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BEGIN:DAYLIGHT
TZOFFSETFROM:-0600
TZOFFSETTO:-0500
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DTSTART:20260308T080000
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BEGIN:STANDARD
TZOFFSETFROM:-0500
TZOFFSETTO:-0600
TZNAME:CST
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BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250502T120000
DTEND;TZID=America/Chicago:20250502T130000
DTSTAMP:20260604T124931
CREATED:20250826T113024Z
LAST-MODIFIED:20250909T151120Z
UID:10000594-1746187200-1746190800@www.erdheim-chester.org
SUMMARY:白血病和淋巴瘤協會支援系列第一部分：服務概述
DESCRIPTION:概述為患者及其家人以及照顧他們的醫療保健提供者提供的各種教育資源和支持服務。
URL:https://www.erdheim-chester.org/zh-hant/event/%e7%99%bd%e8%a1%80%e7%97%85%e5%92%8c%e6%b7%8b%e5%b7%b4%e7%98%a4%e5%8d%94%e6%9c%83%e6%94%af%e6%8f%b4%e7%b3%bb%e5%88%97%e7%ac%ac%e4%b8%80%e9%83%a8%e5%88%86%ef%bc%9a%e6%9c%8d%e5%8b%99%e6%a6%82%e8%bf%b0/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Leukemia-Lymphoma-Society.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250429T130000
DTEND;TZID=America/Chicago:20250429T160000
DTSTAMP:20260604T124931
CREATED:20250427T171538Z
LAST-MODIFIED:20250427T171538Z
UID:10000194-1745931600-1745942400@www.erdheim-chester.org
SUMMARY:與阿拉巴馬大學醫學生的點對點社區即時聊天
DESCRIPTION:日期：4月29， 2025\n時間：下午 \n02：00今天註冊
URL:https://www.erdheim-chester.org/zh-hant/event/%e8%88%87%e9%98%bf%e6%8b%89%e5%b7%b4%e9%a6%ac%e5%a4%a7%e5%ad%b8%e9%86%ab%e5%ad%b8%e7%94%9f%e7%9a%84%e9%bb%9e%e5%b0%8d%e9%bb%9e%e7%a4%be%e5%8d%80%e5%8d%b3%e6%99%82%e8%81%8a%e5%a4%a9/
CATEGORIES:點對點社區聊天
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/Peer-to-peer-chat-1.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250426T100000
DTEND;TZID=America/Chicago:20250426T160000
DTSTAMP:20260604T124931
CREATED:20250427T172348Z
LAST-MODIFIED:20250427T172348Z
UID:10000222-1745661600-1745683200@www.erdheim-chester.org
SUMMARY:西班牙語社區聊天
DESCRIPTION:日期：2025\n年4月26日時間：上午 \n11：00今天註冊
URL:https://www.erdheim-chester.org/zh-hant/event/%e8%a5%bf%e7%8f%ad%e7%89%99%e8%aa%9e%e7%a4%be%e5%8d%80%e8%81%8a%e5%a4%a9/
CATEGORIES:西班牙語社區聊天
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/Spanish-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250423T110000
DTEND;TZID=America/Chicago:20250423T160000
DTSTAMP:20260604T124931
CREATED:20250427T172214Z
LAST-MODIFIED:20250427T172214Z
UID:10000217-1745406000-1745424000@www.erdheim-chester.org
SUMMARY:加拿大社區聊天
DESCRIPTION:日期：2025\n年4月23日時間：中午12：00今天\n\n註冊
URL:https://www.erdheim-chester.org/zh-hant/event/%e5%8a%a0%e6%8b%bf%e5%a4%a7%e7%a4%be%e5%8d%80%e8%81%8a%e5%a4%a9/
CATEGORIES:加拿大社區聊天
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/Canadian-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250419T123000
DTEND;TZID=America/Chicago:20250419T133000
DTSTAMP:20260604T124931
