[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”20px||0px||false|false” locked=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||10px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||0px||false|false” custom_padding=”||0px||false|false” hover_enabled=”0″ global_colors_info=”{}” _dynamic_attributes=”title” sticky_enabled=”0″][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_button button_text=”Lorenzo Dagna, MD, FACP” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_text=”Instituto Cient\u00edfico IRCCS San Raffaele” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||900″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_text=”Mil\u00e3o, It\u00e1lia” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||divi||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_text=”12 de julho de 2019″ _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2017\/01\/BW-Family.jpg” title_text=”Fam\u00edlia P&B” align=”center” force_fullwidth=”on” module_class=”event-image” _builder_version=”4.27.6″ _module_preset=”default” border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” text_font_size=”14px” text_line_height=”-0.1em” text_orientation=”center” global_colors_info=”{}”]<\/p>\n
Foto de Grupo do Encontro Internacional de Pacientes e Familiares de ECD em Mil\u00e3o 2019<\/p>\n<\/div>\n<\/div>\n
[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.5″ _module_preset=”default” custom_padding=”0px||||false|false” locked=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”10px||||false|false” global_colors_info=”{}” width__hover_enabled=”off|desktop”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}”]<\/p>\n
[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n
Todos os pacientes e entes queridos interessados em saber mais sobre a ECD<\/a> e conhecer outras fam\u00edlias s\u00e3o encorajados a participar dos seguintes eventos<\/a>. A taxa de inscri\u00e7\u00e3o para o evento de 2 dias inclui acesso a todas as sess\u00f5es da confer\u00eancia, jantar de recep\u00e7\u00e3o, bem como almo\u00e7o e lanches leves durante os intervalos da confer\u00eancia. Os seguintes hor\u00e1rios de reuni\u00e3o est\u00e3o sujeitos a altera\u00e7\u00f5es. <\/p>\n O Hotel Rafael \u00e9 o local recomendado para sua hospedagem durante o evento. Este hotel est\u00e1 convenientemente localizado do outro lado do p\u00e1tio em rela\u00e7\u00e3o aos espa\u00e7os de reuni\u00e3o do hospital. N\u00e3o h\u00e1 bloco de quartos contratado pela ECDGA para este hotel; portanto, recomendamos reservar seu quarto o quanto antes para garantir a disponibilidade. Acesse o site do hotel para obter mais informa\u00e7\u00f5es e fazer uma reserva<\/a>. <\/p>\n Todos os eventos<\/a> ser\u00e3o realizados no<\/strong> [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” locked=”off” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”]As seguintes apresenta\u00e7\u00f5es foram adicionadas na esperan\u00e7a de que ajudem pacientes, fam\u00edlias e m\u00e9dicos interessados em aprender mais sobre a ECD<\/a>. A ECDGA agradece os esfor\u00e7os e contribui\u00e7\u00f5es feitos pela comunidade m\u00e9dica para melhorar o atendimento aos pacientes com ECD.[\/et_pb_text][et_pb_text module_class=”event-table” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”]\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_2,1_2″ _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n \u201cFoi incr\u00edvel testemunhar a dedica\u00e7\u00e3o e o empenho que esses m\u00e9dicos demonstraram em rela\u00e7\u00e3o ao diagn\u00f3stico, tratamento e esfor\u00e7os de pesquisa relacionados \u00e0 ECD. Sou grato por esta oportunidade rara.\u201d<\/em><\/p>\n \u2013 Leretha R. Thomas, Cuidadora de ECD<\/strong><\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n \u201cTrabalho na \u00e1rea da sa\u00fade h\u00e1 mais de 20 anos e nunca vi ou vivenciei um grupo t\u00e3o atencioso e dedicado de profissionais de sa\u00fade e volunt\u00e1rios!\u201d<\/em><\/p>\n \u2013 Paciente de ECD Presente<\/strong><\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":" Foto de Grupo do Encontro Internacional de Pacientes e Familiares de ECD em Mil\u00e3o 2019 Resumo do Encontro de Pacientes e FamiliaresTodos os pacientes e entes queridos interessados em saber […]<\/p>\n","protected":false},"author":20,"featured_media":102949,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4861],"tags":[],"class_list":["post-102358","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-reuniao-de-pacientes-e-familiares"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/posts\/102358","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/comments?post=102358"}],"version-history":[{"count":27,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/posts\/102358\/revisions"}],"predecessor-version":[{"id":133483,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/posts\/102358\/revisions\/133483"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/media\/102949"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/media?parent=102358"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/categories?post=102358"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/tags?post=102358"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
Instituto Cient\u00edfico IRCCS San Raffaele<\/strong>
Universidade Vita-Salute San Raffaele
Via Olgettina, 60
I-20132 Mil\u00e3o \u2013 It\u00e1lia<\/p>\nApresenta\u00e7\u00e3o<\/h2>\n
\n\n
\n\t \nDATE<\/th> TIME<\/th> EVENT<\/th> DESCRIPTION<\/th>\n<\/tr>\n<\/thead>\n \n\t Thursday
\nJuly 11, 2019
\n<\/td>3 PM TO 5 PM<\/td> Group Activity<\/td> A group activity may be scheduled for this time frame to allow more social time for families in attendance. This opportunity is still under consideration and will be announced once plans are firm.<\/td>\n<\/tr>\n \n\t Thursday
\nJuly 11, 2019
\n<\/td>6 PM to 8 PM<\/td> Welcome Social<\/td> All event attendees are welcome to attend this social event to encourage connections between the families and medical professionals. Hor d\u2019oeuvres will be served.<\/td>\n<\/tr>\n \n\t Friday
\nJuly 12, 2019
\n(Registration 8 \u2013 9 a.m.)<\/td>9 AM to 5 PM<\/td> Patient & Family Gathering<\/td> Medical speakers experienced in ECD treatment will present the latest ECD care information to families and other treating physicians.<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n
\n[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}”]<\/p>\nExperi\u00eancias dos participantes<\/h2>\n