{"id":102342,"date":"2018-05-16T19:44:54","date_gmt":"2018-05-17T00:44:54","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/6o-encontro-internacional-anual-de-pacientes-e-familiares-com-dpi-orlando-fl\/"},"modified":"2026-05-25T10:22:57","modified_gmt":"2026-05-25T15:22:57","slug":"6o-encontro-internacional-anual-de-pacientes-e-familiares-com-dpi-orlando-fl","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/pt-br\/6o-encontro-internacional-anual-de-pacientes-e-familiares-com-dpi-orlando-fl\/","title":{"rendered":"6\u00ba Encontro Anual de Pacientes e Fam\u00edlias com ECD Orlando, FL"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”20px||0px||false|false” locked=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||10px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||0px||false|false” custom_padding=”||0px||false|false” hover_enabled=”0″ global_colors_info=”{}” _dynamic_attributes=”title” sticky_enabled=”0″][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=”single-line-buttons ” _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_button button_text=”Julio Hajdenberg, MD” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_text=”Orlando Health” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||900″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_text=”Orlando, FL” _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||divi||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_text=”16 de novembro de 2018″ _builder_version=”4.27.6″ _module_preset=”default” custom_button=”on” button_text_size=”16px” button_text_color=”#000000″ button_bg_color=”RGBA(255,255,255,0)” button_border_radius=”0px” button_icon=”||fa||400″ button_icon_color=”#35A4BB” button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”0px||||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2018\/12\/All-Attendee-Group-Photo-2.jpg” title_text=”Foto do Grupo de Todos os Participantes 2″ align=”center” force_fullwidth=”on” module_class=”event-image” _builder_version=”4.27.6″ _module_preset=”default” border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” text_font_size=”14px” text_line_height=”-0.1em” text_orientation=”center” global_colors_info=”{}”]<\/p>\n

\n
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Foto de Grupo do Encontro Internacional de Pacientes e Familiares com ECD em Orlando 2018<\/p>\n<\/div>\n<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.5″ _module_preset=”default” custom_padding=”0px||||false|false” locked=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”10px||||false|false” global_colors_info=”{}” width__hover_enabled=”off|desktop”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}”]<\/p>\n

Resumo do Encontro de Pacientes e Familiares<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n

Um total de 109 pacientes, familiares e m\u00e9dicos de oito pa\u00edses participaram do Patient & Family Gathering de 2018.<\/p>\n

Os participantes aprenderam sobre o processo de teste de medicamentos, como gerenciar v\u00e1rios medicamentos, como cuidar de voc\u00ea com nutri\u00e7\u00e3o e exerc\u00edcios e mais sobre gerenciamento de cuidados. Consulte os materiais do evento abaixo para saber mais sobre esse evento bem-sucedido. Obrigado a todos os participantes! <\/p>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.6″ _module_preset=”default” width=”65%” width_tablet=”80%” width_phone=”80%” width_last_edited=”on|phone” custom_padding=”||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.5″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||15px||false|false” border_width_bottom=”2px” border_color_bottom=”#35A4BB” global_colors_info=”{}”]<\/p>\n

Fotografias<\/h2>\n

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Fotos da recep\u00e7\u00e3o<\/h3>\n

As fotos a seguir foram tiradas durante a recep\u00e7\u00e3o do encontro de pacientes e familiares do ECD com profissionais da \u00e1rea m\u00e9dica e fam\u00edlias do ECD em 15 de novembro de 2018 no Orlando Health Regional Medical Center. Obrigado a todos os participantes por participarem e se envolverem com a comunidade. Voc\u00ea pode encontrar mais fotos no Facebook com a tag #ECDGA18 ou diretamente em nossa p\u00e1gina do FacebookECDGA <\/a>. <\/p>\n

[\/et_pb_text][et_pb_gallery gallery_ids=”35546,35558,35570,35582,35594,35606,35618,35630,35642,35654,35666,35678,35690,35702,35714,35726,35738,35750,35762,35774,35786,35798,35810,35822,35834,35846,35858,35870,35882,35894,35906,35918,35930,35942,35954,35966,35978″ posts_number=”100″ orientation=”portrait” show_title_and_caption=”off” module_class=”event-gallery” _builder_version=”4.27.6″ _module_preset=”default” db_images_per_row=”5″ db_image_max_width=”95%” db_image_max_height=”88px” db_image_row_spacing=”1%” dbdb_version=”5.1.1″ db_image_object_fit=”cover” border_radii_image=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_gallery][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”20px||20px||false|false” global_colors_info=”{}”]<\/p>\n

Fotos da reuni\u00e3o de pacientes<\/h3>\n

As fotos a seguir foram tiradas durante a reuni\u00e3o do ECD Patient & Family Gathering em 16 de novembro de 2018 no Orlando Health – Orlando Regional Medical Center. Obrigado a todos os participantes por participarem da reuni\u00e3o e dos momentos sociais, permitindo grande apoio e conex\u00f5es dentro desta comunidade. Voc\u00ea pode encontrar mais fotos no Facebook com a tag #ECDGA18 ou diretamente em nossa p\u00e1gina do FacebookECDGA <\/a>. Junte-se a n\u00f3s novamente em 12 de julho de 2019 em Mil\u00e3o, It\u00e1lia! <\/p>\n

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Foto de Grupo do Encontro Internacional de Pacientes e Familiares com ECD em Orlando 2018 Resumo do Encontro de Pacientes e FamiliaresUm total de 109 pacientes, familiares e m\u00e9dicos de […]<\/p>\n","protected":false},"author":20,"featured_media":77373,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4861],"tags":[],"class_list":["post-102342","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-reuniao-de-pacientes-e-familiares"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/posts\/102342","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/comments?post=102342"}],"version-history":[{"count":29,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/posts\/102342\/revisions"}],"predecessor-version":[{"id":133573,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/posts\/102342\/revisions\/133573"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/media\/77373"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/media?parent=102342"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/categories?post=102342"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/tags?post=102342"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}