{"id":96279,"date":"2025-09-18T07:10:07","date_gmt":"2025-09-18T12:10:07","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=96279"},"modified":"2026-08-19T07:44:24","modified_gmt":"2026-08-19T12:44:24","slug":"ziggy-transmite-uma-mensagem-sincera-de-gratidao-2","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/pt\/ziggy-spreads-a-heartfelt-message-of-gratitude\/","title":{"rendered":"Ziggy transmite uma mensagem sincera de gratid\u00e3o"},"content":{"rendered":"<div style=\"width: 1080px;\" class=\"wp-video\"><video class=\"wp-video-shortcode\" id=\"video-96279-1\" width=\"1080\" height=\"608\" poster=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Thank-You-ECD-video-mp4-image.jpg\" preload=\"metadata\" controls=\"controls\"><source type=\"video\/mp4\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Ziggy-Spreads-a-Heartfelt-Message-of-Gratitude-video.mp4?_=1\" \/><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Ziggy-Spreads-a-Heartfelt-Message-of-Gratitude-video.mp4\">https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Ziggy-Spreads-a-Heartfelt-Message-of-Gratitude-video.mp4<\/a><\/video><\/div>\n<p class=\"p1\">Ziggy, a zebra, a querida mascote da Alian\u00e7a Global contra a Doen\u00e7a de Erdheim-Chester (ECDGA), est\u00e1 aqui com uma mensagem sincera de gratid\u00e3o.<\/p>\n<p class=\"p1\">Aos nossos pacientes, familiares, amigos e profissionais da \u00e1rea m\u00e9dica dedicados \u2014 a for\u00e7a, o apoio e o empenho de voc\u00eas fazem a diferen\u00e7a todos os dias. O envolvimento de voc\u00eas n\u00e3o apenas ajuda, mas tamb\u00e9m inspira outras pessoas em todo o mundo que est\u00e3o enfrentando os desafios da doen\u00e7a de Erdheim-Chester (ECD).<\/p>\n<p class=\"p1\">Na ECDGA, sabemos que ningu\u00e9m deveria enfrentar essa doen\u00e7a rara sozinho. Juntos, estamos promovendo a conscientiza\u00e7\u00e3o, apoiando as fam\u00edlias e impulsionando pesquisas que trazem esperan\u00e7a \u00e0 comunidade ECD.<\/p>\n<p class=\"p1\">Compartilhe este v\u00eddeo para ajudar a conscientizar as pessoas.<\/p>\n<p class=\"p1\">Curta, comente e inscreva-se para ficar por dentro das novidades da comunidade ECD.<\/p>\n<p class=\"p1\">Cada a\u00e7\u00e3o, cada voz e cada demonstra\u00e7\u00e3o de apoio geram ondas de esperan\u00e7a. Obrigado por fazer parte dessa jornada.<\/p>","protected":false},"excerpt":{"rendered":"<p>Ziggy the Zebra, the beloved mascot of the Erdheim-Chester Disease Global Alliance (ECDGA), is here with a heartfelt message of gratitude. To our patients, families, friends, and dedicated medical professionals\u2014your [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":175306,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[4365,2252,374,3284,4361,4367,4360,4362,376,3844,4364,4368,4366,2402,4359,4363,4358],"class_list":["post-96279","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-awarenessmatters","tag-erdheimchester","tag-erdheimchesterdisease","tag-globalawareness","tag-hopeandcommunity","tag-joinourherd","tag-nonprofitlife","tag-patientvoices","tag-raredisease","tag-rarediseaseawareness","tag-spreadhope","tag-storytellingforchange","tag-tealpower","tag-teamecdga","tag-teamziggy","tag-unitedforecd","tag-ziggythezebra"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/96279","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/comments?post=96279"}],"version-history":[{"count":2,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/96279\/revisions"}],"predecessor-version":[{"id":175307,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/96279\/revisions\/175307"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/media\/175306"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/media?parent=96279"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/categories?post=96279"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/tags?post=96279"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}