[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” background_image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png” background_position=”bottom_center” background_vertical_offset=”20%” custom_padding=”15px||15px||true|false” background_last_edited=”on|desktop” background_position_tablet=”bottom_right” background_position_phone=”center_right” global_module=”28071″ global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.4″ _dynamic_attributes=”title” _module_preset=”default” title_font=”–et_global_heading_font|300|||||||” title_text_color=”#FFFFFF” title_font_size=”40px” custom_margin=”||3px|||” title_font_size_tablet=”” title_font_size_phone=”25px” title_font_size_last_edited=”on|phone” global_colors_info=”{}”][\/et_pb_heading][et_pb_button button_url=”https:\/\/www.erdheim-chester.org\/pt-br\/entre-em-contato-conosco\/” button_text=”Entre em contato conosco” _builder_version=”4.27.4″ _module_preset=”default” custom_button=”on” button_text_size=”15px” button_text_color=”#C02E43″ button_bg_color=”rgba(10,22,64,0.53)” button_border_width=”0px” button_icon=”||divi||400″ button_icon_color=”#C02E43″ button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” filter_opacity__hover_enabled=”on|hover” filter_opacity__hover=”70%”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_row column_structure=”2_3,1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”2_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”6px|||||” global_colors_info=”{}”]<\/p>\n
A ECD Global Alliance realiza bate-papos virtuais on-line todos os meses para qualquer pessoa da comunidade ECD. Isso inclui pacientes, cuidadores, familiares, equipe m\u00e9dica, pesquisadores, etc. <\/p>\n
Para aqueles que se inscreverem na ECD Global Alliance, voc\u00ea receber\u00e1 um e-mail anunciando cada sess\u00e3o de bate-papo relevante para a sua fun\u00e7\u00e3o. Se voc\u00ea ainda n\u00e3o se registrou no grupo, recomendamos que o fa\u00e7a aqui<\/a> para se manter conectado e informado. <\/p>\n Os bate-papos s\u00e3o abertos para qualquer t\u00f3pico de discuss\u00e3o, dentro do razo\u00e1vel. Os t\u00f3picos frequentemente discutidos incluem ECD quest\u00f5es de diagn\u00f3stico, tratamentos, testes, m\u00e9dicos experientes, sintomas, efeitos colaterais do tratamento e, \u00e0s vezes, apenas discuss\u00f5es amig\u00e1veis sobre coisas agrad\u00e1veis que est\u00e3o acontecendo na vida dos participantes. A maioria dos participantes das sess\u00f5es encontrou conex\u00f5es e continua a se corresponder fora das sess\u00f5es de bate-papo. As reuni\u00f5es tamb\u00e9m oferecem uma estrutura de apoio para aqueles que est\u00e3o interessados em aprender o m\u00e1ximo poss\u00edvel sobre ECD e oferecer apoio m\u00fatuo. <\/a><\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” background_color=”#35A4BB” custom_padding=”30px|30px|30px|30px|true|true” border_radii=”on|10px|10px|10px|10px” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” global_colors_info=”{}”]<\/p>\n A perda de um ente querido devido \u00e0 doen\u00e7a de Erdheim-Chester \u00e9 uma jornada incrivelmente dolorosa, e ningu\u00e9m deveria passar por ela sozinho. Embora n\u00e3o agendemos mais os Grief Chats com anteced\u00eancia, estamos aqui para apoi\u00e1-lo quando voc\u00ea mais precisar. Entre em contato com o nosso navegador de pacientes para obter mais informa\u00e7\u00f5es.<\/p>\n [\/et_pb_text][et_pb_button button_url=”mailto:Belinda.Cobb@erdheim-chester.org” button_text=”Entre em contato conosco” button_alignment=”center” _builder_version=”4.27.4″ _module_preset=”default” custom_button=”on” button_text_color=”#35A4BB” button_bg_color=”#FFFFFF” button_border_radius=”8px” button_use_icon=”off” custom_padding=”10px||10px||true|false” custom_css_main_element=”width: 100%;” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ module_class=”chat-sessions” _builder_version=”4.27.4″ _module_preset=”default” background_color=”#0A1640″ global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”0px||0px||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_text_color=”#FFFFFF” background_layout=”dark” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/Peer-to-Peer-Chat.png” title_text=”Bate-papo