CREATED:20250418T192848Z
LAST-MODIFIED:20250418T192848Z
UID:10000187-1745065800-1745069400@www.erdheim-chester.org
SUMMARY:悲傷社區聊天活動 2025 年 4 月 19 日
DESCRIPTION:日期：2025\n 年 4 月 19 日時間：下午 01：30 至下午 \n 02：30立即註冊
URL:https://www.erdheim-chester.org/zh-hant/event/%e6%82%b2%e5%82%b7%e7%a4%be%e5%8d%80%e8%81%8a%e5%a4%a9%e6%b4%bb%e5%8b%95-2025-%e5%b9%b4-4-%e6%9c%88-19-%e6%97%a5/
CATEGORIES:Grief 社區聊天
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/Grief-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250416T190000
DTEND;TZID=America/Chicago:20250416T190000
DTSTAMP:20260604T124931
CREATED:20250427T173159Z
LAST-MODIFIED:20250427T173159Z
UID:10000243-1744830000-1744830000@www.erdheim-chester.org
SUMMARY:澳大利亞/紐西蘭社區聊天
DESCRIPTION:日期： 4月 16， 2025\n時間： 08：00 pm \n今天註冊
URL:https://www.erdheim-chester.org/zh-hant/event/%e6%be%b3%e5%a4%a7%e5%88%a9%e4%ba%9e-%e7%b4%90%e8%a5%bf%e8%98%ad%e7%a4%be%e5%8d%80%e8%81%8a%e5%a4%a9/
CATEGORIES:澳大利亞和紐西蘭社區聊天
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/Australia-NZ-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250415T110000
DTEND;TZID=America/Chicago:20250415T160000
DTSTAMP:20260604T124931
CREATED:20250427T172921Z
LAST-MODIFIED:20250427T172921Z
UID:10000237-1744714800-1744732800@www.erdheim-chester.org
SUMMARY:義大利語社區聊天
DESCRIPTION:日期：4月15， 2025\n時間：中午12：00今天\n\n註冊
URL:https://www.erdheim-chester.org/zh-hant/event/%e7%be%a9%e5%a4%a7%e5%88%a9%e8%aa%9e%e7%a4%be%e5%8d%80%e8%81%8a%e5%a4%a9/
CATEGORIES:義大利社區聊天
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/Italian-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250401T070000
DTEND;TZID=America/Chicago:20250401T160000
DTSTAMP:20260604T124931
CREATED:20250826T111525Z
LAST-MODIFIED:20250910T084736Z
UID:10000570-1743490800-1743523200@www.erdheim-chester.org
SUMMARY:白血病和淋巴瘤協會支援系列第3部分：臨床試驗支援中心
DESCRIPTION:白血病與淋巴瘤協會提供一項名為臨床試驗支援中心（CTSC）的免費服務，以説明血癌患者、護理人員和醫療保健專業人員找到潛在的臨床試驗並克服註冊障礙。該網路研討會將討論該過程併為 Erdheim-Chester 患者提供支援。
URL:https://www.erdheim-chester.org/zh-hant/event/%e7%99%bd%e8%a1%80%e7%97%85%e5%92%8c%e6%b7%8b%e5%b7%b4%e7%98%a4%e5%8d%94%e6%9c%83%e6%94%af%e6%8f%b4%e7%b3%bb%e5%88%97%e7%ac%ac3%e9%83%a8%e5%88%86%ef%bc%9a%e8%87%a8%e5%ba%8a%e8%a9%a6%e9%a9%97%e6%94%af/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/The-Leukemia-Lymphoma-Society-Support-Series-Part-3.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250313T120000
DTEND;TZID=America/Chicago:20250313T130000
DTSTAMP:20260604T124931
CREATED:20250826T124738Z
LAST-MODIFIED:20250910T092632Z
UID:10000702-1741867200-1741870800@www.erdheim-chester.org
SUMMARY:Rosai Dorfman 病
DESCRIPTION:瞭解來自 Rosai-Dorfman 病領先專家的見解。更深入地瞭解這種罕見病症、其癥狀、診斷和最新的治療方案。不要錯過可能有所作為的專業知識！
URL:https://www.erdheim-chester.org/zh-hant/event/rosai-dorfman-%e7%97%85/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Rosai-Dorfman-Disease.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250307T140000
