{"id":52011,"date":"2015-07-04T15:49:08","date_gmt":"2015-07-04T20:49:08","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/historias-de-pacientes\/"},"modified":"2025-09-27T09:52:59","modified_gmt":"2025-09-27T14:52:59","slug":"historias-de-pacientes","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/pt-br\/historias-de-pacientes\/","title":{"rendered":"Hist\u00f3rias de pacientes"},"content":{"rendered":"

[et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” background_image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png” background_position=”bottom_center” background_vertical_offset=”20%” custom_padding=”0px||0px||true|false” background_last_edited=”on|desktop” background_position_tablet=”bottom_right” background_position_phone=”center_right” global_module=”28071″ global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_dmb_breadcrumbs _builder_version=”4.27.4″ _module_preset=”default” body_text_color=”#FFFFFF” body_font_size=”12px” link_text_color=”#35A4BB” custom_margin=”||5px||false|false” custom_padding=”||0px||false|false” body_font_size_tablet=”12px” body_font_size_phone=”10px” body_font_size_last_edited=”on|desktop” global_colors_info=”{}”][\/et_pb_dmb_breadcrumbs][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.4″ _dynamic_attributes=”title” _module_preset=”default” title_font=”–et_global_heading_font|300|||||||” title_text_color=”#FFFFFF” title_font_size=”40px” custom_margin=”||3px|||” title_font_size_tablet=”” title_font_size_phone=”25px” title_font_size_last_edited=”on|phone” global_colors_info=”{}”][\/et_pb_heading][et_pb_button button_url=”https:\/\/www.erdheim-chester.org\/pt-br\/entre-em-contato-conosco\/” button_text=”Entre em contato conosco” _builder_version=”4.27.4″ _module_preset=”default” custom_button=”on” button_text_size=”15px” button_text_color=”#C02E43″ button_bg_color=”rgba(10,22,64,0.53)” button_border_width=”0px” button_icon=”||divi||400″ button_icon_color=”#C02E43″ button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” filter_opacity__hover_enabled=”on|hover” filter_opacity__hover=”70%”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” custom_padding=”||3px|||” global_colors_info=”{}”][et_pb_row column_structure=”1_2,1_4,1_4″ use_custom_gutter=”on” gutter_width=”2″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n

Vozes de ECD<\/h1>\n

Escritos sobre os membros e a organiza\u00e7\u00e3o<\/h3>\n

Os membros da ECD Global Alliance se dedicam a ajudar a aumentar a conscientiza\u00e7\u00e3o sobre Erdheim-Chester doen\u00e7a. Os links a seguir fornecem acesso a artigos de not\u00edcias e v\u00eddeos sobre os pacientes do ECD e suas fam\u00edlias. Se voc\u00ea quiser compartilhar uma hist\u00f3ria impressa ou televisionada sobre a ECD, entre em contato conosco para que a publica\u00e7\u00e3o seja inclu\u00edda aqui. <\/p>\n

Observe que h\u00e1 um grande apre\u00e7o por todos os artigos e informa\u00e7\u00f5es compartilhados sobre ECD nos sites a seguir e nos artigos associados. No entanto, \u00e0s vezes, alguns dos fatos relacionados ao ECD podem ser mal interpretados. Esteja ciente de que algumas informa\u00e7\u00f5es sobre o ECD em alguns artigos podem n\u00e3o ser cientificamente corretas. <\/p>\n

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