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\u7f55\u898b\u75c5\u793e\u5340\u7684\u7167\u8b77\u8005\u9762\u81e8\u4e00\u4e9b\u7279\u6b8a\u7684\u969c\u7919\u3002\u60a8\u751a\u81f3\u53ef\u80fd\u9762\u81e8\u7279\u6b8a\u7684\u6311\u6230\uff0c\u5373\u5fc5\u9808\u6210\u70ba\u5c0d\u60a8\u7684\u91ab\u7642\u670d\u52d9\u63d0\u4f9b\u8005\u548c\u5176\u4ed6\u4eba\u9032\u884c Erdheim-Chester \u75c5\u6559\u80b2\u7684\u4eba\u3002\u56e0\u6b64\uff0c\u60a8\u9700\u8981\u8cc7\u8a0a\u3001\u6559\u80b2\u548c\u5de5\u5177\u4f86\u8aac\u660e\u60a8\u7ba1\u7406\u5728\u7167\u9867\u89aa\u4eba\u6642\u9762\u81e8\u7684\u8a31\u591a\u8271\u5de8\u4efb\u52d9\u3002\u4ee5\u4e0b\u4f86\u6e90\u6703\u5c07\u60a8\u5f15\u5c0e\u81f3\u63d0\u4f9b\u8aac\u660e\u548c\/\u6216\u53ef\u80fd\u6709\u8aac\u660e\u7684\u4fe1\u606f\u7684\u7d44\u7e54\u3002 <\/p>\n

\u8981\u8207\u7167\u9867 ECD \u89aa\u4eba\u7684\u5176\u4ed6\u4eba\u806f\u7e6b\uff0c\u8acb\u52a0\u5165\u6211\u5011\u70ba\u8b77\u7406\u4eba\u54e1\u63d0\u4f9b\u7684\u865b\u64ec\u804a\u5929\u3002 \u5728\u6b64\u8655<\/a>\u8a3b\u518a\u4e0b\u6b21\u6703\u8b70\u3002 <\/p>\n

[\/et_pb_text][et_pb_toggle title=”\u770b\u8b77\u8005\u66ab\u606f\u8a08\u5283” open_toggle_text_color=”#FFFFFF” open_toggle_background_color=”#f2f2f2″ closed_toggle_background_color=”#35A4BB” icon_color=”#FFFFFF” toggle_icon=”"||divi||400″ open_icon_color=”#C02E43″ open_toggle_icon=”!||divi||400″ module_class=”custom-toggle” _builder_version=”4.27.4″ _module_preset=”default” title_text_color=”#FFFFFF” title_font=”|600|||||||” border_radii=”on|4px|4px|4px|4px” border_width_all=”0px” global_colors_info=”{}”]<\/p>\n

\u8afe\u5fb7<\/strong><\/a> \u63d0\u4f9b\u7d93\u6fdf\u63f4\u52a9\uff0c\u4f7f\u8b77\u7406\u4eba\u54e1\u80fd\u5920\u4f11\u606f\u4e00\u4e0b\u53c3\u52a0\u6703\u8b70\u3001\u6d3b\u52d5\uff0c\u6216\u8005\u53ea\u662f\u5728\u4e0b\u5348\u6216\u665a\u4e0a\u96e2\u958b\u8b77\u7406\u3002\u734e\u9805\u4ee5\u5148\u5230\u5148\u5f97\u7684\u65b9\u5f0f\u6388\u4e88\u7b26\u5408\u689d\u4ef6\u7684\u500b\u4eba\u3002 <\/p>\n