DTEND;TZID=America/Chicago:20250307T160000
DTSTAMP:20260604T124931
CREATED:20250427T173418Z
LAST-MODIFIED:20250427T173418Z
UID:10000257-1741356000-1741363200@www.erdheim-chester.org
SUMMARY:法語社區聊天
DESCRIPTION:日期：2025\n 年 3 月 7 日 時間：下午 \n 03：00 今天註冊
URL:https://www.erdheim-chester.org/zh-hant/event/%e6%b3%95%e8%aa%9e%e7%a4%be%e5%8d%80%e8%81%8a%e5%a4%a9/
CATEGORIES:法語社區聊天
ATTACH;FMTTYPE=image/jpeg:https://www.erdheim-chester.org/wp-content/uploads/2025/06/French-Chat.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250225T120000
DTEND;TZID=America/Chicago:20250225T130000
DTSTAMP:20260604T124931
CREATED:20250826T112000Z
LAST-MODIFIED:20250910T081430Z
UID:10000582-1740484800-1740488400@www.erdheim-chester.org
SUMMARY:白血病和淋巴瘤協會支援系列第二部分：信息資源中心
DESCRIPTION:信息專家為血癌患者、護理人員和家庭提供免費的一對一教育、社會心理支持和宣傳。它們涵蓋疾病和治療方案、臨床試驗、心理健康支援和治療團隊溝通。
URL:https://www.erdheim-chester.org/zh-hant/event/%e7%99%bd%e8%a1%80%e7%97%85%e5%92%8c%e6%b7%8b%e5%b7%b4%e7%98%a4%e5%8d%94%e6%9c%83%e6%94%af%e6%8f%b4%e7%b3%bb%e5%88%97%e7%ac%ac%e4%ba%8c%e9%83%a8%e5%88%86%ef%bc%9a%e4%bf%a1%e6%81%af%e8%b3%87%e6%ba%90/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/The-Leukemia-Lymphoma-Society-Support-Series-Part-2-Information-Resource-Center.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250123T120000
DTEND;TZID=America/Chicago:20250123T130000
DTSTAMP:20260604T124931
CREATED:20250826T124624Z
LAST-MODIFIED:20250910T092242Z
UID:10000690-1737633600-1737637200@www.erdheim-chester.org
SUMMARY:在假期中照顧好自己
DESCRIPTION:聆聽經驗豐富的 ECD 照護者分享她的見解和自我保健的應對機制。
URL:https://www.erdheim-chester.org/zh-hant/event/%e5%9c%a8%e5%81%87%e6%9c%9f%e4%b8%ad%e7%85%a7%e9%a1%a7%e5%a5%bd%e8%87%aa%e5%b7%b1/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Caring-for-yourself-through-the-holidays.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20250123T120000
DTEND;TZID=America/Chicago:20250123T130000
DTSTAMP:20260604T124931
CREATED:20250826T124500Z
LAST-MODIFIED:20250910T091833Z
UID:10000669-1737633600-1737637200@www.erdheim-chester.org
SUMMARY:抑鬱和焦慮的應對策略
DESCRIPTION:聽聽 NP Kevin O’Brien 和 Josef Lacy 討論心理健康挑戰和克服這些挑戰的有效技巧。從 ECD 患者那裡獲得第一手的見解，他分享了他戰勝心理健康問題的鼓舞人心的旅程。
URL:https://www.erdheim-chester.org/zh-hant/event/%e6%8a%91%e9%ac%b1%e5%92%8c%e7%84%a6%e6%85%ae%e7%9a%84%e6%87%89%e5%b0%8d%e7%ad%96%e7%95%a5/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Coping-Strategies-for-Depression-Anxiety.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20241123T120000
DTEND;TZID=America/Chicago:20241123T130000
DTSTAMP:20260604T124931
CREATED:20250826T124355Z
LAST-MODIFIED:20250910T091152Z
UID:10000666-1732363200-1732366800@www.erdheim-chester.org
SUMMARY:Dr. Girschikofsky- erklärt Patienten und Familien ECD auf Deutsch
DESCRIPTION:來自林茨 Elisabethinen 醫院的 Michael Girschikofsky 醫生向講德語的 ECD 患者和家屬解釋 ECD。
