{"id":162802,"date":"2026-06-25T14:03:41","date_gmt":"2026-06-25T19:03:41","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=162802"},"modified":"2026-06-25T14:03:41","modified_gmt":"2026-06-25T19:03:41","slug":"uma-mensagem-para-nossa-comunidade","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/pt\/a-message-to-our-community\/","title":{"rendered":"Uma mensagem \u00e0 nossa comunidade"},"content":{"rendered":"

Quando algu\u00e9m ouve as palavras \u201cVoc\u00ea tem a doen\u00e7a de Erdheim-Chester\u201d, muitas vezes fica com mais perguntas do que respostas.<\/p>\n

    \n
  1. Onde posso encontrar informa\u00e7\u00f5es?<\/li>\n
  2. Quem pode me ajudar a entender essa doen\u00e7a?<\/li>\n
  3. Quais s\u00e3o as op\u00e7\u00f5es de tratamento dispon\u00edveis?<\/li>\n
  4. Como posso encontrar outras pessoas que tenham essa doen\u00e7a?<\/li>\n<\/ol>\n

    A ECDGA ajuda a esclarecer essas d\u00favidas todos os dias.<\/p>\n

    Apoie os pacientes e suas fam\u00edlias fazendo hoje mesmo uma doa\u00e7\u00e3o com contrapartida.<\/p>\n

    Estamos muito perto de atingir nossa meta do Desafio de Contrapartida de $10.000,00. J\u00e1 arrecadamos $7.261,00. Ajude-nos a alcan\u00e7ar essa contrapartida antes de 30 de junho.<\/p>\n

    Fa\u00e7a uma doa\u00e7\u00e3o aqui<\/a><\/span><\/p>","protected":false},"excerpt":{"rendered":"

    When someone hears the words “You have Erdheim-Chester Disease,” they often have more questions than answers. Where do I find information? Who can help me understand this disease? What treatment […]<\/p>\n","protected":false},"author":27,"featured_media":162987,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[51],"tags":[387,2252,5985,376],"class_list":["post-162802","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-news","tag-ecdga","tag-erdheimchester","tag-funrun","tag-raredisease"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/162802","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/users\/27"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/comments?post=162802"}],"version-history":[{"count":2,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/162802\/revisions"}],"predecessor-version":[{"id":162986,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/162802\/revisions\/162986"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/media\/162987"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/media?parent=162802"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/categories?post=162802"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/tags?post=162802"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}