{"id":102152,"date":"2015-04-01T18:15:18","date_gmt":"2015-04-01T23:15:18","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/%e7%ac%ac%e4%b8%89%e5%b1%86%e5%b9%b4%e5%ba%a6-ecd-%e9%86%ab%e5%ad%b8%e7%a0%94%e8%a8%8e%e6%9c%83%ef%bc%8c%e5%be%b7%e5%85%8b%e8%96%a9%e6%96%af%e5%b7%9e%e4%bc%91%e6%96%af%e9%a0%93\/"},"modified":"2026-06-12T09:27:40","modified_gmt":"2026-06-12T14:27:40","slug":"%e7%ac%ac%e4%b8%89%e5%b1%86%e5%b9%b4%e5%ba%a6-ecd-%e9%86%ab%e5%ad%b8%e7%a0%94%e8%a8%8e%e6%9c%83%ef%bc%8c%e5%be%b7%e5%85%8b%e8%96%a9%e6%96%af%e5%b7%9e%e4%bc%91%e6%96%af%e9%a0%93","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/zh-hant\/%e7%ac%ac%e4%b8%89%e5%b1%86%e5%b9%b4%e5%ba%a6-ecd-%e9%86%ab%e5%ad%b8%e7%a0%94%e8%a8%8e%e6%9c%83%ef%bc%8c%e5%be%b7%e5%85%8b%e8%96%a9%e6%96%af%e5%b7%9e%e4%bc%91%e6%96%af%e9%a0%93\/","title":{"rendered":"\u7b2c\u4e09\u5c46\u5e74\u5ea6 ECD \u91ab\u5b78\u7814\u8a0e\u6703\uff0c\u5fb7\u514b\u85a9\u65af\u5dde\u4f11\u65af\u9813"},"content":{"rendered":"

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\u7814\u8a0e\u6703\u6458\u8981<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]2015 \u5e74\uff0c\u4f86\u81ea 8 \u500b\u570b\u5bb6\u7684\u5927\u7d04 52 \u540d\u91ab\u7642\u5c08\u696d\u4eba\u54e1\u53c3\u52a0\u4e86\u5e74\u5ea6 ECD \u91ab\u5b78\u7814\u8a0e\u6703\u3002\u6703\u4e2d\u767c\u8868\u4e86 12 \u4efd\u53e3\u982d\u6458\u8981\u3002\u4f5c\u70ba\u53d7\u9080\u8b1b\u8005\uff0cOmar Abdel-Wahab \u91ab\u5b78\u535a\u58eb\u3001\u54f2\u5b78\u535a\u58eb\u767c\u8868\u4e86\u984c\u70ba\u300c\u591a\u6a23\u5316\u4e14\u53ef\u9776\u5411\u7684\u6fc0\u9176\u6539\u8b8a\u9a45\u52d5\u7d44\u7e54\u7d30\u80de\u816b\u7624\u300d\u7684\u6f14\u8b1b\uff0c\u800c Timothy Craig Allen \u91ab\u5b78\u535a\u58eb\u3001\u6cd5\u5b78\u535a\u58eb\u5247\u767c\u8868\u4e86\u300c\u7f55\u898b\u75be\u75c5\u9818\u57df\u4e2d\u7684\u793e\u7fa4\u5a92\u9ad4\u300d\u3002 \u665a\u9593\u62db\u5f85\u6703\u70ba\u9019\u7fa4\u77e5\u8b58\u6df5\u535a\u3001\u4e14\u7686\u6709\u5fd7\u65bc\u6df1\u5165\u4e86\u89e3 Erdheim-Chester \u75be\u75c5\u7684\u91ab\u5e2b\u8207\u79d1\u5b78\u5bb6\u63d0\u4f9b\u4e86\u4ea4\u6d41\u6642\u9593\uff0c\u4ee5\u652f\u6301\u76ee\u524d\u53ca\u672a\u4f86\u7684\u5408\u4f5c\u3002 [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#14b8a6″ global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

\u542b\u7814\u8a0e\u6703\u8b70\u7a0b\u7684\u8a08\u756b<\/h2>\n

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\u4ecb\u7d39<\/h2>\n

[\/et_pb_text][et_pb_text module_class=”event-table” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Presentation Slides<\/th>English Video<\/th>\n<\/tr>\n<\/thead>\n
Filip Janku, MD PhD<\/td>Opening\/Welcome\/Introduction<\/td>No Video available<\/td>\n<\/tr>\n
Omar Abdel-Wahab, MD, PhD<\/td>Diverse and Targetable Kinase Alterations Drive Histiocytic Neoplasms<\/td>No Video available<\/td>\n<\/tr>\n
Lorenzo Dagna, MD, Marina Ferrarini, MD<\/td>Tocilizumab for ECD<\/td>No Video available<\/td>\n<\/tr>\n
Julien Haroche, MD, PhD, Zahir Amoura, MD<\/td>BRAF inhibitors in ECD ad overlap histiocytoses, an update 2015<\/td>No Video available<\/td>\n<\/tr>\n
Irina Eberle-Ayres, Stephen Cutler, PhD, David Bell, MSc, PhD<\/td>Targeted Delivery of Hemoglobin-Cladribine Conjugate Inhibits Proliferation of Cells Originating from Human Histiocytic Lymphomas<\/td>No Video available<\/td>\n<\/tr>\n
Roei Mazor, MD<\/td>Analysis of the neuro-radiological phenotypes, objective CNS responses to treatment and the long-term neuroradiological evolution of the ECD<\/td>No Video available<\/td>\n<\/tr>\n
Thomas Colby, MD<\/td>Does the absence of classic histology exclude ECD?<\/td>No Video available<\/td>\n<\/tr>\n
Filip Janku, MD PhD<\/td>Low \u2013frequency KRAS mutations in patients with BRAF-mutated ECD<\/td>No Video available<\/td>\n<\/tr>\n
Adrianna Muniz, PhD, Mark Erlander, PhD<\/td>CLIA laboratory testing of urinary BRAF V600E DNA mutations: application in the management of patients with histiocytic disease<\/td>No Video available<\/td>\n<\/tr>\n
Susan Robertson, PhD<\/td>Accepting Illness When Loss of Function is Permanent: A Model of Functional Adaptation<\/td>No Video available<\/td>\n<\/tr>\n
Juvianee Estrada-Veras, MD, Pamela Gardner, DMD<\/td>Oral manifestation of ECD<\/td>No Video available<\/td>\n<\/tr>\n
Juvianee Estrada-Veras, MD, William Gahl, MD, PhD<\/td>Cardiac health in ECD<\/td>No Video available<\/td>\n<\/tr>\n
Eli Diamond, MD<\/td>Diffuse reduction of cerebral grey matter volumes in ECD<\/td>No Video available<\/td>\n<\/tr>\n
Eli Diamond, MD, Filip Janku, MD, PhD, Juvianee I. Estrada-Veras, MD, Augusto Vaglio, MD, PhD, Lorenzo Dagna, MD<\/td>Panel discussion: Clinical Trials in ECD<\/td>No Video available<\/td>\n<\/tr>\n
Timothy Craig Allen, MD, JD<\/td>Social Media in the Rare Disease World<\/td>No Video available<\/td>\n<\/tr>\n
Filip Janku, MD, PhD, Kathleen Brewer<\/td>Symposium Conclusion<\/td>No Video available<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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