\u77ad\u89e3\u66f4\u591a\u8cc7\u8a0a<\/a><\/p>\n

[\/et_pb_toggle][et_pb_toggle title=”\u5ba3\u5c0e\u548c\u652f\u63f4” open_toggle_text_color=”#FFFFFF” open_toggle_background_color=”#f2f2f2″ closed_toggle_background_color=”#35A4BB” icon_color=”#FFFFFF” toggle_icon=”"||divi||400″ open_icon_color=”#C02E43″ open_toggle_icon=”!||divi||400″ module_class=”custom-toggle” _builder_version=”4.27.4″ _module_preset=”default” title_text_color=”#FFFFFF” title_font=”|600|||||||” hover_enabled=”0″ border_radii=”on|4px|4px|4px|4px” border_width_all=”0px” global_colors_info=”{}” sticky_enabled=”0″]\u7167\u9867\u8005\u884c\u52d5\u7db2\u8def \uff08CAN\uff09<\/a><\/strong> \u662f\u4e00\u500b\u5bb6\u5ead\u7167\u9867\u8005\u7d44\u7e54\uff0c\u81f4\u529b\u65bc\u6539\u5584\u8d85\u904e6500\u842c\u7167\u9867\u60a3\u6709\u6162\u6027\u75c5\u3001\u6b98\u75be\u3001\u75be\u75c5\u6216\u5e74\u8001\u9ad4\u5f31\u7684\u89aa\u4eba\u7684\u751f\u6d3b\u54c1\u8cea\u3002CAN \u662f\u4e00\u500b\u975e\u71df\u5229\u7d44\u7e54\uff0c\u70ba\u5bb6\u5ead\u8b77\u7406\u4eba\u54e1\u63d0\u4f9b\u6559\u80b2\u3001\u540c\u4f34\u652f\u63f4\u548c\u8cc7\u6e90\uff0c\u4f75\u70ba\u5ee3\u6cdb\u7684\u5bb6\u5ead\u8b77\u7406\u4eba\u54e1\u548c\u8b77\u7406\u60c5\u6cc1\u63d0\u4f9b\u670d\u52d9\u3002 <\/p>\n

\u5bb6\u5ead\u7167\u9867\u8005\u806f\u76df<\/a><\/strong> \u8a72\u7d44\u7e54\u70ba\u8b77\u7406\u4eba\u54e1\u63d0\u4f9b\u516c\u773e\u8072\u97f3\uff0c\u901a\u904e\u6559\u80b2\u3001\u670d\u52d9\u3001\u7814\u7a76\u548c\u5ba3\u50b3\u63d0\u4f9b\u8aac\u660e\u3002<\/p>\n

\u8ce6\u4e88\u8b77\u7406\u4eba\u54e1\u6b0a\u529b<\/a><\/strong> \u8a72\u7db2\u7ad9\u70ba\u6240\u6709\u8b77\u7406\u4eba\u54e1\u63d0\u4f9b\u4e86\u4e00\u500b\u5b89\u5168\u3001\u6709\u6559\u990a\u7684\u7db2\u7ad9\uff0c\u63d0\u4f9b\u60c5\u611f\u548c\u7cbe\u795e\u652f\u63f4\uff0c\u4f75\u70ba\u8b77\u7406\u4eba\u54e1\u63d0\u4f9b\u5927\u91cf\u7684\u5728\u7dda\u548c\u96e2\u7dda\u8cc7\u6e90\u3002<\/p>\n

\u96b1\u5f62\u6b98\u75be\u5354\u6703 \uff08IDA\uff09<\/a><\/strong> \u9f13\u52f5\u3001\u6559\u80b2\u548c\u806f\u7e6b\u5168\u7403\u53d7\u75be\u75c5\u3001\u75db\u82e6\u548c\u6b98\u75be\u5f71\u97ff\u7684\u500b\u4eba\u548c\u7d44\u7e54\u3002IDA \u9084\u63d0\u4f9b\u6709\u95dc\u5404\u7a2e\u75be\u75c5\u7684\u4fe1\u606f\u3001\u8aac\u660e\u652f\u4ed8\u85e5\u7269\u8cbb\u7528\u3001\u6b98\u75be\u798f\u5229\u7b49\u7684\u8cc7\u6e90\u3002 <\/p>\n

HealingWell.com<\/a><\/strong> \u64c1\u6709\u84ec\u52c3\u767c\u5c55\u7684\u652f\u63f4\u793e\u5340\u3001\u535a\u5ba2\u3001\u8996\u983b\u3001\u6642\u4e8b\u901a\u8a0a\u3001\u6587\u7ae0\u548c\u8cc7\u6e90\uff0c\u4ee5\u8aac\u660e\u60a3\u8005\u7a4d\u6975\u61c9\u5c0d\u6162\u6027\u75c5\u5e36\u4f86\u7684\u6311\u6230\u3002<\/p>\n

