by Steven May Jr | Sep 18, 2025 | News
Erdheim-Chester Disease Global Alliance Announces 2026 Patient & Family Gathering and Medical Symposium Birmingham, AL — The Erdheim-Chester Disease Global Alliance (ECDGA) and UAB School of Medicine invites patients, families, healthcare professionals, and...
by Steven May Jr | Sep 12, 2025 | News
https://www.erdheim-chester.org/wp-content/uploads/2025/09/Realistic_cinematic_video_202509092213_p7lyu.mp4 Ziggy the Zebra is back with a special challenge for Erdheim-Chester Disease Awareness Week—wear your stripes! By putting on stripes this week, you’re showing...
by Steven May Jr | Sep 10, 2025 | News
This Erdheim-Chester Disease Awareness Week, we’re honored to introduce you to Edith and Mike Watters, a remarkable couple whose journey reflects the courage, resilience, and creativity of our community. Edith is living with Erdheim-Chester Disease (ECD), an...
by Steven May Jr | Sep 10, 2025 | News
At the 2025 Erdhem-Chester Disease Medical Symposium in Barcelona, the ECDGA Junior Investigator Award went to Laura Eurelings of Erasmus University Medical Centre, Rotterdam. Her poster, “Anti-IL-6 Therapy in Rare Histiocytic Disorders: Erdheim-Chester and...
by Steven May Jr | Sep 9, 2025 | News
https://www.erdheim-chester.org/wp-content/uploads/2025/09/ECD-2nd-edit.mp4...
