{"id":20009,"date":"2021-12-16T10:55:16","date_gmt":"2021-12-16T16:55:16","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-staging\/?p=20009"},"modified":"2026-08-19T06:21:47","modified_gmt":"2026-08-19T11:21:47","slug":"noticias-de-fim-de-ano-de-2","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/pt\/2021-year-end-news\/","title":{"rendered":"Not\u00edcias de fim de ano de 2021"},"content":{"rendered":"<h2>Um novo ano de esperan\u00e7a se aproxima para a comunidade do ECD!<\/h2>\n<p><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/08\/2021-Year-End-Newsletter-online.pdf\">Veja o boletim informativo de fim de ano de 2021.<\/a><\/p>\n<p>A ECD Global Alliance est\u00e1 alcan\u00e7ando novos n\u00edveis de apoio \u00e0s pessoas que lutam contra a doen\u00e7a de Erdheim-Chester por meio de uma campanha de doa\u00e7\u00f5es com contrapartida realizada por meio de<strong> 31 de dezembro de 2021<\/strong>!\u00a0 Thanks to an <strong>$80.000 doa\u00e7\u00e3o equiparada<\/strong> gra\u00e7as a um grupo de generosos membros do Conselho da ECDGA e benfeitores \u2013 o impacto de sua contribui\u00e7\u00e3o em nosso trabalho essencial ser\u00e1 o DOBRO.<\/p>\n<p>Com a sua doa\u00e7\u00e3o, podemos construir um futuro melhor para todas as pessoas afetadas pelo ECD. Fa\u00e7a uma doa\u00e7\u00e3o hoje mesmo para fortalecer nosso trabalho no pr\u00f3ximo ano\u2026 e saiba que voc\u00ea estar\u00e1 fazendo o dobro de bem! \u00a0<strong><a href=\"https:\/\/www.erdheim-chester.org\/pt\/donate-2\/\">Duplique sua doa\u00e7\u00e3o hoje mesmo!<\/a>\u00a0<\/strong><\/p>\n<p>O que sua doa\u00e7\u00e3o proporciona:<\/p>\n<ul>\n<li><strong>Pesquisa \u2013 <\/strong>O financiamento de pesquisas sobre a doen\u00e7a de Erdheim-Chester est\u00e1 no centro da nossa miss\u00e3o. O Pr\u00eamio de Bolsa de Pesquisa ECD 2021 ser\u00e1 anunciado em breve!<\/li>\n<li><strong>Educa\u00e7\u00e3o \u2013 <\/strong>A forma\u00e7\u00e3o dos m\u00e9dicos \u00e9 realizada por meio de confer\u00eancias internacionais, webinars on-line, atividades de extens\u00e3o em especialidades m\u00e9dicas e muito mais.<\/li>\n<li><strong>Suporte \u2013 <\/strong>Ser capaz de oferecer aos pacientes e suas fam\u00edlias as ferramentas e os contatos de que precisam para defenderem seus pr\u00f3prios interesses \u00e9 inestim\u00e1vel. Suas doa\u00e7\u00f5es n\u00e3o apenas ajudam nossa comunidade de doen\u00e7as raras a prosperar. Suas contribui\u00e7\u00f5es tamb\u00e9m fornecem recursos para pesquisas que contribuem para os avan\u00e7os na \u00e1rea do c\u00e2ncer em toda a ci\u00eancia.<\/li>\n<\/ul>\n<div id=\"attachment_175267\" style=\"width: 235px\" class=\"wp-caption alignright\"><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/12\/Noah-Barone-3-225x300-1.jpg\"><img loading=\"lazy\" decoding=\"async\" aria-describedby=\"caption-attachment-175267\" class=\"wp-image-175267 size-full\" src=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/12\/Noah-Barone-3-225x300-1.jpg\" alt=\"\" width=\"225\" height=\"300\" srcset=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/12\/Noah-Barone-3-225x300-1.jpg 225w, https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/12\/Noah-Barone-3-225x300-1-9x12.jpg 9w\" sizes=\"(max-width: 225px) 100vw, 225px\" \/><\/a><p id=\"caption-attachment-175267\" class=\"wp-caption-text\">Noah est\u00e1 pronto para as festas de fim de ano! Leia a mat\u00e9ria sobre ele no ECD, dentro do boletim informativo.<\/p><\/div>\n<h2>Conecte-se em 2022<\/h2>\n<p>Over the last two years, the ECD Global Alliance adjusted to the new norms of distancing and travel bans with more online connections.\u00a0 The Annual Patient &amp; Family Gathering was put on hold during this time, making the July 2019 event the last time our ECD family was able to join face-to-face.\u00a0We will continue to press forward with online connections for those that still cannot travel, but will also be offering a live meeting April 7-8, 2022!\u00a0 <a title=\"Reuni\u00e3o Anual de Pacientes\" href=\"https:\/\/www.erdheim-chester.org\/pt\/encontro-de-familiares-de-pacientes-com-ecd\/\">Saiba mais sobre este evento aqui.<\/a><\/p>\n<p>As we reflect on the trials and triumphs of our community members, we want to thank the supporters that come through for those fighting every single day.\u00a0 Your support is not just about your loved one, but about the future for all families faced with Erdheim-Chester Disease.\u00a0 Your provisions have come in all forms, and we appreciate everything you do!<\/p>\n<h3><a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/12\/2021-Year-End-Newsletter-online.pdf\">Leia mais sobre as novidades em nosso boletim informativo de fim de ano!<\/a><\/h3>\n<p>&nbsp;<\/p>","protected":false},"excerpt":{"rendered":"<p>A new year of hope is on the horizon for the ECD community! View the 2021 Year-End Newsletter. The ECD Global Alliance is reaching new levels of support for those [&hellip;]<\/p>\n","protected":false},"author":14,"featured_media":20008,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[67,51,70],"tags":[55,101,83,58,56,103,57,122,168,82,52],"class_list":["post-20009","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-community-support","category-news","category-research-awareness","tag-advocacy","tag-awareness","tag-blood-cancer","tag-diabetes-insipidus","tag-erdheim-chester","tag-fundraiser","tag-hairy-kidney","tag-histio","tag-matching-gift","tag-rare-cancer","tag-rare-disease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/20009","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/comments?post=20009"}],"version-history":[{"count":2,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/20009\/revisions"}],"predecessor-version":[{"id":175268,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/20009\/revisions\/175268"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/media\/20008"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/media?parent=20009"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/categories?post=20009"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/tags?post=20009"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}