\u71df\u990a\u8207\u98f2\u98df\u5b78\u6703<\/a><\/strong>\uff08\u524d\u8eab\u70ba\u7f8e\u570b\u98f2\u98df\u5354\u6703\uff09\u63d0\u4f9b\u6709\u95dc\u71df\u990a\u3001\u5065\u5eb7\u548c\u76f8\u95dc\u9818\u57df\u7684\u6e96\u78ba\u8cc7\u8a0a\u548c\u5404\u7a2e\u8cc7\u6e90\u3002<\/p>\n

\u7f8e\u570b\u71df\u990a\u5354\u6703<\/a><\/strong> \u7f8e\u570b\u71df\u990a\u5354\u6703\u901a\u904e\u71df\u990a\u548c\u5065\u5eb7\u6559\u80b2\u4fc3\u9032\u6700\u4f73\u5065\u5eb7\u3002\u5b83\u5c0d\u5916\u884c\u548c\u5c08\u696d\u4eba\u58eb\u9032\u884c\u71df\u990a\u548c\u4fdd\u5065\u5065\u5eb7\u76ca\u8655\u7684\u6559\u80b2\uff0c\u5c08\u6ce8\u65bc\u57fa\u65bc\u79d1\u5b78\u7684\u71df\u990a\u3002 <\/p>\n

LLS\u4e00\u5c0d\u4e00\u71df\u990a\u8aee\u8a62 <\/a>\u60a3\u8005\u53ca\u5176\u8b77\u7406\u5925\u4f34\u53ef\u4ee5\u8207 LLS \u7684\u4e00\u4f4d\u5177\u6709\u816b\u7624\u71df\u990a\u5c08\u696d\u77e5\u8b58\u7684\u8a3b\u518a\u71df\u990a\u5e2b\u9032\u884c\u514d\u8cbb\u7684\u4e00\u5c0d\u4e00\u96fb\u8a71\u8aee\u8a62\u3002\u5403\u5f97\u597d\u53ef\u4ee5\u5e6b\u52a9\u764c\u75c7\u60a3\u8005\u611f\u89ba\u66f4\u597d\uff0c\u4fdd\u6301\u66f4\u5f37\u58ef\uff0c\u4e26\u66f4\u597d\u5730\u8010\u53d7\u6cbb\u7642\u7684\u526f\u4f5c\u7528\u3002\u826f\u597d\u7684\u71df\u990a\u9084\u6709\u52a9\u65bc\u8eab\u9ad4\u66ff\u4ee3\u56e0\u764c\u75c7\u6cbb\u7642\u800c\u53d7\u640d\u7684\u8840\u7d30\u80de\u548c\u5065\u5eb7\u7d44\u7e54\u3002\u60a8\u53ef\u4ee5\u5728\u7dda\u5b89\u6392\u6216\u81f4\u96fb LLS \u71df\u990a\u6559\u80b2\u670d\u52d9\u4e2d\u5fc3 877-467-1936<\/a>\u3002\u5728\u6b64\u8655\u5b89\u6392\u9810\u7d04\u4e26\u4e86\u89e3\u66f4\u591a\u4fe1\u606f\uff1a www.LLSnutrition.org\/schedule<\/a>\u3002 <\/p>\n

\u7f8e\u570b \u570b\u7acb\u885b\u751f\u7814\u7a76\u9662 \uff08NIH\uff09<\/a> \u6709\u4e00\u500b\u8b77\u7406\u5de5\u5177\u5305\uff0c\u63d0\u4f9b\u4fe1\u606f\u548c\u8cc7\u6e90\u4f86\u652f\u6301\u8b77\u7406\u4eba\u54e1\u3002<\/p>\n

Global Genes<\/a> \u662f\u4e00\u500b\u7531\u975e\u71df\u5229\u7d44\u7e54\u548c\u652f\u6301\u5718\u9ad4\u7d44\u6210\u7684\u5168\u7403\u793e\u5340\uff0c\u81f4\u529b\u65bc\u6539\u8b8a\u4e16\u754c\u61c9\u5c0d\u7f55\u898b\u75be\u75c5\u7684\u65b9\u5f0f\uff0c\u70ba\u8b77\u7406\u4eba\u54e1\u63d0\u4f9b\u4e86\u4e00\u500b\u5de5\u5177\u5305\u3002<\/p>\n

