{"id":92690,"date":"2025-09-08T15:59:41","date_gmt":"2025-09-08T20:59:41","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/ecd-awareness-week-er-8-14-september-2025\/"},"modified":"2025-09-10T22:53:02","modified_gmt":"2025-09-11T03:53:02","slug":"ecd-awareness-week-er-8-14-september-2025","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/no\/ecd-awareness-week-er-8-14-september-2025\/","title":{"rendered":"ECD Awareness Week 2025 er 8.-14. september"},"content":{"rendered":"<p><b>ECD Awareness Week er 8.-14. september 2025<\/b>, og vi trenger DEG til \u00e5 bidra til \u00e5 \u00f8ke bevisstheten og vise verden hva det betyr \u00e5 v\u00e6re en del av ECD-familien.<\/p>\n<p>Awareness Week er viktig fordi <b>Erdheim-Chesters sykdom (ECD) er s\u00e5 sjelden at mange mennesker &#8211; selv innen det medisinske fagfeltet &#8211; aldri har h\u00f8rt om den.<\/b> Ved \u00e5 delta i denne globale dugnaden bidrar du til \u00e5 forbedre tidlig diagnostisering, \u00f8ke forst\u00e5elsen og rette viktig oppmerksomhet mot behovene i samfunnet v\u00e5rt. <\/p>\n<p>&nbsp;<\/p>\n<p><strong>Her er to enkle m\u00e5ter du kan engasjere deg p\u00e5:<\/strong><\/p>\n<ol>\n<li><strong>Del ECD-brosjyrer med lokalt helsepersonell<br \/>\n<\/strong>Du kan bidra til \u00e5 utdanne leger, sykepleiere og klinikker i ditt omr\u00e5de ved \u00e5 gi dem en offisiell ECD-brosjyre.<br \/>\n\ud83d\udcc4 <a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/How-to-get-and-disseminate-an-ECD-brochure.pdf\" target=\"_blank\" rel=\"noopener\">Last ned<\/a> brosjyren <strong>for medisinsk opps\u00f8kende virksomhet.<\/strong><br \/>\nDenne brosjyren inneholder enkle instruksjoner om hvordan du kan be om brosjyrer og dele dem.<\/li>\n<li>Hold en <strong>innsamlingsaksjon<\/strong><br \/>\nDu kan \u00f8ke b\u00e5de bevisstheten om og st\u00f8tten til ECD ved \u00e5 organisere et enkelt arrangement i lokalsamfunnet ditt. Stort eller lite, alt gj\u00f8r en forskjell!<br \/>\n\ud83d\udcc4 <a href=\"https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/ECD-A-Z-fundraising-flyer.pdf\" target=\"_blank\" rel=\"noopener\">Last ned<\/a> <strong>ECDs ABCs of ECD Fundraising Flyer.<\/strong><br \/>\nVi har listet opp morsomme og enkle ideer for \u00e5 komme i gang &#8211; fra Awareness Walks &amp; 5ks til Awareness Campaigns med sebratema! <\/li>\n<\/ol>\n<p>N\u00e5r vi alle gj\u00f8r noe &#8211; uansett hvor lite vi gj\u00f8r &#8211; blir det til sammen noe STORT.<\/p>\n<p><strong>La oss heve stemmen sammen denne uken!  <\/strong>Uansett hva du gj\u00f8r for \u00e5 st\u00f8tte ECD Awareness Week, legg det ut p\u00e5 sosiale medier og\/eller send oss et bilde som vi kan legge ut!<\/p>\n<p>Med takknemlighet,<\/p>\n<p><b>ECD Global Alliance Team<\/b><br \/>\n\ud83c\udf10 <u><a title=\"https:\/\/www.erdheim-chester.org?utm_source=chatgpt.com\" href=\"https:\/\/www.erdheim-chester.org\/?utm_source=chatgpt.com\" data-linkindex=\"0\" data-auth=\"NotApplicable\">www.erdheim-chester.org<\/a><\/u><\/p>\n","protected":false},"excerpt":{"rendered":"<p>ECD Awareness Week er 8.-14. september 2025, og vi trenger DEG til \u00e5 bidra til \u00e5 \u00f8ke bevisstheten og vise verden hva det betyr \u00e5 v\u00e6re en del av ECD-familien. 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