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ECD \u60a3\u8005\u767b\u8a18\u8655<\/h2>\n

ECD \u7814\u7a76\u9700\u8981\u60a8\u7684\u5e6b\u52a9\uff01Erdheim-Chester \u75be\u75c5\u60a3\u8005\u767b\u8a18\u8cc7\u6599\u5eab\u5df2\u7d93\u5efa\u7acb\u3002\u73fe\u5728\u6211\u5011\u9700\u8981\u60a8\u7684\u8cc7\u6599\uff0c\u4f7f\u5176\u767c\u63ee\u4f5c\u7528\uff01 <\/strong><\/p>\n

\"\"<\/p>\n

ECD \u60a3\u8005\u767b\u8a18\u8655\u662f\u4e00\u500b\u91ab\u5b78\u8cc7\u6599\u5eab\uff0c\u6536\u96c6\u88ab\u8a3a\u65b7\u60a3\u6709 ECD \u7684\u60a3\u8005\u7684\u8cc7\u8a0a\u548c\/\u6216\u6a23\u672c\u3002\u9019\u4e9b\u6578\u64da\u5c07\u7528\u65bc\u5e6b\u52a9\u79d1\u5b78\u5bb6\u63d0\u9ad8\u5c0d ECD \u53ca\u5176\u6cbb\u7642\u7684\u77ad\u89e3\u3002\u8acb\u95b1\u8b80\u4e0b\u6587\uff0c\u8a73\u7d30\u4e86\u89e3\u8a3b\u518a\u8868\uff0c\u5305\u62ec\u5982\u4f55\u8a3b\u518a\u3002 <\/p>\n

\u8acb\u6ce8\u610f\uff0c\u52a0\u5165 ECD \u60a3\u8005\u767b\u8a18\u518a\uff0c\u60a8\u4e0d\u662f\u52a0\u5165 ECD \u5168\u7403\u806f\u76df\u7684\u6210\u54e1\u8cc7\u683c\uff01 \u5982\u679c\u60a8\u9084\u4e0d\u662f ECDGA \u7684\u6210\u54e1\uff0c\u4e5f\u8acb\u901a\u904e\u4ee5\u4e0b\u93c8\u63a5\u52a0\u5165 ECDGA\u3002\u5982\u679c\u60a8\u5df2\u7d93\u662f\u8a3b\u518a\u8655\u7684\u6703\u54e1\uff0c\u8acb\u8003\u616e\u4e5f\u52a0\u5165\u8a3b\u518a\u8655\u3002 <\/p>\n

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\u8981\u77ad\u89e3\u60a8\u662f\u5426\u6709\u8cc7\u683c\u53c3\u8207 ECD \u60a3\u8005\u767b\u8a18\uff0c\u8acb\u9ede\u64ca\u6b64\u9023\u7d50\u3002 <\/p>\n

[\/et_pb_text][et_pb_button button_url=”https:\/\/redcap.mskcc.org\/surveys\/?s=JXWLJMMXFD” url_new_window=”on” button_text=”ECD \u60a3\u8005\u767b\u8a18\u8655” _builder_version=”4.27.4″ _module_preset=”default” custom_margin=”||5px|||” global_colors_info=”{}”][\/et_pb_button][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n

<\/a><\/p>\n

\u95b1\u8b80\u8a3b\u518a\u8868\u96c6\u5408\u4e2d\u767c\u4f48\u7684\u6700\u65b0\u6578\u64da\uff1a2020 \u5e74\u8a3b\u518a\u8868\u66f4\u65b0<\/a><\/strong><\/p>\n

