{"id":102080,"date":"2016-04-01T18:13:58","date_gmt":"2016-04-01T23:13:58","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/4-arlige-ecd-medical-symposium-paris-frankrike\/"},"modified":"2026-06-12T09:31:49","modified_gmt":"2026-06-12T14:31:49","slug":"4-arlige-ecd-medical-symposium-paris-frankrike","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/no\/4-arlige-ecd-medical-symposium-paris-frankrike\/","title":{"rendered":"4. \u00e5rlige ECD Medical Symposium Paris, Frankrike"},"content":{"rendered":"

[et_pb_section fb_built=»1″ _builder_version=»4.27.6″ _module_preset=»default» custom_padding=»20px||0px||false|false» locked=»off» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_row _builder_version=»4.27.6″ _module_preset=»default» width=»65%» width_tablet=»80%» width_phone=»80%» width_last_edited=»on|phone» custom_padding=»||10px||false|false» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_column type=»4_4″ _builder_version=»4.27.5″ _module_preset=»default» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_heading title=»4. \u00e5rlige ECD Medical Symposium Paris, Frankrike» _builder_version=»4.27.6″ _module_preset=»default» custom_margin=»||0px||false|false» custom_padding=»||0px||false|false» global_colors_info=»{}» theme_builder_area=»post_content»][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=»single-line-buttons » _builder_version=»4.27.6″ _module_preset=»default» width=»65%» width_tablet=»80%» width_phone=»80%» width_last_edited=»on|phone» custom_padding=»0px||0px||false|false» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_column type=»4_4″ _builder_version=»4.27.6″ _module_preset=»default» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_button button_text=»Xavier Solanich, MD, PHD» _builder_version=»4.27.6″ _module_preset=»default» custom_button=»on» button_text_size=»16px» button_text_color=»#000000″ button_bg_color=»RGBA(255,255,255,0)» button_border_radius=»0px» button_icon=»||fa||400″ button_icon_color=»#35A4BB» button_icon_placement=»left» button_on_hover=»off» global_colors_info=»{}» theme_builder_area=»post_content»][\/et_pb_button][et_pb_button button_text=»Boulevard de l'H\u00f4pita» _builder_version=»4.27.6″ _module_preset=»default» custom_button=»on» button_text_size=»16px» button_text_color=»#000000″ button_bg_color=»RGBA(255,255,255,0)» button_border_radius=»0px» button_icon=»||fa||900″ button_icon_color=»#35A4BB» button_icon_placement=»left» button_on_hover=»off» global_colors_info=»{}» theme_builder_area=»post_content»][\/et_pb_button][et_pb_button button_text=»Paris, Frankrike» _builder_version=»4.27.6″ _module_preset=»default» custom_button=»on» button_text_size=»16px» button_text_color=»#000000″ button_bg_color=»RGBA(255,255,255,0)» button_border_radius=»0px» button_icon=»||divi||400″ button_icon_color=»#35A4BB» button_icon_placement=»left» button_on_hover=»off» global_colors_info=»{}» theme_builder_area=»post_content»][\/et_pb_button][et_pb_button button_text=»1. april 2016″ _builder_version=»4.27.6″ _module_preset=»default» custom_button=»on» button_text_size=»16px» button_text_color=»#000000″ button_bg_color=»RGBA(255,255,255,0)» button_border_radius=»0px» button_icon=»||fa||400″ button_icon_color=»#35A4BB» button_icon_placement=»left» button_on_hover=»off» global_colors_info=»{}» theme_builder_area=»post_content»][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=»4.27.6″ _module_preset=»default» width=»65%» width_tablet=»80%» width_phone=»80%» width_last_edited=»on|phone» custom_padding=»0px||||false|false» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_column type=»4_4″ _builder_version=»4.27.5″ _module_preset=»default» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_image src=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2016\/11\/2016-Medical-Symposium-Group-Photo-Small.jpg» title_text=»2016-medical-symposium-group-photo-small» align=»center» force_fullwidth=»on» module_class=»event-image» _builder_version=»4.27.6″ _module_preset=»default» border_radii=»on|10px|10px|10px|10px» global_colors_info=»{}» theme_builder_area=»post_content»][\/et_pb_image][et_pb_text _builder_version=»4.27.6″ _module_preset=»default» text_font_size=»14px» text_line_height=»-0.1em» text_orientation=»center» global_colors_info=»{}» theme_builder_area=»post_content»]<\/p>\n

