#Compartilhar\u00c9Fundamental #Conscientiza\u00e7\u00e3oSobreECD #SemanaDeConscientiza\u00e7\u00e3o<\/p>\n
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A ECD Global Alliance est\u00e1 organizando sua 7\u00aa Semana Anual de Conscientiza\u00e7\u00e3o sobre a Doen\u00e7a de Erdheim-Chester! Junte-se \u00e0 nossa comunidade para ajudar a divulgar essa doen\u00e7a ultrarara, a ECD, de hoje at\u00e9 18 de setembro de 2021.<\/p>\n
Por favor, considere ajudar nossa equipe a divulgar informa\u00e7\u00f5es sobre a doen\u00e7a de Erdheim-Chester para outras pessoas. The voice of our supporters is essential to reducing the time it takes\u00a0to find a diagnosis for this rare disorder.<\/strong><\/p>\n <\/p>\n Compartilhar\u00a0<\/strong>nossas publica\u00e7\u00f5es nas redes sociais e suas pr\u00f3prias iniciativas de conscientiza\u00e7\u00e3o nas suas p\u00e1ginas nas redes sociais, usando hashtags para obter mais visibilidade! Marque a gente para que possamos ver suas postagens!<\/strong><\/p>\n Facebook: @ErdheimChesterDisease<\/p>\n Instagram: @erdheim_chester<\/p>\n Twitter:\u00a0@ECDGA<\/p>\n Desgaste\u00a0<\/strong>your ECD gear or ribbon and send us a photo. Consider adding a quote on why awareness is important to you and your family.\u00a0 These images and quotes will be placed on the above media pages for more exposure.<\/p>\n Publique ou imprima este folheto de conscientiza\u00e7\u00e3o sobre a ECD e distribua-o para sua fam\u00edlia, amigos e equipes m\u00e9dicas.\u00a0\u00a0Folheto de conscientiza\u00e7\u00e3o<\/a><\/p>\n Compartilhe esta grava\u00e7\u00e3o do webinar educacional com seus colegas que trabalham com doen\u00e7as histioc\u00edticas.\u00a0\u00a0Grava\u00e7\u00e3o do webinar<\/a><\/p>\n Sugira o uso de nossos folhetos informativos em seu centro m\u00e9dico.\u00a0\u00a0Solicita\u00e7\u00e3o de folheto<\/a><\/p>\n Convide sua equipe m\u00e9dica a se cadastrar na ECD Global Alliance para que possam se manter informados.\u00a0\u00a0Formul\u00e1rio de Inscri\u00e7\u00e3o<\/a><\/p>\n <\/p>\n <\/p>\n Nossa presidente e cofundadora, Kathy Brewer, participou de um podcast sobre conscientiza\u00e7\u00e3o ao lado do Dr. Gaurav Goyal, da Associa\u00e7\u00e3o de Histiocitose e da Associa\u00e7\u00e3o Canadense de Histiocitose! O painel compartilha suas experi\u00eancias marcantes com doen\u00e7as raras, comprovando a import\u00e2ncia da conscientiza\u00e7\u00e3o.\u00a0 Ou\u00e7a agora<\/a><\/p>\n Como sempre, obrigado por nos ajudar a divulgar a doen\u00e7a de Erdheim-Chester. Nossa comunidade agradece imensamente seus esfor\u00e7os!<\/p>\n Com gratid\u00e3o,<\/p>\n Diretor Executivo da ECD Global Alliance Erdheim-Chester Disease Awareness Week September 13 – 18, 2021 #SharingIsKey #ECDawareness #AwarenessWeek The ECD Global Alliance is hosting its 7th Annual Erdheim-Chester Disease Awareness Week! Join our community […]<\/p>\n","protected":false},"author":14,"featured_media":19753,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[51,70],"tags":[101,83,54,59,58,56,57,122,123,98,99,124,82,52],"class_list":["post-19752","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","category-research-awareness","tag-awareness","tag-blood-cancer","tag-blood-disorder","tag-bone-pain","tag-diabetes-insipidus","tag-erdheim-chester","tag-hairy-kidney","tag-histio","tag-histio-warrior","tag-isolation","tag-lifestyle","tag-podcast","tag-rare-cancer","tag-rare-disease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/19752","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/comments?post=19752"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/19752\/revisions"}],"predecessor-version":[{"id":175283,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/19752\/revisions\/175283"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/media\/19753"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/media?parent=19752"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/categories?post=19752"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/tags?post=19752"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}Sharing\u00a0is Key!<\/h3>\n
\n#ErdheimChester\u00a0 #SharingIsKey\u00a0 #AwarenessWeek\u00a0\u00a0#ECDawareness\u00a0 #Histio\u00a0 #endECD<\/p>\n![\"\"](\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/09\/2021-AW-General-Flyer-232x300-1.png\")
<\/a><\/p>\nV\u00e1 al\u00e9m!<\/h3>\n
Hist\u00f3ria de um novo paciente!<\/h3>\n
O tempo \u00e9 essencial<\/a><\/h3>\n
Aprenda com os especialistas neste podcast!<\/h3>\n
\nJessica Corkran<\/em><\/p>","protected":false},"excerpt":{"rendered":"