2018\u5e74\u5e95\uff0c\u767b\u8a18\u8655\u7522\u751f\u4e86\u4ee5\u4e0b\u7665\u72c0\u8a55\u4f30\u6587\u7ae0\u3002\u7814\u7a76\u7d50\u679c\u5f97\u51fa\u7d50\u8ad6\uff0c ECD \u60a3\u8005\u5177\u6709\u5ee3\u6cdb\u591a\u6a23\u4e14\u672a\u88ab\u91cd\u8996\u7684\u7665\u72c0\u3002 Erdheim-Chester \u75c5\u60a3\u8005\u5831\u544a\u7665\u72c0\u8a55\u4f30\u91cf\u8868<\/a><\/p>\n

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\"MSKCC\"<\/a><\/p>\n

\u7531\u7d00\u5ff5\u65af\u9686\u51f1\u7279\u7433\u764c\u75c7\u4e2d\u5fc3 \uff08MSK\uff09 \u9818\u5c0e\u7684 Erdheim-Chester \u75be\u75c5\u767b\u8a18\u8655\u5c07\u9818\u5148\u7684\u7814\u7a76\u4eba\u54e1\u8207\u50cf\u60a8\u9019\u6a23\u6709\u8208\u8da3\u53c3\u8207\u69cb\u5efa\u8cc7\u8a0a\u8cc7\u6599\u5eab\u7684\u4eba\u806f\u5408\u8d77\u4f86\u3002\u8a72\u767b\u8a18\u7684\u91cd\u9ede\u662f\u5e6b\u52a9\u79d1\u5b78\u5bb6\u63d0\u9ad8\u6211\u5011\u5c0dECD\u7684\u77ad\u89e3\uff0c\u77ad\u89e3\u5b83\u5982\u4f55\u5f71\u97ff\u60a3\u8005\u7684\u751f\u6d3b\u4ee5\u53caECD\u6cbb\u7642\u7684\u5de5\u4f5c\u539f\u7406\u3002\u6700\u7d42\u76ee\u6a19 – \u6cbb\u7652\uff01 <\/p>\n

Erdheim-Chester \u75c5 \uff08ECD\uff09 \u662f\u4e00\u7a2e\u7f55\u898b\u75be\u75c5\uff0c\u5f71\u97ff\u5168\u7403\u7d04 1,000 \u4eba\u3002\u7531\u65bc ECD \u975e\u5e38\u7f55\u898b\uff0c\u56e0\u6b64\u6211\u5011\u6b63\u5728\u5275\u5efa\u4e00\u500b\u60a3\u8005\u767b\u8a18\u8655\u4f86\u8aac\u660e\u6536\u96c6\u6709\u95dc ECD \u7684\u8cc7\u8a0a\u3002\u91ab\u7642\u767b\u8a18\u8655\u662f\u70ba\u6709\u7279\u5b9a\u5065\u5eb7\u554f\u984c\u7684\u60a3\u8005\u7cfb\u7d71\u5730\u6536\u96c6\u4e00\u7d44\u660e\u78ba\u5b9a\u7fa9\u7684\u5065\u5eb7\u548c\u4eba\u53e3\u7d71\u8a08\u6578\u64da\uff0c\u4fdd\u5b58\u5728\u4e2d\u592e\u8cc7\u6599\u5eab\u4e2d\u4ee5\u7528\u65bc\u9810\u5b9a\u7fa9\u7684\u76ee\u7684\u3002\u5c31 ECD Registry \u800c\u8a00\uff0c\u5b83\u5c07\u6709\u52a9\u65bc\u589e\u52a0\u5c0d\u75c5\u60c5\u53ca\u5176\u6cbb\u7642\u65b9\u6cd5\u7684\u77ad\u89e3\u3002 <\/p>\n

