![\"\"](\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2020\/10\/ECD-Champion-X-Background.png\")
<\/a>The ECD Global Alliance is committed to including the thoughts and knowledge of the ECD community in the development of programs, materials, and research for people with ECD and their families.<\/p>\nThe ECDGA Champions is our go-to group for opinions and feedback on a variety of ECD topics. Members can participate at the level that suits them best. Additional opportunities may come up for members to apply to fill essential roles within committees and participate in other projects.<\/p>\n
By signing up to be a member of the ECDGA Champions, you allow us to contact you for future opportunities \u2014 you can always say no if the timing isn’t right for you or if you already have too much on your plate.<\/a><\/p>\n [\/et_pb_text][et_pb_button button_url=”https:\/\/www.erdheim-chester.org\/volunteer\/” button_text=”Volunteer” _builder_version=”4.27.4″ _module_preset=”default” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ theme_builder_area=”post_content” _builder_version=”4.27.4″ _module_preset=”default” background_color=”#F2F2F2″ hover_enabled=”0″ sticky_enabled=”0″][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” theme_builder_area=”post_content” column_structure=”1_3,1_3,1_3″ make_equal=”on” hover_enabled=”0″ sticky_enabled=”0″][et_pb_column _builder_version=”4.27.4″ _module_preset=”default” type=”1_3″ theme_builder_area=”post_content” background_color=”#FFFFFF” custom_padding=”30px|30px|30px|30px|true|true” border_radii=”on|20px|20px|20px|20px” hover_enabled=”0″ sticky_enabled=”0″][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” hover_enabled=”0″ global_colors_info=”{}” custom_margin=”||8px|||” theme_builder_area=”post_content” sticky_enabled=”0″]<\/p>\n ECDGA Champions include people with Erdheim-Chester Disease and their family members. This group directly impacts programs and initiatives for the community by sharing their experiences and insights with the ECD Global Alliance.<\/p>\n Because each person’s experience is unique, it is critical to hear from as many people as possible. Whether filling out a survey or participating in a focus group or committee, Champion members are helping to shape efforts for the entire ECD community.<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column _builder_version=”4.27.4″ _module_preset=”default” type=”1_3″ theme_builder_area=”post_content” background_color=”#FFFFFF” custom_padding=”30px|30px|30px|30px|true|true” border_radii=”on|20px|20px|20px|20px” hover_enabled=”0″ sticky_enabled=”0″][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” hover_enabled=”0″ global_colors_info=”{}” custom_margin=”||8px|||” theme_builder_area=”post_content” sticky_enabled=”0″]<\/p>\n Any individual ages 16 or older who has ECD or is a family member of a person with ECD can sign up to be a part of the ECDGA Champions.<\/p>\n After filling out a short registration form, you will receive regular requests via email to share your perspective and thoughts in surveys. Additional opportunities will be available as well, such as participation in focus groups, committees, and working groups.<\/p>\n The best part? It’s a no-pressure way to get involved. You choose how much, or how little, you want to be involved.<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column _builder_version=”4.27.4″ _module_preset=”default” type=”1_3″ theme_builder_area=”post_content” background_color=”#FFFFFF” custom_padding=”30px|30px|30px|30px|true|true” border_radii=”on|20px|20px|20px|20px” hover_enabled=”0″ sticky_enabled=”0″][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” hover_enabled=”0″ global_colors_info=”{}” custom_margin=”||8px|||” theme_builder_area=”post_content” sticky_enabled=”0″]<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” hover_enabled=”0″ global_colors_info=”{}” theme_builder_area=”post_content” custom_padding=”0px||||false|false” sticky_enabled=”0″][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][et_pb_button button_url=”https:\/\/www.erdheim-chester.org\/contact-us\/” button_text=”Contact Us” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}” theme_builder_area=”post_content”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":" [et_pb_dmb_breadcrumbs _builder_version=”4.27.4″ _module_preset=”default” body_text_color=”#FFFFFF” link_text_color=”#35A4BB” custom_margin=”||5px||false|false” custom_padding=”||0px||false|false” global_colors_info=”{}”][\/et_pb_dmb_breadcrumbs]The ECD Global Alliance is committed to including the thoughts and knowledge of the ECD community in the development of programs, materials, and […]<\/p>\n","protected":false},"author":14,"featured_media":19414,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":" VOLUNTEER<\/a><\/p>\r\n \r\nWhat is an ECDGA Champion<\/em>?<\/h3>\n
What does membership look like?<\/h3>\n
How does joining benefit you?<\/h3>\n
\n
<\/a>The ECD Global Alliance is committed to including the thoughts and knowledge of the ECD community in the development of programs, materials, and research for people with ECD and their families.\r\n\r\nThe ECDGA Champions is our go-to group for opinions and feedback on a variety of ECD topics. Members can participate at the level that suits them best. Additional opportunities may come up for members to apply to fill essential roles within committees and participate in other projects.\r\n\r\nBy signing up to be a member of the ECDGA Champions, you allow us to contact you for future opportunities \u2014 you can always say no if the timing isn't right for you or if you already have too much on your plate.\r\nWhat is an ECDGA Champion<\/em>?<\/h3>\r\nECDGA Champions include people with Erdheim-Chester Disease and their family members. This group directly impacts programs and initiatives for the community by sharing their experiences and insights with the ECD Global Alliance.\r\n\r\nBecause each person's experience is unique, it is critical to hear from as many people as possible. Whether filling out a survey or participating in a focus group or committee, Champion members are helping to shape efforts for the entire ECD community.\r\n
What does membership look like?<\/h3>\r\nAny individual ages 16 or older who has ECD or is a family member of a person with ECD can sign up to be a part of the ECDGA Champions.\r\n\r\nAfter filling out a short registration form, you will receive regular requests via email to share your perspective and thoughts in surveys. Additional opportunities will be available as well, such as participation in focus groups, committees, and working groups.\r\n\r\nThe best part? It's a no-pressure way to get involved. You choose how much, or how little, you want to be involved.\r\n
How does joining benefit you?<\/h3>\r\n
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