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Gruppebilde fra medisinsk symposium i Paris 2016<\/p>\n<\/div>\n<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=»1″ _builder_version=»4.27.5″ _module_preset=»default» custom_padding=»0px||||false|false» locked=»off» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_row _builder_version=»4.27.6″ _module_preset=»default» width=»65%» width_tablet=»80%» width_phone=»80%» width_last_edited=»on|phone» custom_padding=»10px||||false|false» global_colors_info=»{}» width__hover_enabled=»off|desktop» theme_builder_area=»post_content»][et_pb_column type=»4_4″ _builder_version=»4.27.5″ _module_preset=»default» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_text _builder_version=»4.27.6″ _module_preset=»default» custom_margin=»||15px||false|false» border_width_bottom=»2px» border_color_bottom=»#35A4BB» global_colors_info=»{}» theme_builder_area=»post_content»]<\/p>\n

Sammendrag av symposiet<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=»4.27.6″ _module_preset=»default» locked=»off» global_colors_info=»{}» theme_builder_area=»post_content»]Erdheim-Chester Disease Global Alliance er glad for \u00e5 kunne presentere f\u00f8lgende sammendrag av foredragene som ble holdt p\u00e5 \u00e5rets 4. internasjonale medisinske ECD-symposium, avholdt 15. september 2016 p\u00e5 H\u00f4pital Piti\u00e9-Salp\u00eatri\u00e8re i Paris, Frankrike. M\u00f8tet ga medisinske fagpersoner mulighet til \u00e5 samarbeide om ECD-forskning, dele medisinske funn og diskutere pasientbehandling. Takk til \u00e5rets medvert, professor Julien Haroche, MD, PhD; til alle foredragsholdere som delte sine data og sin ekspertise under paneldiskusjonene; til alle deltakere som var interessert i \u00e5 l\u00e6re mer om ECD; og til alle som var involvert i planleggingen og gjennomf\u00f8ringen av dette arrangementet. En spesiell takk til frivillige som utarbeidet dette sammendraget for fellesskapet og for fagpersonene som ikke hadde mulighet til \u00e5 delta.[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=»4.27.6″ _module_preset=»default» width=»65%» width_tablet=»80%» width_phone=»80%» width_last_edited=»on|phone» custom_padding=»0px||0px||false|false» locked=»off» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_column type=»4_4″ _builder_version=»4.27.5″ _module_preset=»default» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_text _builder_version=»4.27.5″ _module_preset=»default» custom_margin=»||15px||false|false» border_width_bottom=»2px» border_color_bottom=»#14b8a6″ global_colors_info=»{}» theme_builder_area=»post_content»]<\/p>\n

Programmer med agenda for symposiet<\/h2>\n

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Presentasjoner<\/h2>\n

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F\u00f8lgende presentasjoner ble holdt p\u00e5 m\u00f8tet i 2016. Bes\u00f8k ECD Global Alliance YouTube-kanal<\/a> for alle publiserte ECD-relaterte videoer<\/a>. <\/p>\n