\u91cd\u9ede\u662f\u66f4\u591a\u5730\u77ad\u89e3 ECD \u6703\u5f15\u8d77\u54ea\u4e9b\u985e\u578b\u7684\u5065\u5eb7\u554f\u984c\u3001ECD \u7684\u4e0d\u540c\u6cbb\u7642\u65b9\u6cd5\u6703\u767c\u751f\u4ec0\u9ebc\uff0c\u4ee5\u53ca ECD \u5982\u4f55\u5f71\u97ff\u4eba\u5011\u7684\u611f\u53d7\u548c\u614b\u5ea6\u3002\u6211\u5011\u9084\u60f3\u77ad\u89e3ECD\u60a3\u8005\u7684\u9019\u4e9b\u4e8b\u60c5\u5982\u4f55\u96a8\u8457\u6642\u9593\u7684\u63a8\u79fb\u800c\u8b8a\u5316\u3002\u70ba\u4e86\u5f04\u6e05\u695a\u9019\u4e00\u9ede\uff0c\u91ab\u751f\u5e0c\u671b\u6536\u96c6\u6709\u95dc Erdheim-Chester \u75c5\u60a3\u8005\u7684\u8cc7\u8a0a\u4ee5\u53ca\u4ed6\u5011\u5982\u4f55\u6cbb\u7642\u8a72\u75c5\u3002 <\/p>\n

 <\/p>\n

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\u50c5\u5728\u904e\u53bb\u5341\u5e74\u4e2d\uff0c\u79d1\u5b78\u5bb6\u5011\u5728\u6297\u64ca\u9019\u7a2e\u75be\u75c5\u65b9\u9762\u5c31\u53d6\u5f97\u4e86\u5de8\u5927\u9032\u5c55\uff0c\u4e26\u4e14\u6bcf\u5e74\u90fd\u6709\u65b0\u7684\u7814\u7a76\u63a8\u51fa\u3002\u4f46\u7814\u7a76\u4eba\u54e1\u4e0d\u80fd\u7368\u81ea\u5b8c\u6210\u9019\u9805\u5de5\u4f5c;\u4ed6\u5011\u9700\u8981\u50cf\u60a8\u9019\u6a23\u7684\u4eba\u63d0\u4f9b\u8cc7\u8a0a\u4f86\u9032\u884c\u7814\u7a76\u3002 <\/p>\n

\u7d00\u5ff5\u65af\u9686\u51f1\u7279\u7433\u764c\u75c7\u4e2d\u5fc3 \uff08MSK\uff09 \u662f\u8a72\u96c6\u4e2d\u5f0f\u8cc7\u6599\u5eab\u548c\u6a23\u672c\u5b58\u5132\u7684\u53ef\u9760\u4fdd\u7ba1\u4eba\u3002\u9019\u4e9b\u6578\u64da\u5c07\u63d0\u4f9b\u7d66\u7814\u7a76\u8a72\u75be\u75c5\u7684\u7814\u7a76\u4eba\u54e1\u3002\u8a72\u767b\u8a18\u8655\u65e8\u5728\u56de\u7b54\u554f\u984c\u4f75\u70ba\u7814\u7a76\u4eba\u54e1\u63d0\u4f9b\u8cc7\u8a0a\u4ee5\u627e\u5230\u6709\u6548\u7684\u6cbb\u7642\u65b9\u6cd5\u3002 <\/p>\n

ECDGA \u81f4\u529b\u65bc\u7e7c\u7e8c\u7ba1\u7406\u8a72\u8a3b\u518a\u8868\u4f75\u70ba\u5176\u63d0\u4f9b\u8cc7\u91d1\uff0c\u4ee5\u4fbf\u6211\u5011\u80fd\u5920\u7e7c\u7e8c\u767c\u5c55\u8a72\u8cc7\u6599\u5eab\u5c07\u70ba\u793e\u5340\u63d0\u4f9b\u7684\u5bf6\u8cb4\u8cc7\u8a0a\u3002<\/p>\n

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\u5982\u679c\u60a8\u60f3\u53c3\u8207 Registry \u8a08\u5283\uff0cMSK \u5718\u968a\u5c07\u8981\u6c42\u60a8\u7684\u91ab\u751f\u767c\u9001\u4ee5\u4e0b\u8cc7\u8a0a\u3002<\/p>\n