{"id":46510,"date":"2025-03-21T16:06:07","date_gmt":"2025-03-21T20:06:07","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=46510"},"modified":"2025-08-23T17:13:20","modified_gmt":"2025-08-23T21:13:20","slug":"a-mission-of-hope-how-ecdga-supports-patients-research","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/pt\/a-mission-of-hope-how-ecdga-supports-patients-research\/","title":{"rendered":"Uma Miss\u00e3o de Esperan\u00e7a: Como a ECDGA apoia pacientes e a pesquisa"},"content":{"rendered":"<p>For over 15 years, the\u00a0<strong>Alian\u00e7a Global para a Doen\u00e7a de Erdheim-Chester (ECDGA)<\/strong>\u00a0has been a beacon of hope for patients, families, and researchers dedicated to understanding and treating Erdheim-Chester Disease (ECD). Since our founding in 2009, we have supported\u00a0<strong>more than 1,000 families worldwide<\/strong>, funded groundbreaking research initiatives, and built a global community united by one mission: advancing awareness, education, and research for ECD.<\/p>\n<p>Our work is fueled by the passion and commitment of\u00a0<strong>patients, caregivers, doctors, researchers, donors, and volunteers<\/strong>\u00a0who refuse to let rare disease challenges go unanswered. The ECD community has come together to drive\u00a0significant progress in\u00a0<b>genetic discoveries, new treatment options, and patient care improvements<\/b>\u2014but there is still more to be done.<\/p>\n<p>Every step forward is made possible by the dedication of those who get involved. Whether you contribute through\u00a0<strong>donations, volunteering, advocacy, or simply spreading awareness<\/strong>, you play a vital role in shaping the future of ECD research and support.<\/p>\n<p>Join us in making a difference.\u00a0<strong>Together, we are stronger.<\/strong><\/p>\n<p><strong>Learn how you can help:<\/strong>\u00a0<a href=\"https:\/\/www.erdheim-chester.org\/pt\/volunteer\/\" target=\"_new\" rel=\"noopener\">Get Involved<\/a><\/p>","protected":false},"excerpt":{"rendered":"<p>For over 15 years, the\u00a0Erdheim-Chester Disease Global Alliance (ECDGA)\u00a0has been a beacon of hope for patients, families, and researchers dedicated to understanding and treating Erdheim-Chester Disease (ECD). Since our founding [&hellip;]<\/p>\n","protected":false},"author":20,"featured_media":46511,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[],"class_list":["post-46510","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/46510","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/comments?post=46510"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/46510\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/media\/46511"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/media?parent=46510"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/categories?post=46510"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/tags?post=46510"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}