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X-WR-CALDESC:Events for Erdheim-Chester Disease Global Alliance
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DTSTART;TZID=America/Chicago:20210720T120000
DTEND;TZID=America/Chicago:20210720T130000
DTSTAMP:20260604T080407
CREATED:20250826T125935Z
LAST-MODIFIED:20250910T094102Z
UID:10000738-1626782400-1626786000@www.erdheim-chester.org
SUMMARY:Erdheim-Chester 病：分子時代更新指南綜述
DESCRIPTION:在對 2020 年最新 ECD 共識指南的回顧中，演示和討論是為醫療專業界量身定製的。請與您的同事或護理團隊分享。\n錄製於 2020 年 11 月
URL:https://www.erdheim-chester.org/zh-hant/event/erdheim-chester-%e7%97%85%ef%bc%9a%e5%88%86%e5%ad%90%e6%99%82%e4%bb%a3%e6%9b%b4%e6%96%b0%e6%8c%87%e5%8d%97%e7%b6%9c%e8%bf%b0/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Erdheim-Chester-disease-A-review-of-updated-guidelines-in-the-molecular-era.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210629T120000
DTEND;TZID=America/Chicago:20210629T130000
DTSTAMP:20260604T080407
CREATED:20250826T130616Z
LAST-MODIFIED:20250910T135832Z
UID:10000774-1624968000-1624971600@www.erdheim-chester.org
SUMMARY:瞭解組織細胞腫瘤的 NCCN 臨床實踐指南
DESCRIPTION:在 youtube 上觀看網絡研討會 \n對最近發佈的美國國家綜合癌症網路 （NCCN） 組織細胞增多症指南®的綜述。NCCN 制定了這些新的臨床實踐指南，為診斷和治療成人三種最常見的組織細胞增多症提供最新證據和專家共識：朗格漢斯細胞組織細胞增生症 （LCH）、Erdheim-Chester 病 （ECD） 和 Rosai-Dorfman 病。\n錄製於 2021 年 6 月
URL:https://www.erdheim-chester.org/zh-hant/event/%e7%9e%ad%e8%a7%a3%e7%b5%84%e7%b9%94%e7%b4%b0%e8%83%9e%e8%85%ab%e7%98%a4%e7%9a%84-nccn-%e8%87%a8%e5%ba%8a%e5%af%a6%e8%b8%90%e6%8c%87%e5%8d%97/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Understanding-the-NCCN-Clinical-Practice-Guidelines-for-Histiocytic-Neoplasms.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210624T120000
DTEND;TZID=America/Chicago:20210624T130000
DTSTAMP:20260604T080407
CREATED:20250826T130147Z
LAST-MODIFIED:20250910T095035Z
UID:10000762-1624536000-1624539600@www.erdheim-chester.org
SUMMARY:Erdheim-Chester 病的內分泌狀況
DESCRIPTION:該網路研討會由組織細胞增多症協會和 Erdheim-Chester 病全球聯盟共同主辦，重點關注 ECD，涵蓋所有組織細胞疾病的內分泌疾病及其管理。\n錄製於 2021 年 3 月
URL:https://www.erdheim-chester.org/zh-hant/event/erdheim-chester-%e7%97%85%e7%9a%84%e5%85%a7%e5%88%86%e6%b3%8c%e7%8b%80%e6%b3%81/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Endocrine-Conditions-in-Erdheim-Chester-Disease.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20210624T120000
DTEND;TZID=America/Chicago:20210624T130000
DTSTAMP:20260604T080407
CREATED:20250826T130035Z
LAST-MODIFIED:20250910T094459Z
UID:10000750-1624536000-1624539600@www.erdheim-chester.org
SUMMARY:Histio 患者需求：關注眼睛和視力
DESCRIPTION:在本次網路研討會中，紀念斯隆凱特琳癌症中心 （MSK） 的醫生將説明您進一步瞭解當前的眼部受累如何影響日常生活，以及如何獲得更好的結果和結果。對於那些目前沒有任何眼部受累的患者來說，這也會引起興趣，但他們即將到來的治療可能會引起眼睛問題。\n錄製於 2021 年 2 月
URL:https://www.erdheim-chester.org/zh-hant/event/histio-%e6%82%a3%e8%80%85%e9%9c%80%e6%b1%82%ef%bc%9a%e9%97%9c%e6%b3%a8%e7%9c%bc%e7%9d%9b%e5%92%8c%e8%a6%96%e5%8a%9b/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Histio-Patient-Needs-A-Focus-on-the-Eyes-and-Vision.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Chicago:20200701T120000
DTEND;TZID=America/Chicago:20200701T130000
DTSTAMP:20260604T080407
CREATED:20250826T125837Z
LAST-MODIFIED:20250910T093922Z
UID:10000726-1593604800-1593608400@www.erdheim-chester.org
SUMMARY:使用 ECD 共識建議：宣導您的健康
DESCRIPTION:舉辦了一場教育網路研討會，以解釋最新的 Erdheim-Chester 病 （ECD） 共識檔，並瞭解如何將其用於護理和付款人支援。會議後回答的問題發佈在這裡。\n錄製於 2020 年 6 月
URL:https://www.erdheim-chester.org/zh-hant/event/%e4%bd%bf%e7%94%a8-ecd-%e5%85%b1%e8%ad%98%e5%bb%ba%e8%ad%b0%ef%bc%9a%e5%ae%a3%e5%b0%8e%e6%82%a8%e7%9a%84%e5%81%a5%e5%ba%b7/
CATEGORIES:網路研討會
ATTACH;FMTTYPE=image/png:https://www.erdheim-chester.org/wp-content/uploads/2025/08/Using-ECD-Consensus-Recommendations-Advocating-for-your-health.png
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