URL:https://www.erdheim-chester.org/zh-hant/event/dr-girschikofsky-erklart-patienten-und-familien-ecd-auf-deutsch/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Dr.-Girschikofsky-erklart-Patienten-und-Familien-ECD-auf-Deutsch.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220921T120000
DTEND;TZID=America/Chicago:20220921T120000
DTSTAMP:20260604T124931
CREATED:20250826T124245Z
LAST-MODIFIED:20250910T090814Z
UID:10000654-1663761600-1663761600@www.erdheim-chester.org
SUMMARY:診室就診之外：流覽組織細胞增多症的臨床試驗
DESCRIPTION:參加臨床試驗可以為患者和社區帶來許多好處。我們希望本次會議能説明您更好地瞭解臨床試驗，如何與您的醫生討論試驗，並讓您準備好了正確的資源。
URL:https://www.erdheim-chester.org/zh-hant/event/%e8%a8%ba%e5%ae%a4%e5%b0%b1%e8%a8%ba%e4%b9%8b%e5%a4%96%ef%bc%9a%e6%b5%81%e8%a6%bd%e7%b5%84%e7%b9%94%e7%b4%b0%e8%83%9e%e5%a2%9e%e5%a4%9a%e7%97%87%e7%9a%84%e8%87%a8%e5%ba%8a%e8%a9%a6%e9%a9%97/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Beyond-the-Office-Visit-Navigating-Clinical-Trials-for-Histiocytosis.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220815T120000
DTEND;TZID=America/Chicago:20220815T130000
DTSTAMP:20260604T124931
CREATED:20250826T124140Z
LAST-MODIFIED:20250910T140156Z
UID:10000642-1660564800-1660568400@www.erdheim-chester.org
SUMMARY:Erdheim-Chester 酒店）疾病靶向治療：好的和壞的
DESCRIPTION:在 youtube 上觀看網絡研討會 \n了解用於治療埃爾德海姆-切斯特病 （ECD） 的治療方法、隨著時間的推移會發生什麼以及可能涉及的副作用。 Ginny-Tyler Meadows 是一名臨床藥劑師，為阿拉巴馬大學伯明翰醫院柯克林診所的血液學/腫瘤學診所提供服務。她專門協助患者接受處方口服溶瘤治療。除了增加患者獲得藥物的機會外，她還熱衷於患者教育和宣傳。
URL:https://www.erdheim-chester.org/zh-hant/event/erdheim-chester-%e9%85%92%e5%ba%97%ef%bc%89%e7%96%be%e7%97%85%e9%9d%b6%e5%90%91%e6%b2%bb%e7%99%82%ef%bc%9a%e5%a5%bd%e7%9a%84%e5%92%8c%e5%a3%9e%e7%9a%84/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Erdheim-Chester-Disease-Targeted-Therapies-The-good-and-the-bad.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220519T120000
DTEND;TZID=America/Chicago:20220519T130000
DTSTAMP:20260604T124931
CREATED:20250826T124011Z
LAST-MODIFIED:20250910T085928Z
UID:10000630-1652961600-1652965200@www.erdheim-chester.org
SUMMARY:門診就診之外：克服罕見病
DESCRIPTION:Tim Facciola，認證個人教練和運動專家，與我們一起討論在管理慢性病或罕見疾病（如Erdheim-Chester病）時，將運動和鍛煉融入生活。
URL:https://www.erdheim-chester.org/zh-hant/event/%e9%96%80%e8%a8%ba%e5%b0%b1%e8%a8%ba%e4%b9%8b%e5%a4%96%ef%bc%9a%e5%85%8b%e6%9c%8d%e7%bd%95%e8%a6%8b%e7%97%85/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Beyond-the-Office-Visit-Moving-Through-Rare-Disease.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220505T120000
DTEND;TZID=America/Chicago:20220505T130000
DTSTAMP:20260604T124931
CREATED:20250826T123859Z
LAST-MODIFIED:20250910T084205Z
UID:10000618-1651752000-1651755600@www.erdheim-chester.org
SUMMARY:超越辦公室訪問 - 第二部分：功能性營養與健康
DESCRIPTION:ECD全球聯盟（ECDGA）和組織細胞增多症協會共同主辦了Beyond the Office Visit虛擬教育系列，第二部分：功能性營養與健康。在本次會議期間，認證健康教練和認證功能營養從業者 Alyssa Cabral 解釋了在與組織細胞增多症或任何罕見/慢性疾病患者一起生活或照顧患者時，功能健康和營養的作用。
