{"id":52265,"date":"2015-09-09T15:22:45","date_gmt":"2015-09-09T20:22:45","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/recursos\/"},"modified":"2026-03-24T10:14:05","modified_gmt":"2026-03-24T15:14:05","slug":"recursos","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/pt-br\/recursos\/","title":{"rendered":"Recursos"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.6″ _module_preset=”default” background_image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png” background_position=”bottom_center” background_vertical_offset=”20%” custom_padding=”15px||15px||true|false” background_last_edited=”on|desktop” background_position_tablet=”bottom_right” background_position_phone=”center_right” global_module=”28071″ global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.4″ _dynamic_attributes=”title” _module_preset=”default” title_font=”–et_global_heading_font|300|||||||” title_text_color=”#FFFFFF” title_font_size=”40px” custom_margin=”||3px|||” title_font_size_tablet=”” title_font_size_phone=”25px” title_font_size_last_edited=”on|phone” global_colors_info=”{}”][\/et_pb_heading][et_pb_button button_url=”https:\/\/www.erdheim-chester.org\/pt-br\/entre-em-contato-conosco\/” button_text=”Entre em contato conosco” _builder_version=”4.27.4″ _module_preset=”default” custom_button=”on” button_text_size=”15px” button_text_color=”#C02E43″ button_bg_color=”rgba(10,22,64,0.53)” button_border_width=”0px” button_icon=”||divi||400″ button_icon_color=”#C02E43″ button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” filter_opacity__hover_enabled=”on|hover” filter_opacity__hover=”70%”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.16″ global_colors_info=”{}”][et_pb_row admin_label=”fila” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text admin_label=”Text” _builder_version=”4.27.5″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Materiais de recursos<\/h2>\n

Esses recursos on-line est\u00e3o listados para fornecer conselhos e servi\u00e7os potencialmente \u00fateis oferecidos por empresas de sa\u00fade, organiza\u00e7\u00f5es sem fins lucrativos e outros grupos de defesa.<\/p>\n

A maioria desses servi\u00e7os \u00e9 oferecida a pessoas que moram nos EUA. Se voc\u00ea souber de outros recursos que devam ser listados para os EUA ou outros pa\u00edses, entre em contato com a ECD Global Alliance. <\/p>\n

As diretrizes mais recentes de especialistas para cuidados e tratamento do ECD podem ser encontradas em Histiocytic Neoplasms – Guidelines Detail (nccn.org)<\/a>, onde voc\u00ea precisar\u00e1 clicar em “NCCN guidelines”. O site exige a cria\u00e7\u00e3o de uma conta gratuita para que voc\u00ea possa acessar o documento, mas vale a pena. <\/p>\n

Al\u00e9m disso, Survivorship Issues in Adult Patients with Histiocytic Neoplasms (Quest\u00f5es de Sobreviv\u00eancia em Pacientes Adultos com Neoplasias Histioc\u00edticas<\/a> ) fornece orienta\u00e7\u00e3o sobre o gerenciamento de algumas das complica\u00e7\u00f5es e desafios que uma pessoa que vive com ECD pode encontrar.<\/p>\n

Especialistas m\u00e9dicos em ECD de nossa comunidade ajudaram a compilar dois tipos de folhetos para fins de educa\u00e7\u00e3o geral e conscientiza\u00e7\u00e3o. O folheto do paciente est\u00e1 dispon\u00edvel para ajudar os novos membros da comunidade a entender os conceitos b\u00e1sicos da ECD. O folheto m\u00e9dico est\u00e1 dispon\u00edvel para ser compartilhado com sua equipe de atendimento ou com qualquer profissional m\u00e9dico. [\/et_pb_text][et_pb_button button_url=”https:\/\/www.erdheim-chester.org\/pt-br\/solicite-um-folheto\/” button_text=”Solicite um folheto” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” background_color=”rgba(200,200,200,0.3)” global_colors_info=”{}”][et_pb_row module_class=”resource-buttons” _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”||0px||false|false” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″][et_pb_column type=”4_4″ _builder_version=”4.27.6″ _module_preset=”default” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″][et_pb_button button_url=”#medication” button_text=”Assist\u00eancia com medicamentos” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}” button_bg_color__hover_enabled=”on|hover” button_bg_color__hover=”RGBA(255,255,255,0)” button_bg_enable_color__hover=”on”][\/et_pb_button][et_pb_button button_url=”#insurance” button_text=”Seguro e assist\u00eancia financeira” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”#travel” button_text=”Assist\u00eancia de viagem” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”#partner” button_text=”Organiza\u00e7\u00f5es Parceiras de Defesa de Direitos” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”#general” button_text=”Recursos gerais” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”#depression” button_text=”Ajuda para depress\u00e3o e ansiedade” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}”][\/et_pb_button][et_pb_button button_url=”#apv” button_text=”Recursos do APV-D” _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||10px||false|false” global_colors_info=”{}”][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”medication” module_class=”blog-grid” _builder_version=”4.27.6″ _module_preset=”default” custom_padding=”10px||||false|false” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Assist\u00eancia com medicamentos<\/h3>\n

