[et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” background_image=”https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png” background_position=”bottom_center” background_vertical_offset=”20%” custom_padding=”0px||0px||true|false” background_last_edited=”on|desktop” background_position_tablet=”bottom_right” background_position_phone=”center_right” global_module=”28071″ global_colors_info=”{}”][et_pb_row _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_dmb_breadcrumbs _builder_version=”4.27.4″ _module_preset=”default” body_text_color=”#FFFFFF” body_font_size=”12px” link_text_color=”#35A4BB” custom_margin=”||5px||false|false” custom_padding=”||0px||false|false” body_font_size_tablet=”12px” body_font_size_phone=”10px” body_font_size_last_edited=”on|desktop” global_colors_info=”{}”][\/et_pb_dmb_breadcrumbs][et_pb_heading title=”@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@” _builder_version=”4.27.4″ _dynamic_attributes=”title” _module_preset=”default” title_font=”–et_global_heading_font|300|||||||” title_text_color=”#FFFFFF” title_font_size=”40px” custom_margin=”||3px|||” title_font_size_tablet=”” title_font_size_phone=”25px” title_font_size_last_edited=”on|phone” global_colors_info=”{}”][\/et_pb_heading][et_pb_button button_url=”https:\/\/www.erdheim-chester.org\/pt-br\/entre-em-contato-conosco\/” button_text=”Entre em contato conosco” _builder_version=”4.27.4″ _module_preset=”default” custom_button=”on” button_text_size=”15px” button_text_color=”#C02E43″ button_bg_color=”rgba(10,22,64,0.53)” button_border_width=”0px” button_icon=”||divi||400″ button_icon_color=”#C02E43″ button_icon_placement=”left” button_on_hover=”off” global_colors_info=”{}” filter_opacity__hover_enabled=”on|hover” filter_opacity__hover=”70%”][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ admin_label=”section” _builder_version=”4.27.4″ global_colors_info=”{}”][et_pb_row admin_label=”fila” _builder_version=”4.16″ background_size=”initial” background_position=”top_left” background_repeat=”repeat” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n
Parte da miss\u00e3o da ECD Global Alliance \u00e9 educar e apoiar os pacientes com as informa\u00e7\u00f5es de que precisam para defender sua sa\u00fade e qualidade de vida. O objetivo do Patient and Family Gathering (PFG) \u00e9 unir pacientes e familiares internacionais, bem como aumentar seu conhecimento e compreens\u00e3o sobre Erdheim-Chester Doen\u00e7as. <\/p>\n
O PFG oferece aos participantes um local de encontro e uma oportunidade de encaminhar perguntas e preocupa\u00e7\u00f5es a um grupo internacional de profissionais m\u00e9dicos com experi\u00eancia no atendimento de pacientes com ECD e que est\u00e3o fazendo pesquisas na \u00e1rea. As informa\u00e7\u00f5es compartilhadas podem ajudar o paciente a aprender rapidamente mais sobre o ECD e as poss\u00edveis op\u00e7\u00f5es de tratamento, al\u00e9m de ouvir sobre as \u00faltimas descobertas da pesquisa. <\/p>\n
Assistir aos v\u00eddeos e apresenta\u00e7\u00f5es dos anos anteriores ajudar\u00e1 voc\u00ea a saber mais sobre esse evento. Voc\u00ea os encontrar\u00e1 listados abaixo para sua conveni\u00eancia e sinta-se \u00e0 vontade para entrar em contato com voc\u00ea em caso de d\u00favidas. (Todos os v\u00eddeos do ECDGA tamb\u00e9m podem ser encontrados em nosso canal do YouTube<\/a>). <\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ _builder_version=”4.27.4″ _module_preset=”default” background_color=”#F2F2F2″ global_colors_info=”{}”][et_pb_row module_class=”ms-events” _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.27.4″ _module_preset=”default” global_colors_info=”{}”][dpdfg_filtergrid post_number=”100″ thumbnail_size=”dfg_full” use_overlay=”off” show_post_meta=”off” read_more=”on” show_pagination=”off” items_width=”24%” bg_items=”#FFFFFF” _builder_version=”4.27.4″ _module_preset=”default” custom_read_more_button=”on” read_more_button_alignment=”left” read_more_button_custom_margin=”||16px||false|false” hover_enabled=”0″ border_width_all=”0px” locked=”off” global_colors_info=”{}” include_categories=”4815,4816″ sticky_enabled=”0″ filter_layout=”select” filters_sort=”name”][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":" [et_pb_dmb_breadcrumbs _builder_version=”4.27.4″ _module_preset=”default” body_text_color=”#FFFFFF” body_font_size=”12px” link_text_color=”#35A4BB” custom_margin=”||5px||false|false” custom_padding=”||0px||false|false” body_font_size_tablet=”12px” body_font_size_phone=”10px” body_font_size_last_edited=”on|desktop” global_colors_info=”{}”][\/et_pb_dmb_breadcrumbs]Hist\u00f3rico anual de coleta de pacientes e familiares Parte da miss\u00e3o da ECD Global Alliance \u00e9 educar e apoiar […]<\/p>\n","protected":false},"author":14,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-50668","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/pages\/50668","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/comments?post=50668"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/pages\/50668\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/pt-br\/wp-json\/wp\/v2\/media?parent=50668"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}