URL:https://www.erdheim-chester.org/zh-hant/event/%e8%b6%85%e8%b6%8a%e8%be%a6%e5%85%ac%e5%ae%a4%e8%a8%aa%e5%95%8f-%e7%ac%ac%e4%ba%8c%e9%83%a8%e5%88%86%ef%bc%9a%e5%8a%9f%e8%83%bd%e6%80%a7%e7%87%9f%e9%a4%8a%e8%88%87%e5%81%a5%e5%ba%b7/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Beyond-the-Office-Visit-Part-Two-Functional-Nutrition-Wellness.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20220301T120000
DTEND;TZID=America/Chicago:20220301T130000
DTSTAMP:20260604T124931
CREATED:20250826T124939Z
LAST-MODIFIED:20250910T135755Z
UID:10000714-1646136000-1646139600@www.erdheim-chester.org
SUMMARY:門診就診之外：管理 Histio 護理的成本
DESCRIPTION:在 youtube 上觀看網絡研討會 \n這是與組織細胞增多症協會共同主辦的 Beyond the Office Visit 虛擬教育系列的開始。來自 Memorial Sloan Kettering 的演講者 Deandre Pate 和 Victoria Lassen 介紹了在患有組織細胞增多症的情況下管理醫療保健成本、尋求當地援助和改善後勤負擔的方法。\n錄製於 2022 年 2 月
URL:https://www.erdheim-chester.org/zh-hant/event/%e9%96%80%e8%a8%ba%e5%b0%b1%e8%a8%ba%e4%b9%8b%e5%a4%96%ef%bc%9a%e7%ae%a1%e7%90%86-histio-%e8%ad%b7%e7%90%86%e7%9a%84%e6%88%90%e6%9c%ac/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Beyond-the-Office-Visit-Managing-the-Cost-of-Histio-Care.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20211122T120000
DTEND;TZID=America/Chicago:20211122T130000
DTSTAMP:20260604T124931
CREATED:20250826T123724Z
LAST-MODIFIED:20250910T140356Z
UID:10000606-1637582400-1637586000@www.erdheim-chester.org
SUMMARY:2021 ECD 虛擬醫學研討會
DESCRIPTION:在 youtube 上觀看網絡研討會 \n第 8 屆國際 ECD 醫學研討會於 2021 年 11 月 16 日舉行。組織這種虛擬體驗是希望醫學界有機會分享與 Erdheim-Chester 病和其他組織細胞疾病相關的科學發現、患者結果和案例研究。
URL:https://www.erdheim-chester.org/zh-hant/event/2021-ecd-%e8%99%9b%e6%93%ac%e9%86%ab%e5%ad%b8%e7%a0%94%e8%a8%8e%e6%9c%83/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/2021-ECD-Virtual-Medical-Symposium.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210927T120000
DTEND;TZID=America/Chicago:20210927T130000
DTSTAMP:20260604T124931
CREATED:20250826T131009Z
LAST-MODIFIED:20250910T084000Z
UID:10000791-1632744000-1632747600@www.erdheim-chester.org
SUMMARY:與患有組織細胞增多症和 ECD 的成年患者交談。由 OR Association 和 HA 主辦。
DESCRIPTION:對 LCH 和 Erdheim-Chester 成年患者的影響、正在進行的治療和研究\n阿拉巴馬大學伯明翰分校的 Gaurav Goyal 博士主持了教育會議，介紹了對 LCH 和 Erdheim-Chester 成年患者的影響、正在進行 的治療和研究的主題。演講包括對成人組織細胞疾病的描述、常見的臨床特徵以及已發現有效的 治療方法 。分享了診斷技巧，以幫助醫生確認這些類似疾病的準確 診斷 。   \n錄製於 2021 年 9 月
URL:https://www.erdheim-chester.org/zh-hant/event/%e8%88%87%e6%82%a3%e6%9c%89%e7%b5%84%e7%b9%94%e7%b4%b0%e8%83%9e%e5%a2%9e%e5%a4%9a%e7%97%87%e5%92%8c-ecd-%e7%9a%84%e6%88%90%e5%b9%b4%e6%82%a3%e8%80%85%e4%ba%a4%e8%ab%87%e3%80%82%e7%94%b1-or-association/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Talk-for-adult-patients-with-Histiocytosis-and-ECD.-Organized-by-OR-Association-and-HA.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210720T120000
DTEND;TZID=America/Chicago:20210720T130000