[\/et_pb_text][et_pb_text module_class=»event-table» _builder_version=»4.27.6″ _module_preset=»default» global_colors_info=»{}» theme_builder_area=»post_content»]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Presentation Slides<\/th>Videos<\/th>\n<\/tr>\n<\/thead>\n
Prof. Julien Haroche, MD, PhD<\/td>Welcome<\/td>Welcome<\/a><\/td>\n<\/tr>\n
Omar Abdel-Wahab, MD, PhD and Benjamin Durham, MD;<\/td>Insights into the Cell-of-Origin of the Histiocytoses Using Patient-\u00ad\u2010Derived Xenograft Murine Models<\/a><\/td>Insights into the Cell-of-Origin of the Histiocytoses Using Patient-\u00ad\u2010Derived Xenograft Murine Models<\/a><\/td>\n<\/tr>\n
Lorenzo Dagna, MD, PhD<\/td>CCL18 in Erdheim-Chester Disease: Potential Implications in the Pathogenesis<\/td>Not available<\/td>\n<\/tr>\n
Matthew Collin, MD<\/td>The Hematopoietic Origin of Adult Histiocytosis<\/td>Not available<\/td>\n<\/tr>\n
Matthias Papo, MD<\/td>Erdheim-Chester disease is frequently associated with myeloproliferative neoplasms and myelodysplastic syndromes: a systematic clinical and molecular series of 189 patients<\/td>Not available<\/td>\n<\/tr>\n
Fleur Cohen-Aubart, MD & Wilfred Le Goff, MD<\/td>Marked alteration of circulating immune cells in Erdheim-Chester disease in a large single-center series of 46 patients<\/td>Not available<\/td>\n<\/tr>\n
Roei D. Mazor, MD<\/td>Biopsy Specimens of Erdheim-Chester Disease Patients<\/td>Not available<\/td>\n<\/tr>\n
Filip Janku, MD, PhD<\/td>Clinical Molecular Profiling to Detect Targetable Alterations in Archival Tumor Tissue and Cell-free DNA from Patients with Erdheim-Chester Disease<\/a><\/td>Clinical Molecular Profiling to Detect Targetable Alterations in Archival Tumor Tissue and Cell-free DNA from Patients with Erdheim-Chester Disease<\/a><\/td>\n<\/tr>\n
Tahla Munir, MD<\/td>A Single- centre Experience of Treating Adult Patients with Langerhans' cell
\nHistiocytosis and Erdheim Chester Disease; Sustained Response to Oral Methotrexate in Frontline and Relapsed Disease<\/td>		A Single- centre Experience of Treating Adult Patients with Langerhans' cellHistiocytosis and Erdheim Chester Disease; Sustained Response to Oral Methotrexate in Frontline and Relapsed Disease<\/a><\/td>\n<\/tr>\n
Achille Aouba, MD, PhD<\/td>Superior Efficacy and Equivalent Safety of Double-dose Anakinra in Erdheim-Chester Disease<\/td>Superior Efficacy and Equivalent Safety of Double-dose Anakinra in Erdheim-Chester Disease<\/a><\/td>\n<\/tr>\n
Tahla Munir, MD<\/td>Single Centre Experience of Treating Four Cases of Relapsed\/Refractory BRAF Mutated Erdheim Chester Disease (ECD) \/ Langerhan\u2019s Cell Histiocytosis(LCH) with Oral BRAF Inhibitor Vemurafenib<\/td>Single Centre Experience of Treating Four Cases of Relapsed\/Refractory BRAF Mutated Erdheim Chester Disease (ECD) \/ Langerhan\u2019s Cell Histiocytosis(LCH) with Oral BRAF Inhibitor Vemurafenib<\/a><\/td>\n<\/tr>\n
Fleur Cohen-Aubart, MD and Julien Haroche, MD, PhD<\/td>The LOVE trial: preliminary results<\/td>Not available<\/td>\n<\/tr>\n
Juvianee Estrada-Veras, MD<\/td>Dabrafenib and Trametinib as Potential Therapy in BRAF V600E Positive ErdheimChester Disease (ECD): Preliminary Results<\/td>Not available<\/td>\n<\/tr>\n
Eli L. Diamond, MD<\/td>Phase 2 Trial of Single-Agent Cobimetinib for Adults with Histiocytic Disorders: Preliminary Results<\/td>Not available<\/td>\n<\/tr>\n
Tahla Munir, MD<\/td>Dabrafenib in combination with Trametinib is effective in treatment of refractory BRAF mutated mixed histiocytic disease- A Case report<\/td>Dabrafenib in combination with Trametinib is effective in treatment of refractory BRAF mutated mixed histiocytic disease- A Case report<\/a><\/td>\n<\/tr>\n
Diana Melo, MD<\/td>Spectrum of Cardiovascular Involvement in Erdheim-Chester Disease Evaluated by Multimodality Imaging<\/td>Not available<\/td>\n<\/tr>\n
Mark Heaney, MD, Julien Haroche, MD, PhD, Eli L. Diamond, MD, Matthew Collin, MD, Lorenzo Dagna, MD, PhD<\/td>Panel Discussion: ECD Patient Registry: Community Tool for Research<\/td>Panel Discussion: ECD Patient Registry: Community Tool for Research<\/a><\/td>\n<\/tr>\n