entre pares” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/Caregiver-Chat.png” title_text=”Bate-papo com cuidadores” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”||||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”0px||||false|false” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/08\/download-5.png” title_text=”download (5)” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/Spanish-Chat.png” title_text=”Bate-papo em espanhol” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/05\/australia-june.png” title_text=”austr\u00e1lia junho” _builder_version=”4.27.6″ _module_preset=”default” hover_enabled=”0″ border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}” sticky_enabled=”0″][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_3,1_3,1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/Italian-Chat.png” title_text=”Bate-papo italiano” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/French-Chat.png” title_text=”Bate-papo franc\u00eas” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][et_pb_column type=”1_3″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” background_layout=”dark” custom_margin=”||10px||false|false” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/German-Chat.png” title_text=”Bate-papo em alem\u00e3o” _builder_version=”4.27.4″ _module_preset=”default” border_radii=”on|8px|8px|8px|8px” global_colors_info=”{}”][\/et_pb_image][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” text_font_size=”18px” text_line_height=”1.8em” text_orientation=”center” custom_css_main_element=”color: #ffffff;” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_video src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/05\/Community-Chats.mp4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_video][et_pb_image src=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/06\/Housekeeping.png” title_text=”Servi\u00e7o de limpeza” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n Anteriormente, o ECDGA realizava bate-papos on-line digitados e ao vivo para a comunidade. Os resumos das sess\u00f5es de bate-papo anteriores foram compilados e arquivados aqui<\/a>. <\/p>\n Leia nossa Pol\u00edtica de Participa\u00e7\u00e3o Virtual<\/a> antes de participar de uma reuni\u00e3o ou webinar da ECD Global Alliance.<\/p>\n OBSERVA\u00c7\u00c3O: Verifique seu fuso hor\u00e1rio aqui: Conversor de fuso hor\u00e1rio<\/a>.<\/p>\n N\u00e3o<\/u> haver\u00e1 um profissional m\u00e9dico auxiliando nessas chamadas. Cada paciente \u00e9 \u00fanico e n\u00e3o \u00e9 poss\u00edvel oferecer aconselhamento m\u00e9dico aqui; incentivamos que todas as ideias sejam compartilhadas com os m\u00e9dicos. Leia nossa Pol\u00edtica de participa\u00e7\u00e3o virtual.<\/a> <\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":" Conex\u00e3o on-line com sua comunidade A ECD Global Alliance realiza bate-papos virtuais on-line todos os meses para qualquer pessoa da comunidade ECD. Isso inclui pacientes, cuidadores, familiares, equipe m\u00e9dica, pesquisadores, […]<\/p>\n","protected":false},"author":14,"featured_media":58687,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-56444","page","type-page","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/pages\/56444","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/comments?post=56444"}],"version-history":[{"count":11,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/pages\/56444\/revisions"}],"predecessor-version":[{"id":134198,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/pages\/56444\/revisions\/134198"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/media\/58687"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/media?parent=56444"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}Conex\u00e3o com o luto<\/h3>\n
Grupos de l\u00edngua inglesa<\/h2>\n
Grupos internacionais<\/h2>\n
Bate-papo da comunidade canadense<\/h3>\n
Chat para aqueles que falam espanhol<\/h3>\n
Bate-papo na Austr\u00e1lia e na Nova Zel\u00e2ndia<\/h3>\n
Chat da comunidade italiana<\/span><\/span><\/span><\/h3>\n
Chat franc\u00f3fono<\/h3>\n
Bate-papo de alem\u00e3o<\/h3>\n