DTSTAMP:20260604T124931
CREATED:20250826T125935Z
LAST-MODIFIED:20250910T094102Z
UID:10000738-1626782400-1626786000@www.erdheim-chester.org
SUMMARY:Erdheim-Chester 病：分子時代更新指南綜述
DESCRIPTION:在對 2020 年最新 ECD 共識指南的回顧中，演示和討論是為醫療專業界量身定製的。請與您的同事或護理團隊分享。\n錄製於 2020 年 11 月
URL:https://www.erdheim-chester.org/zh-hant/event/erdheim-chester-%e7%97%85%ef%bc%9a%e5%88%86%e5%ad%90%e6%99%82%e4%bb%a3%e6%9b%b4%e6%96%b0%e6%8c%87%e5%8d%97%e7%b6%9c%e8%bf%b0/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Erdheim-Chester-disease-A-review-of-updated-guidelines-in-the-molecular-era.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210629T120000
DTEND;TZID=America/Chicago:20210629T130000
DTSTAMP:20260604T124931
CREATED:20250826T130616Z
LAST-MODIFIED:20250910T135832Z
UID:10000774-1624968000-1624971600@www.erdheim-chester.org
SUMMARY:瞭解組織細胞腫瘤的 NCCN 臨床實踐指南
DESCRIPTION:在 youtube 上觀看網絡研討會 \n對最近發佈的美國國家綜合癌症網路 （NCCN） 組織細胞增多症指南®的綜述。NCCN 制定了這些新的臨床實踐指南，為診斷和治療成人三種最常見的組織細胞增多症提供最新證據和專家共識：朗格漢斯細胞組織細胞增生症 （LCH）、Erdheim-Chester 病 （ECD） 和 Rosai-Dorfman 病。\n錄製於 2021 年 6 月
URL:https://www.erdheim-chester.org/zh-hant/event/%e7%9e%ad%e8%a7%a3%e7%b5%84%e7%b9%94%e7%b4%b0%e8%83%9e%e8%85%ab%e7%98%a4%e7%9a%84-nccn-%e8%87%a8%e5%ba%8a%e5%af%a6%e8%b8%90%e6%8c%87%e5%8d%97/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Understanding-the-NCCN-Clinical-Practice-Guidelines-for-Histiocytic-Neoplasms.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210624T120000
DTEND;TZID=America/Chicago:20210624T130000
DTSTAMP:20260604T124931
CREATED:20250826T130147Z
LAST-MODIFIED:20250910T095035Z
UID:10000762-1624536000-1624539600@www.erdheim-chester.org
SUMMARY:Erdheim-Chester 病的內分泌狀況
DESCRIPTION:該網路研討會由組織細胞增多症協會和 Erdheim-Chester 病全球聯盟共同主辦，重點關注 ECD，涵蓋所有組織細胞疾病的內分泌疾病及其管理。\n錄製於 2021 年 3 月
URL:https://www.erdheim-chester.org/zh-hant/event/erdheim-chester-%e7%97%85%e7%9a%84%e5%85%a7%e5%88%86%e6%b3%8c%e7%8b%80%e6%b3%81/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Endocrine-Conditions-in-Erdheim-Chester-Disease.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210624T120000
DTEND;TZID=America/Chicago:20210624T130000
DTSTAMP:20260604T124931
CREATED:20250826T130035Z
LAST-MODIFIED:20250910T094459Z
UID:10000750-1624536000-1624539600@www.erdheim-chester.org
SUMMARY:Histio 患者需求：關注眼睛和視力
DESCRIPTION:在本次網路研討會中，紀念斯隆凱特琳癌症中心 （MSK） 的醫生將説明您進一步瞭解當前的眼部受累如何影響日常生活，以及如何獲得更好的結果和結果。對於那些目前沒有任何眼部受累的患者來說，這也會引起興趣，但他們即將到來的治療可能會引起眼睛問題。\n錄製於 2021 年 2 月
URL:https://www.erdheim-chester.org/zh-hant/event/histio-%e6%82%a3%e8%80%85%e9%9c%80%e6%b1%82%ef%bc%9a%e9%97%9c%e6%b3%a8%e7%9c%bc%e7%9d%9b%e5%92%8c%e8%a6%96%e5%8a%9b/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Histio-Patient-Needs-A-Focus-on-the-Eyes-and-Vision.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20210525
DTEND;VALUE=DATE:20210527
DTSTAMP:20260604T124931
CREATED:20210402T041036Z