Augusto Vaglio, MD, PhD, Juvianee Estrada-Veras, MD, Filip Janku, MD, PhD, Omar Abdel-Wahab, MD, PhD, Javier Martin, MD, PhD<\/td>Panel Discussion: Proposed ECD GWAS Study<\/a><\/td>Panel Discussion: Proposed ECD GWAS Study<\/a><\/td>\n<\/tr>\n
Corrado Campochiaro, MD<\/td>Management of ECD Symptoms and Side Effects of Treatments<\/a><\/td>Management of ECD Symptoms and Side Effects of Treatments<\/a><\/td>\n<\/tr>\n
Giulio Cavalli, MD<\/td>Adult Onset (Infratentorial) Leukoencephalopathy as Presenting Manifestation of Erdheim-Chester Disease<\/a><\/td>Adult Onset (Infratentorial) Leukoencephalopathy as Presenting Manifestation of Erdheim-Chester Disease<\/a><\/td>\n<\/tr>\n
Carine Courtillot, MD<\/td>Endocrine manifestations in Erdheim-Chester disease<\/a><\/td>Endocrine manifestations in Erdheim-Chester disease<\/a><\/td>\n<\/tr>\n
Benjamin Durham, MD<\/td>Insights into the Cell-of-Origin of the Histiocytoses Using Patient-Derived Xenograft Murine Models<\/a><\/td>Insights into the Cell-of-Origin of the Histiocytoses Using Patient-Derived Xenograft Murine Models<\/a><\/td>\n<\/tr>\n
Marina Ferrarini, MD<\/td>Tailoring Treatment for Erdheim-Chester Disease: Focus on ECD<\/a><\/td>Tailoring Treatment for Erdheim-Chester Disease: Focus on ECD<\/a><\/td>\n<\/tr>\n
Ronald Go, MD<\/td>Efficacy of Cladribine (2-CdA) in the Treatment of Erdheim-Chester Disease (ECD)<\/a><\/td>Efficacy of Cladribine (2-CdA) in the Treatment of Erdheim-Chester Disease (ECD)<\/a><\/td>\n<\/tr>\n
Filip Janku, MD, PhD<\/td>Encouraging activity of MEK inhibitor trametinib in patients with Erdheim-Chester disease irrespective of BRAF mutation statusClinical Molecular Profiling to Detect Targetable Alterations in Archival Tumor Tissue and Cell-free DNA from Patients with Erdheim-Chester Disease<\/a><\/td>Encouraging activity of MEK inhibitor trametinib in patients with Erdheim-Chester disease irrespective of BRAF mutation statusClinical Molecular Profiling to Detect Targetable Alterations in Archival Tumor Tissue and Cell-free DNA from Patients with Erdheim-Chester Disease<\/a><\/td>\n<\/tr>\n
Javier Martin, MD, PhD<\/td>Future Genetic Studies in Erdheim-Chester disease \u2013 GWAS Study<\/a><\/td>Future Genetic Studies in Erdheim-Chester disease \u2013 GWAS Study<\/a><\/td>\n<\/tr>\n
Kenneth McClain, MD, PhD<\/td>Elevated CSF Osteopontin and Circulating Cells with BRAF Mutations in Patients with Langerhans Cell Histiocytosis-Associated Neurodegeneration -A Model for ECD?<\/a><\/td>Elevated CSF Osteopontin and Circulating Cells with BRAF Mutations in Patients with Langerhans Cell Histiocytosis-Associated Neurodegeneration -A Model for ECD?<\/a><\/td>\n<\/tr>\n
Augusto Vaglio, MD, PhD<\/td>MRI evidence of cardiac involvement in Erdheim-Chester disease<\/a><\/td>MRI evidence of cardiac involvement in Erdheim-Chester disease<\/a><\/td>\n<\/tr>\n
Julien Haroche, MD, PhD & Kathleen Brewer<\/td>Closing<\/td>Not available<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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Gruppebilde fra medisinsk symposium i Paris 2016 Sammendrag av symposietErdheim-Chester Disease Global Alliance er glad for \u00e5 kunne presentere f\u00f8lgende sammendrag av foredragene som ble holdt p\u00e5 \u00e5rets 4. internasjonale […]<\/p>\n","protected":false},"author":20,"featured_media":135362,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4821],"tags":[],"class_list":["post-102080","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-medisinsk-symposium"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/posts\/102080","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/comments?post=102080"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/posts\/102080\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/media\/135362"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/media?parent=102080"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/categories?post=102080"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/tags?post=102080"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}