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2016 \u5e74\u5df4\u9ece\u91ab\u5b78\u7814\u8a0e\u6703\u5718\u9ad4\u7167<\/p>\n<\/div>\n<\/div>\n

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\u7814\u8a0e\u6703\u6458\u8981<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”]Erdheim-Chester Disease Global Alliance \u5f88\u69ae\u5e78\u63d0\u4f9b\u4ee5\u4e0b\u6458\u8981\uff0c\u5167\u5bb9\u70ba\u672c\u5e74\u5ea6\u7b2c 4 \u5c46\u5e74\u5ea6\u570b\u969b ECD \u91ab\u5b78\u7814\u8a0e\u6703\u7684\u6f14\u8b1b\u91cd\u9ede\u3002\u672c\u6b21\u7814\u8a0e\u6703\u65bc 2016 \u5e74 9 \u6708 15 \u65e5\u5728\u6cd5\u570b\u5df4\u9ece\u7684 H\u00f4pital Piti\u00e9-Salp\u00eatri\u00e8re \u8209\u884c\u3002\u6b64\u6b21\u6703\u8b70\u8b93\u91ab\u7642\u5c08\u696d\u4eba\u54e1\u5f97\u4ee5\u5c31 ECD \u7814\u7a76\u9032\u884c\u5408\u4f5c\u3001\u5206\u4eab\u91ab\u5b78\u767c\u73fe\uff0c\u4e26\u8a0e\u8ad6\u75c5\u60a3\u7167\u8b77\u3002\u611f\u8b1d\u672c\u5e74\u5ea6\u5171\u540c\u4e3b\u8fa6\u4eba Julien Haroche \u6559\u6388\uff08\u91ab\u5b78\u535a\u58eb\u3001\u535a\u58eb\uff09\uff1b\u611f\u8b1d\u6240\u6709\u5728\u5ea7\u8ac7\u8a0e\u8ad6\u4e2d\u5206\u4eab\u8cc7\u6599\u8207\u5c08\u696d\u7684\u8b1b\u8005\uff1b\u611f\u8b1d\u6240\u6709\u6709\u8208\u8da3\u9032\u4e00\u6b65\u4e86\u89e3 ECD \u7684\u8207\u6703\u8005\uff1b\u4e5f\u611f\u8b1d\u6240\u6709\u53c3\u8207\u898f\u5283\u4e26\u4fc3\u6210\u672c\u6d3b\u52d5\u6210\u529f\u7684\u5925\u4f34\u3002\u7279\u5225\u611f\u8b1d\u70ba\u793e\u7fa4\u64b0\u5beb\u672c\u6458\u8981\u7684\u5fd7\u5de5\uff0c\u4ee5\u53ca\u6240\u6709\u56e0\u6545\u672a\u80fd\u51fa\u5e2d\u7684\u5c08\u696d\u4eba\u58eb\u3002[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.5″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#14b8a6″ global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

\u542b\u7814\u8a0e\u6703\u8b70\u7a0b\u7684\u8a08\u756b<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/03\/Picture1.png” title_text=”\u5716\u72471″ url=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2017\/01\/2016-Medical-Symposium-summary_final-web-version.pdf” url_new_window=”on” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

\u4ecb\u7d39<\/h2>\n

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2016 \u5e74\u6703\u8b70\u4e2d\u767c\u8868\u4e86\u4ee5\u4e0b\u7c21\u5831\u3002\u8acb\u9020\u8a2a ECD Global Alliance YouTube \u983b\u9053<\/a> \u89c0\u770b\u6240\u6709\u5df2\u767c\u4f48\u7684 ECD \u76f8\u95dc \u5f71\u7247<\/a>\u3002 <\/p>\n

[\/et_pb_text][et_pb_text module_class=”event-table” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Presentation Slides<\/th>Videos<\/th>\n<\/tr>\n<\/thead>\n
Corrado Campochiaro, MD<\/td>Management of ECD Symptoms and Side Effects of Treatments<\/a><\/td>Management of ECD Symptoms and Side Effects of Treatments<\/a><\/td>\n<\/tr>\n
Giulio Cavalli, MD<\/td>Adult Onset (Infratentorial) Leukoencephalopathy as Presenting Manifestation of Erdheim-Chester Disease<\/a><\/td>Adult Onset (Infratentorial) Leukoencephalopathy as Presenting Manifestation of Erdheim-Chester Disease<\/a><\/td>\n<\/tr>\n
Carine Courtillot, MD<\/td>Endocrine manifestations in Erdheim-Chester disease<\/a><\/td>Endocrine manifestations in Erdheim-Chester disease<\/a><\/td>\n<\/tr>\n
Benjamin Durham, MD<\/td>Insights into the Cell-of-Origin of the Histiocytoses Using Patient-Derived Xenograft Murine Models<\/a><\/td>Insights into the Cell-of-Origin of the Histiocytoses Using Patient-Derived Xenograft Murine Models<\/a><\/td>\n<\/tr>\n
Marina Ferrarini, MD<\/td>Tailoring Treatment for Erdheim-Chester Disease: Focus on ECD<\/a><\/td>Tailoring Treatment for Erdheim-Chester Disease: Focus on ECD<\/a><\/td>\n<\/tr>\n
Ronald Go, MD<\/td>Efficacy of Cladribine (2-CdA) in the Treatment of Erdheim-Chester Disease (ECD)<\/a><\/td>Efficacy of Cladribine (2-CdA) in the Treatment of Erdheim-Chester Disease (ECD)<\/a><\/td>\n<\/tr>\n
Filip Janku, MD, PhD<\/td>Encouraging activity of MEK inhibitor trametinib in patients with Erdheim-Chester disease irrespective of BRAF mutation statusClinical Molecular Profiling to Detect Targetable Alterations in Archival Tumor Tissue and Cell-free DNA from Patients with Erdheim-Chester Disease<\/a><\/td>Encouraging activity of MEK inhibitor trametinib in patients with Erdheim-Chester disease irrespective of BRAF mutation statusClinical Molecular Profiling to Detect Targetable Alterations in Archival Tumor Tissue and Cell-free DNA from Patients with Erdheim-Chester Disease<\/a><\/td>\n<\/tr>\n
Javier Martin, MD, PhD<\/td>Future Genetic Studies in Erdheim-Chester disease \u2013 GWAS Study<\/a><\/td>Future Genetic Studies in Erdheim-Chester disease \u2013 GWAS Study<\/a><\/td>\n<\/tr>\n
Kenneth McClain, MD, PhD<\/td>Elevated CSF Osteopontin and Circulating Cells with BRAF Mutations in Patients with Langerhans Cell Histiocytosis-Associated Neurodegeneration -A Model for ECD?<\/a><\/td>Elevated CSF Osteopontin and Circulating Cells with BRAF Mutations in Patients with Langerhans Cell Histiocytosis-Associated Neurodegeneration -A Model for ECD?<\/a><\/td>\n<\/tr>\n
Augusto Vaglio, MD, PhD<\/td>MRI evidence of cardiac involvement in Erdheim-Chester disease<\/a><\/td>MRI evidence of cardiac involvement in Erdheim-Chester disease<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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