LAST-MODIFIED:20250612T233018Z
UID:10000177-1621983600-1622069999@www.erdheim-chester.org
SUMMARY:第8屆 ECD 醫學研討會
DESCRIPTION:2021 年度 ECD 醫學研討會\n虛擬研討會\n感謝您參加今年的虛擬研討會！以下是本次會議的清單，包括議程、可列印的議程、演講者簡介、摘要和演示幻燈片。會議結束後，將在此處添加錄音並通過電子郵件發送給出席者。 2021 年虛擬活動議程 醫學研討會計劃 2021 ECD 虛擬醫學研討會錄音
URL:https://www.erdheim-chester.org/zh-hant/event/%e7%ac%ac8%e5%b1%86-ecd-%e9%86%ab%e5%ad%b8%e7%a0%94%e8%a8%8e%e6%9c%83/
CATEGORIES:ECD 醫學研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2021/04/8th-medical-symposium.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20200701T120000
DTEND;TZID=America/Chicago:20200701T130000
DTSTAMP:20260604T124931
CREATED:20250826T125837Z
LAST-MODIFIED:20250910T093922Z
UID:10000726-1593604800-1593608400@www.erdheim-chester.org
SUMMARY:使用 ECD 共識建議：宣導您的健康
DESCRIPTION:舉辦了一場教育網路研討會，以解釋最新的 Erdheim-Chester 病 （ECD） 共識檔，並瞭解如何將其用於護理和付款人支援。會議後回答的問題發佈在這裡。\n錄製於 2020 年 6 月
URL:https://www.erdheim-chester.org/zh-hant/event/%e4%bd%bf%e7%94%a8-ecd-%e5%85%b1%e8%ad%98%e5%bb%ba%e8%ad%b0%ef%bc%9a%e5%ae%a3%e5%b0%8e%e6%82%a8%e7%9a%84%e5%81%a5%e5%ba%b7/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Using-ECD-Consensus-Recommendations-Advocating-for-your-health.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20190111T070000
DTEND;TZID=America/Chicago:20190112T160000
DTSTAMP:20260604T124931
CREATED:20190112T044502Z
LAST-MODIFIED:20250930T005149Z
UID:10000097-1547190000-1547308800@www.erdheim-chester.org
SUMMARY:第七屆國際 ECD 和家庭聚會
DESCRIPTION:位置： Milan、義大利
URL:https://www.erdheim-chester.org/zh-hant/event/%e7%ac%ac%e4%b8%83%e5%b1%86%e5%9c%8b%e9%9a%9b-ecd-%e5%92%8c%e5%ae%b6%e5%ba%ad%e8%81%9a%e6%9c%83/
CATEGORIES:ECD 患者和家庭聚會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2019/01/7th-annual-ECD-patient-and-family-gathering.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190110
DTEND;VALUE=DATE:20190112
DTSTAMP:20260604T124931
CREATED:20190402T040910Z
LAST-MODIFIED:20250929T232822Z
UID:10000162-1547161200-1547247599@www.erdheim-chester.org
SUMMARY:第 7 屆 ECD 醫學年會
DESCRIPTION:位置： Milan、義大利
URL:https://www.erdheim-chester.org/zh-hant/event/%e7%ac%ac-7-%e5%b1%86-ecd-%e9%86%ab%e5%ad%b8%e5%b9%b4%e6%9c%83/
CATEGORIES:ECD 醫學研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/7th-annual-ECD-medical-symposium.png
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20180515
DTEND;VALUE=DATE:20180517
DTSTAMP:20260604T124931
CREATED:20180517T031728Z
LAST-MODIFIED:20250930T004640Z
UID:10000087-1526425200-1526511599@www.erdheim-chester.org
SUMMARY:第六屆年度國際 ECD 和家庭聚會
DESCRIPTION:位置： 佛羅里達州奧蘭多
URL:https://www.erdheim-chester.org/zh-hant/event/%e7%ac%ac%e5%85%ad%e5%b1%86%e5%b9%b4%e5%ba%a6%e5%9c%8b%e9%9a%9b-ecd-%e5%92%8c%e5%ae%b6%e5%ba%ad%e8%81%9a%e6%9c%83/
CATEGORIES:ECD 患者和家庭聚會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/04/6th-annual-ECD-patient-family-gathering.png
END:VEVENT
END:VCALENDAR