Endocrinological Consequences of ECD<\/a><\/td>\n<\/tr>\n
Eli Diamond, MD
\n(Presented by Juvianee Estrada-Veras, MD)<\/td>		ECD Neurological Issues<\/a><\/td>ECD Neurological Issues<\/a><\/td>\n<\/tr>\n
Benjamin Durham, MD<\/td>ECD Studies at MSKCC<\/a><\/td>See ECD Studies & Trials Panel<\/td>\n<\/tr>\n
Philippe A. Grenier, MD<\/td>CT of Thoracoabdominal Involvement in Erdheim-Chester Disease<\/a><\/td>See ECD Scan and Radiology Panel.<\/td>\n<\/tr>\n
Filip Janku, MD, PhD<\/td>Importance of Clinical Trials<\/a><\/td>See ECD Studies & Trials Panel<\/td>\n<\/tr>\n
Kenneth L. McClain, MD, PhD<\/td>ECD Studies & Trials \u2013 Texas Children\u2019s Cancer Center<\/a><\/td>See ECD Studies & Trials Panel<\/td>\n<\/tr>\n
Augusto Vaglio, MD, PhD<\/td>Renal & Ureteral Involvement in ECD<\/a><\/td>Renal & Ureteral Involvement in ECD<\/a><\/td>\n<\/tr>\n
Panel participants:Achille Aouba, MD, PhD, Lorenzo Dagna, MD, Juvianee Estrada-Veras, MD,
\nJulien Haroche, MD, PhD, Filip Janku, MD, PhD,
\nKenneth McClain, MD PhD, Augusto Vaglio, MD, PhD<\/td>		ECD Studies & Trials Panel<\/td>ECD Studies & Trials Panel<\/a><\/td>\n<\/tr>\n
Panel participants:Marcus Chen, MD, Phillippe Cluzel, MD PhD,
\nPhillippe Grenier, MD, Phillippe Maksund, MD<\/td>		ECD Scan and Radiology Panel<\/td>ECD Scan and Radiology Panel<\/a><\/td>\n<\/tr>\n
Physician panelists answer patient questions regarding Erdheim-Chester Disease.<\/td>Doctor Question & Answer Panel<\/td>Doctor Question & Answer Panel<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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\u7167\u7247<\/h2>\n

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