{"id":132097,"date":"2024-04-14T14:59:02","date_gmt":"2024-04-14T19:59:02","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=132097"},"modified":"2026-07-10T11:53:46","modified_gmt":"2026-07-10T16:53:46","slug":"9th-annual-ecd-medical-symposium-seattle-wa","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/pt\/9th-annual-ecd-medical-symposium-seattle-wa\/","title":{"rendered":"9th Annual ECD Medical Symposium Seattle, WA"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”20px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||10px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.6″ _dynamic_attributes=”title” _module_preset=”default” custom_margin=”||0px||false|false” custom_padding=”||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_button button_text=”Paul Hendrie, MD, PhD” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”Fred Hutch Cancer Center & UW Medicine” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||900″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”Seattle, WA USA” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||divi||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][et_pb_button button_text=”April 14, 2024″ _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”60%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/07\/9th-ms.png” title_text=”9th ms” align=”center” force_fullwidth=”on” module_class=”past-event-image” _builder_version=”4.27.7″ _module_preset=”default” hover_enabled=”0″ border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}” theme_builder_area=”post_content” custom_margin=”||10px||false|false” sticky_enabled=”0″][\/et_pb_image][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” text_font_size=”14px” text_line_height=”-0.1em” text_orientation=”center” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n

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\u00a0Symposium Attendees Seattle Group Picture 2024<\/p>\n<\/div>\n<\/div>\n

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Symposium Summary<\/h2>\n

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Approximately 42 medical professionals from 10 countries attended the 2024 Annual ECD Medical Symposium. 18 oral abstracts were presented, along with an additional 5 poster presentations. As invited speakers, Gordon Starkebaum, MD, delivered a talk titled \u201cHistory of Erdheim-Chester Disease,\u201d and Veen Shankaran, MD, presented a talk on \u201cAddressing Financial Barriers to Oncologic Care.\u201d An evening reception provided time for discussions supporting current and future collaborations among this highly knowledgeable group of physicians and scientists, all interested in learning more about Erdheim-Chester Disease.<\/p>\n

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Programs with Symposium Agenda<\/h2>\n

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Agenda<\/h2>\n

[\/et_pb_text][et_pb_text module_class=”event-table” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Presentation Slides<\/th>Video<\/th>\n<\/tr>\n<\/thead>\n
Paul C. Hendrie<\/td>Opening Remarks and Welcome <\/td>No video <\/td>\n<\/tr>\n
Gordon A. Starkebaum<\/td>History of Erdheim-Chester Disease<\/a><\/td>No video <\/td>\n<\/tr>\n
David Pottinger<\/td>Patient Reported Health-Related Quality of Life among Individuals with Histiocytic Neoplasms: Results from an expanded cohort and longitudinal assessment<\/a><\/td>No video <\/td>\n<\/tr>\n
Francesco Pegoraro<\/td>Long-term outcome and prognosis of 69 patients with mixed ECD and LCH<\/a><\/td>No video <\/td>\n<\/tr>\n
Julien Haroche<\/td>Cluster Analysis Unveils the Clinical Spectrum of Erdheim-Chester Disease<\/a><\/td>No video <\/td>\n<\/tr>\n
Francesco Pegoraro<\/td>Pediatric ECD: clinical characterization and long-term outcome of 24 cases<\/a><\/td>No video <\/td>\n<\/tr>\n
Veena\u00a0Shankaran<\/td>Addressing Financial Barriers to Oncologic Care<\/td>No video <\/td>\n<\/tr>\n
Jithma\u00a0Abeykoon<\/td>Outcomes of Histiocytic Neoplasms Treated with Selinexor and Choline Salicylate<\/a><\/td>No video <\/td>\n<\/tr>\n
Eli Diamond<\/td>Mirdametinib\u00a0for tumorous and neurodegenerative histiocytosis<\/a><\/td>No video <\/td>\n<\/tr>\n
Adam Kessel<\/td>Local Disease Control in Patients with\u00a0Erdheim-Chester Disease treated with External Beam Radiation Therapy<\/a><\/td>No video <\/td>\n<\/tr>\n
Brinda Shukla<\/td>Patterns of Research Publications in\u00a0ECD: A Call for Collaborative Efforts<\/a><\/td>No video <\/td>\n<\/tr>\n
Fatemeh (Mina)\u00a0Dehghani\u00a0Firouzabadi<\/td>Central Nervous System Involvement in\u00a0Erdheim-Chester Disease: A Prospective Magnetic Resonance Imaging Study<\/a><\/td>No video <\/td>\n<\/tr>\n
Jerome Razanamahery<\/td>CSF neopterin and inflammatory cytokines in\u00a0neurohistiocytosis<\/a><\/td>No video <\/td>\n<\/tr>\n
W. Oliver Tobin<\/td>Central Nervous System Crystal-Storing Histiocytosis<\/td>No video <\/td>\n<\/tr>\n
Benjamin Durham<\/td>ARAF Mutations Drive Histiocytic Neoplasms In Vivo and Provide Insights into Cellular Origin<\/a><\/td>No video <\/td>\n<\/tr>\n
Oshrat\u00a0Hershkovitz-Rokah<\/td>The Effect of Methylation on the\u00a0let-7-BCL2L1-BCL2 Axis and the Potential Use of BH3 Mimetic Drugs in Histiocytic Neoplasms<\/a><\/td>No video <\/td>\n<\/tr>\n
Mitali\u00a0Sen<\/td>A Multi-Center Study of Autoimmunity in Rosai Dorfman Disease<\/a><\/td>No video <\/td>\n<\/tr>\n
Alma\u00a0Oskarsdottir<\/td>Unique Cytoplasmic Pattern of Cyclin D1 Immunostaining Distinguishes\u00a0Erdheim-Chester Disease with MAPK Pathway Mutations from Reactive Histiocytic Infiltrates<\/a><\/td>No video <\/td>\n<\/tr>\n
Vyshnavi\u00a0Rallapalle<\/td>Systemic\u00a0Xanthogranuloma\u00a0or\u00a0Erdheim-Chester Disease: Time to revisit the nomenclature?<\/a><\/td>No video <\/td>\n<\/tr>\n
Fatemeh\u00a0Dehghani\u00a0Firouzabadi<\/td>Orbital Involvement in Erdheim\u2013Chester disease<\/a><\/td>No video <\/td>\n<\/tr>\n
Astrid van Halteren<\/td>Histological evidence of MAPK pathway activation across all subtypes of adult orbital\u00a0xanthogranulomatous\u00a0disease irrespective of the presence of pathologic mutations<\/a><\/td>No video <\/td>\n<\/tr>\n
Paul C. Hendrie<\/td>Closing Remarks and Future Plans<\/td>No video <\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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Photographs<\/h2>\n

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Medical Symposium<\/h3>\n

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Medical Reception<\/h3>\n

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Care Center Meeting<\/h3>\n

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\u00a0Symposium Attendees Seattle Group Picture 2024 Symposium SummaryApproximately 42 medical professionals from 10 countries attended the 2024 Annual ECD Medical Symposium. 18 oral abstracts were presented, along with an additional […]<\/p>\n","protected":false},"author":20,"featured_media":172589,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4815],"tags":[],"class_list":["post-132097","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-medical-symposium"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/132097","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/comments?post=132097"}],"version-history":[{"count":4,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/132097\/revisions"}],"predecessor-version":[{"id":174017,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/posts\/132097\/revisions\/174017"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/media\/172589"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/media?parent=132097"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/categories?post=132097"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt\/wp-json\/wp\/v2\/tags?post=132097"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}