Encontrar uma solu\u00e7\u00e3o para suas necessidades de prescri\u00e7\u00e3o pode ser um desafio. A lista a seguir inclui programas de medicamentos que poderiam possivelmente ajudar a obter f\u00e1rmacos de forma acess\u00edvel. Consulte tamb\u00e9m a assist\u00eancia ao pagador em nossa p\u00e1gina da web <\/span>Apresenta\u00e7\u00e3o de recursos do pagador<\/a>.<\/span><\/p>\n

[\/et_pb_text][dpdfg_filtergrid include_categories=”296″ thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Ver” custom_content_container=”off” show_filters=”off” filter_layout=”select” show_pagination=”off” items_width=”24%” module_class=”my-dfg” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” dpdfg_filters_active_text_color=”#C02E43″ custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”insurance” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Seguro e assist\u00eancia financeira<\/h3>\n

Voc\u00ea pode obter suporte financeiro e de sa\u00fade por meio das seguintes fontes.<\/span><\/p>\n

[\/et_pb_text][dpdfg_filtergrid include_categories=”297″ thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Ver” show_filters=”off” show_pagination=”off” items_width=”24%” module_class=”blog-grid” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”travel” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Assist\u00eancia de viagem<\/h3>\n

[\/et_pb_text][dpdfg_filtergrid include_categories=”298″ thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Ver” show_filters=”off” show_pagination=”off” items_width=”24%” module_class=”blog-grid” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”partner” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Organiza\u00e7\u00f5es Parceiras de Defesa de Direitos<\/h3>\n

Os grupos de defesa de direitos a seguir atendem a dist\u00farbios de histiocitose ou a doen\u00e7as raras em geral e podem ser \u00fateis em sua jornada com o ECD. <\/span>[\/et_pb_text][dpdfg_filtergrid include_categories=”299″ post_number=”100″ order=”ASC” orderby=”title” thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Ver” show_filters=”off” show_pagination=”off” items_width=”24%” module_class=”blog-grid” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”general” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Recursos gerais<\/h3>\n

[\/et_pb_text][dpdfg_filtergrid include_categories=”300″ thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Ver” show_filters=”off” show_pagination=”off” items_width=”24%” module_class=”blog-grid” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”depression” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Ajuda para depress\u00e3o e ansiedade<\/h3>\n

Se voc\u00ea acha que pode machucar a si mesmo ou a outra pessoa, ligue, envie uma mensagem de texto ou converse pelo chat para o n\u00famero 988, para entrar em contato com um conselheiro de crise na National Suicide and Crisis Prevention Hotline. Ajuda 24 horas por dia, 7 dias por semana. 988 Lifeline<\/a><\/p>\n

[\/et_pb_text][dpdfg_filtergrid include_categories=”4828″ thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Ver” show_filters=”off” show_pagination=”off” items_width=”24%” module_class=”blog-grid” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][et_pb_row module_id=”apv” _builder_version=”4.27.6″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.6″ _module_preset=”default” custom_margin=”||17px|||” global_colors_info=”{}”]<\/p>\n

Recursos do APV-D<\/h3>\n

[\/et_pb_text][dpdfg_filtergrid include_categories=”4829″ thumbnail_action=”none” show_thumbnail=”off” use_overlay=”off” show_post_meta=”off” show_content=”on” content_length=”full” read_more=”on” read_more_text=”Ver” show_filters=”off” show_pagination=”off” items_width=”24%” module_class=”blog-grid” _builder_version=”4.27.4″ _module_preset=”default” dpdfg_entry_title_text_align=”left” dpdfg_entry_summary_text_align=”left” custom_read_more_button=”on” read_more_button_text_size=”13px” read_more_button_text_color=”#35A4BB” read_more_button_bg_color=”rgba(53,164,187,0.15)” read_more_button_icon=”$||divi||400″ read_more_button_on_hover=”off” read_more_button_alignment=”left” read_more_button_custom_padding=”0px|34px|0px|0px|true|false” border_width_all=”0px” global_colors_info=”{}” read_more_button_text_color__hover=”#FFFFFF” read_more_button_text_color__hover_enabled=”on|hover” read_more_button_bg_color__hover=”#35A4BB” read_more_button_bg_color__hover_enabled=”on|hover”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"

Materiais de recursos Esses recursos on-line est\u00e3o listados para fornecer conselhos e servi\u00e7os potencialmente \u00fateis oferecidos por empresas de sa\u00fade, organiza\u00e7\u00f5es sem fins lucrativos e outros grupos de defesa. A […]<\/p>\n","protected":false},"author":14,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"open","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-52265","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/pages\/52265","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/comments?post=52265"}],"version-history":[{"count":21,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/pages\/52265\/revisions"}],"predecessor-version":[{"id":122304,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/pages\/52265\/revisions\/122304"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/media?parent=52265"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}