{"id":136777,"date":"2026-06-04T15:49:16","date_gmt":"2026-06-04T20:49:16","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?post_type=tribe_events&#038;p=136777"},"modified":"2026-06-04T16:47:36","modified_gmt":"2026-06-04T21:47:36","slug":"managing-ecd-pain-fatigue","status":"publish","type":"tribe_events","link":"https:\/\/www.erdheim-chester.org\/pt\/event\/managing-ecd-pain-fatigue\/","title":{"rendered":"Topic: Managing ECD Pain &#038; Fatigue"},"content":{"rendered":"<h5>Speaker: Kevin O&#8217;Brien<br \/>\nRN, MS-CRNP, Nurse Practitioner,<br \/>\nClinical Investigator, Genome Research Institute,<br \/>\nNational Institutes of Health<\/h5>\n<p><strong>Date:<\/strong> Thursday, June 25, 2026<br \/>\n<strong>Time:<\/strong> 1:00 PM CDT<\/p>\n<p>Kevin O\u2019Brien is a nurse practitioner and clinical investigator at the National Human Genome Research Institute (NHGRI) of the National Institutes of Health in Bethesda, Maryland. He earned his Bachelor of Science degree from Johns Hopkins University and his Master of Science and Nurse Practitioner degree from the University of Maryland.<\/p>\n<p>Kevin has played a key role in NHGRI clinical research, including protocol 15-HG-0006, a clinical trial investigating dabrafenib and trametinib in BRAF-positive patients with Erdheim-Chester disease (ECD), as well as the Natural History of ECD study. <span class=\"register-here\"><a href=\"https:\/\/us02web.zoom.us\/webinar\/register\/WN_QGgE4DkuSISF3cuI6YeEXw\" target=\"_blank\" rel=\"noopener\">Inscreva-se aqui<\/a><\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>Speaker: Kevin O&#8217;Brien RN, MS-CRNP, Nurse Practitioner, Clinical Investigator, Genome Research Institute, National Institutes of Health Date: Thursday, June 25, 2026 Time: 1:00 PM CDT Kevin O\u2019Brien is a nurse [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":136778,"template":"","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","_tribe_events_status":"","_tribe_events_status_reason":"","_tribe_events_is_hybrid":"","_tribe_events_is_virtual":"","_tribe_events_virtual_video_source":"","_tribe_events_virtual_embed_video":"","_tribe_events_virtual_linked_button_text":"","_tribe_events_virtual_linked_button":"","_tribe_events_virtual_show_embed_at":"","_tribe_events_virtual_show_embed_to":[],"_tribe_events_virtual_show_on_event":"","_tribe_events_virtual_show_on_views":"","_tribe_events_virtual_url":"","wds_primary_tribe_events_cat":0,"footnotes":"","_links_to":"","_links_to_target":""},"tags":[],"tribe_events_cat":[361],"class_list":["post-136777","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry","tribe_events_cat-webinars","cat_webinars"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/tribe_events\/136777","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/tribe_events"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/types\/tribe_events"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/users\/20"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/tribe_events\/136777\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/media\/136778"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/media?parent=136777"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/tags?post=136777"},{"taxonomy":"tribe_events_cat","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/tribe_events_cat?post=136777"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}