\u4e00\u9805\u91dd\u5c0d ECD \u8b77\u7406\u4eba\u54e1\u7684\u540c\u884c\u8a55\u5be9\u79d1\u5b78\u7814\u7a76\u5df2\u7d93\u767c\u8868\uff0c \u53ef\u4ee5\u5728\u9019\u88e1\u627e\u5230<\/a>\u3002\u672c\u7814\u7a76\u65e8\u5728\u63cf\u8ff0\u57c3\u723e\u5fb7\u6d77\u59c6-\u5207\u65af\u7279\u75c5 \uff08ECD\uff09 \u548c\u5176\u4ed6\u7d44\u7e54\u7d30\u80de\u816b\u7624 \uff08HN\uff09 \u60a3\u8005\u8b77\u7406\u4eba\u54e1\u672a\u6eff\u8db3\u7684\u9700\u6c42\u548c\u7d93\u9a57\uff0c\u4e26\u78ba\u5b9a\u8207\u5728\u70ba\u7f55\u898b\u764c\u75c7\u60a3\u8005\u63d0\u4f9b\u8b77\u7406\u65b9\u9762\u767c\u73fe\u76ca\u8655\u548c\u610f\u7fa9\u76f8\u95dc\u7684\u56e0\u7d20\u3002[\/et_pb_toggle][et_pb_toggle title=”\u770b\u8b77\u4eba\u6587\u7ae0” open_toggle_text_color=”#FFFFFF” open_toggle_background_color=”#f2f2f2″ closed_toggle_background_color=”#35A4BB” icon_color=”#FFFFFF” toggle_icon=”"||divi||400″ open_icon_color=”#C02E43″ open_toggle_icon=”!||divi||400″ module_class=”custom-toggle” _builder_version=”4.27.4″ _module_preset=”default” title_text_color=”#FFFFFF” title_font=”|600|||||||” border_radii=”on|4px|4px|4px|4px” border_width_all=”0px” global_colors_info=”{}”]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Information<\/th>Website<\/th>\n<\/tr>\n<\/thead>\n
Create a custom caregiver guide specific to your current needs as a caregiver.<\/td>https:\/\/www.helpforcancercaregivers.org\/<\/a><\/td>\n<\/tr>\n
Offers consulting services and educational content with a message to empower caregivers to prepare to care.<\/td>http:\/\/www.caregivingclub.com\/<\/a><\/td>\n<\/tr>\n
A visual Education Center for Family Caregivers<\/td>http:\/\/www.videocaregiving.org\/caregiving.php<\/a><\/td>\n<\/tr>\n
Tool box of resources for caregivers<\/td>http:\/\/caregiveraction.org\/resources\/toolbox\/<\/a><\/td>\n<\/tr>\n
Caregiver\u2019s Guide to Understanding Dementia Behaviors<\/td>https:\/\/www.caregiver.org\/caregivers-guide-understanding-dementia-behaviors<\/a><\/td>\n<\/tr>\n
Checklists and information to help the caregiver<\/td>http:\/\/www.agis.com\/caregiverkit\/caregiverkit.pdf<\/a><\/td>\n<\/tr>\n
Six Things Seniors Can Do To Improve Memory<\/td>https:\/\/www.psychologytoday.com\/blog\/memory-medic\/201011\/six-things-seniors-can-do-improve-memory<\/a><\/td>\n<\/tr>\n
Preparing Your Home for a Loved One with Alzheimer\u2019s: A Caregiver\u2019s Guide<\/td>https:\/\/www.redfin.com\/blog\/2016\/09\/preparing-your-home-for-a-loved-one-with-alzheimers-a-caregivers-guide.html<\/a><\/td>\n<\/tr>\n
Caregivers Coping with Chronic Illness from the National Dysautonomia Research Foundation<\/td>http:\/\/www.ndrf.org\/Caregiving.htm<\/a><\/td>\n<\/tr>\n
Website that provides a tool for family, friends, neighbors, and colleagues to organize activities during times of need.<\/td>http:\/\/www.lotsahelpinghands.com\/<\/a><\/td>\n<\/tr>\n
General information regarding caregivers or carers.<\/td>http:\/\/en.wikipedia.org\/wiki\/Caregiver<\/a><\/td>\n<\/tr>\n
Caregiving: A Universal Occupation - Caring for Adults with Cognitive and Memory Impairments<\/td>http:\/\/www.caregiver.org\/caregiver\/jsp\/content_node.jsp?nodeid=392<\/a><\/td>\n<\/tr>\n
Personal growth and self-help website<\/td>http:\/\/www.healyourlife.com\/wisdom<\/a><\/td>\n<\/tr>\n
A national consumer and community engagement initiative to improve care at the end of life.<\/td>http:\/\/www.caringinfo.org<\/a><\/td>\n<\/tr>\n
10 Easy Ways Seniors Can Boost Their Mental Health and Well-Being<\/td>http:\/\/www.everydayhealth.com\/news\/easy-ways-seniors-can-boost-mental-health-well-being\/<\/a><\/td>\n<\/tr>\n
Eating for Your Brain as a Senior<\/td>http:\/\/health.usnews.com\/health-news\/health-wellness\/articles\/2016-01-05\/eating-for-your-brain-as-a-senior<\/a><\/td>\n<\/tr>\n
Mourning A Parent or Spouse's Death<\/td>https:\/\/www.agingcare.com\/articles\/mourning-spouse-s-death-133316.htm<\/a><\/td>\n<\/tr>\n
Promoting Mental Health at Home: How to Design the Perfect Meditation Room<\/td>http:\/\/www.homeadvisor.com\/r\/meditation-room\/#.WXJN3ojyuM8<\/a><\/td>\n<\/tr>\n
MedicAlert Caregiver Resources<\/td>https:\/\/www.medicalert.org\/caregiver-resources\/<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

