{"id":176056,"date":"2026-08-29T12:59:52","date_gmt":"2026-08-29T17:59:52","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=176056"},"modified":"2026-09-28T10:01:29","modified_gmt":"2026-09-28T15:01:29","slug":"as-familias-tambem-percorrem-essa-jornada","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/pt\/families-walk-this-journey-too\/","title":{"rendered":"As fam\u00edlias tamb\u00e9m percorrem essa jornada"},"content":{"rendered":"<p>A ECD n\u00e3o afeta apenas a pessoa que recebe o diagn\u00f3stico.<\/p>\n<p>As fam\u00edlias passam a acompanhar os pacientes nas consultas, a atuar como pesquisadoras, organizadoras, defensoras, ouvintes e fontes de for\u00e7a, ao mesmo tempo em que lidam com suas pr\u00f3prias d\u00favidas e incertezas. \u00c0s vezes, a fam\u00edlia inclui amigos, vizinhos ou outros membros da comunidade.<\/p>\n<p><strong>As fam\u00edlias tamb\u00e9m fazem parte da jornada do Desenvolvimento Infantil na Primeira Inf\u00e2ncia (ECD).<\/strong><\/p>\n<p><strong>Entre em a\u00e7\u00e3o:<\/strong> Agrade\u00e7a a um membro da fam\u00edlia que tenha percorrido essa jornada ao seu lado ou compartilhe esta publica\u00e7\u00e3o para homenagear as fam\u00edlias do ECD em todos os lugares.<\/p>","protected":false},"excerpt":{"rendered":"<p>ECD affects more than the person who receives the diagnosis. Families become appointment companions, researchers, organizers, advocates, listeners, and sources of strength while navigating their own questions and uncertainty. \u00a0Sometimes [&hellip;]<\/p>\n","protected":false},"author":27,"featured_media":176057,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[378,6185,387,2252,6154,376],"class_list":["post-176056","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecdcommunity","tag-ecdfamilies","tag-ecdga","tag-erdheimchester","tag-knowecd","tag-raredisease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/176056","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/comments?post=176056"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/176056\/revisions"}],"predecessor-version":[{"id":176086,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/176056\/revisions\/176086"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/media\/176057"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/media?parent=176056"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/categories?post=176056"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/tags?post=176056"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}