The following link is to the protocol for an ECD study as announced by Dr. Augusto Vaglio of the University of Parma in Italy. ECD patients are invited to participate by sending in medical records. The study aims to gather medical records for 120 ECD patients and then analyze them to expand the knowledge on Erdheim-Chester Disease. The goal of the study is to allow earlier diagnosis, better classification of the different disease forms, and improved prediction of the patient prognosis.<\/p>\n
Essa \u00e9 uma oportunidade para cada paciente contribuir para a busca por mais conhecimento sobre essa doen\u00e7a. \u00c9 algo que cada paciente pode fazer para ajudar nossa causa.<\/p>\n
Por favor, leia as informa\u00e7\u00f5es em anexo. Caso deseje participar do estudo, voc\u00ea precisar\u00e1 enviar seus registros m\u00e9dicos, conforme definido no documento vinculado, \u201cLista de verifica\u00e7\u00e3o dos itens a serem enviados\u201d, para o consult\u00f3rio do Dr. Vaglio na It\u00e1lia ou para a ECD Global Alliance, que, por sua vez, os encaminhar\u00e1 ao Dr. Vaglio. Caso voc\u00ea os envie diretamente ao Dr. Vaglio, POR FAVOR, guarde uma c\u00f3pia de tudo o que enviar, pois esperamos que mais estudos sejam iniciados em breve e eles possam precisar dos mesmos registros.<\/p>\n
Lista de verifica\u00e7\u00e3o dos itens a serem enviados<\/a> The following link is to the protocol for an ECD study as announced by Dr. Augusto Vaglio of the University of Parma in Italy. ECD patients are invited to participate […]<\/p>\n","protected":false},"author":20,"featured_media":174698,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[],"class_list":["post-30219","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/30219","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/comments?post=30219"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/30219\/revisions"}],"predecessor-version":[{"id":174726,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/30219\/revisions\/174726"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/media\/174698"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/media?parent=30219"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/categories?post=30219"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/tags?post=30219"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
\nTermo de Consentimento<\/a>
\nProtocolo<\/a>
\nComo obter seus prontu\u00e1rios m\u00e9dicos<\/a><\/p>","protected":false},"excerpt":{"rendered":"