[\/et_pb_toggle][et_pb_toggle title=”\u7167\u9867\u8005\u793e\u5340\u8cc7\u6e90” open_toggle_text_color=”#FFFFFF” open_toggle_background_color=”#f2f2f2″ closed_toggle_background_color=”#35A4BB” icon_color=”#FFFFFF” toggle_icon=”"||divi||400″ open_icon_color=”#C02E43″ open_toggle_icon=”!||divi||400″ module_class=”custom-toggle” _builder_version=”4.27.4″ _module_preset=”default” title_text_color=”#FFFFFF” title_font=”|600|||||||” border_radii=”on|4px|4px|4px|4px” border_width_all=”0px” global_colors_info=”{}”]<\/p>\n\n\n\n\n\t\n\n\t\n\t
Description of Blog\/Podcast<\/th>\tWebsite<\/th>\n<\/tr>\n<\/thead>\n
Caregiver to a chronically ill husband writes about her experiences<\/td>http:\/\/spousalcare.blogspot.com<\/a><\/td>\n<\/tr>\n
Podcast by previous caregiver of ECD\/LCH patient<\/td>https:\/\/www.forthosewhocare.org\/<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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In Sickness and In Health<\/td>https:\/\/a.co\/d\/e2bQnHu<\/a><\/td>\n<\/tr>\n
In Sickness as in Health: Helping Couples Cope with the Complexities of Illness<\/td>https:\/\/a.co\/d\/64d8iLl<\/a><\/td>\n<\/tr>\n
The Caregiving Wife's Handbook: Caring for Your Seriously Ill Husband, Caring for Yourself<\/td>https:\/\/a.co\/d\/6Dy7z4n<\/a><\/td>\n<\/tr>\n
When Your Spouse Has a Chronic Illness<\/td>https:\/\/a.co\/d\/6rN8EDR<\/a><\/td>\n<\/tr>\n
Finding a New Normal: Living Your Best Life with Chronic Illness<\/td>https:\/\/a.co\/d\/3GBo7hq<\/a><\/td>\n<\/tr>\n
Now What? Managing the Emotional Journey of Long Term Care<\/td>https:\/\/www.amazon.com\/Now-What-Managing-Emotional-Families\/<\/a><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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