{"id":102056,"date":"2018-04-01T18:10:48","date_gmt":"2018-04-01T23:10:48","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/6-arlige-ecd-medical-symposium-orlando-fl\/"},"modified":"2026-06-12T09:24:01","modified_gmt":"2026-06-12T14:24:01","slug":"6-arlige-ecd-medical-symposium-orlando-fl","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/no\/6-arlige-ecd-medical-symposium-orlando-fl\/","title":{"rendered":"6. \u00e5rlige ECD Medical Symposium Orlando, FL"},"content":{"rendered":"

[et_pb_section fb_built=»1″ _builder_version=»4.27.6″ _module_preset=»default» custom_padding=»20px||0px||false|false» locked=»off» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_row _builder_version=»4.27.6″ _module_preset=»default» width=»65%» width_tablet=»80%» width_phone=»80%» width_last_edited=»on|phone» custom_padding=»||10px||false|false» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_column type=»4_4″ _builder_version=»4.27.5″ _module_preset=»default» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_heading title=»6. \u00e5rlige ECD Medical Symposium Orlando, FL» _builder_version=»4.27.6″ _module_preset=»default» custom_margin=»||0px||false|false» custom_padding=»||0px||false|false» global_colors_info=»{}» theme_builder_area=»post_content»][\/et_pb_heading][\/et_pb_column][\/et_pb_row][et_pb_row module_class=»single-line-buttons » _builder_version=»4.27.6″ _module_preset=»default» width=»65%» width_tablet=»80%» width_phone=»80%» width_last_edited=»on|phone» custom_padding=»0px||0px||false|false» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_column type=»4_4″ _builder_version=»4.27.6″ _module_preset=»default» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_button button_text=»Xavier Solanich, MD, PHD» _builder_version=»4.27.6″ _module_preset=»default» custom_button=»on» button_text_size=»16px» button_text_color=»#000000″ button_bg_color=»RGBA(255,255,255,0)» button_border_radius=»0px» button_icon=»||fa||400″ button_icon_color=»#35A4BB» button_icon_placement=»left» button_on_hover=»off» global_colors_info=»{}» theme_builder_area=»post_content»][\/et_pb_button][et_pb_button button_text=»Orlando Regional Medical Center» _builder_version=»4.27.6″ _module_preset=»default» custom_button=»on» button_text_size=»16px» button_text_color=»#000000″ button_bg_color=»RGBA(255,255,255,0)» button_border_radius=»0px» button_icon=»||fa||900″ button_icon_color=»#35A4BB» button_icon_placement=»left» button_on_hover=»off» global_colors_info=»{}» theme_builder_area=»post_content»][\/et_pb_button][et_pb_button button_text=»Orlando, FL» _builder_version=»4.27.6″ _module_preset=»default» custom_button=»on» button_text_size=»16px» button_text_color=»#000000″ button_bg_color=»RGBA(255,255,255,0)» button_border_radius=»0px» button_icon=»||divi||400″ button_icon_color=»#35A4BB» button_icon_placement=»left» button_on_hover=»off» global_colors_info=»{}» theme_builder_area=»post_content»][\/et_pb_button][et_pb_button button_text=»1. april 2018″ _builder_version=»4.27.6″ _module_preset=»default» custom_button=»on» button_text_size=»16px» button_text_color=»#000000″ button_bg_color=»RGBA(255,255,255,0)» button_border_radius=»0px» button_icon=»||fa||400″ button_icon_color=»#35A4BB» button_icon_placement=»left» button_on_hover=»off» global_colors_info=»{}» theme_builder_area=»post_content»][\/et_pb_button][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=»4.27.6″ _module_preset=»default» width=»65%» width_tablet=»80%» width_phone=»80%» width_last_edited=»on|phone» custom_padding=»0px||||false|false» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_column type=»4_4″ _builder_version=»4.27.5″ _module_preset=»default» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_image src=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2026\/06\/2018-MS-Orlando.jpg» title_text=»2018 MS Orlando» align=»center» force_fullwidth=»on» module_class=»event-image» _builder_version=»4.27.6″ _module_preset=»default» hover_enabled=»0″ border_radii=»on|10px|10px|10px|10px» global_colors_info=»{}» theme_builder_area=»post_content» sticky_enabled=»0″][\/et_pb_image][et_pb_text _builder_version=»4.27.6″ _module_preset=»default» text_font_size=»14px» text_line_height=»-0.1em» text_orientation=»center» global_colors_info=»{}» theme_builder_area=»post_content»]<\/p>\n

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Orlando Medical Symposium gruppebilde 2018<\/p>\n<\/div>\n<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=»1″ _builder_version=»4.27.5″ _module_preset=»default» custom_padding=»0px||||false|false» locked=»off» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_row _builder_version=»4.27.6″ _module_preset=»default» width=»65%» width_tablet=»80%» width_phone=»80%» width_last_edited=»on|phone» custom_padding=»||0px||false|false» locked=»off» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_column type=»4_4″ _builder_version=»4.27.5″ _module_preset=»default» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_text _builder_version=»4.27.6″ _module_preset=»default» custom_margin=»||15px||false|false» border_width_bottom=»2px» border_color_bottom=»#35A4BB» global_colors_info=»{}» theme_builder_area=»post_content»]<\/p>\n

Sammendrag av symposiet<\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=»4.27.6″ _module_preset=»default» global_colors_info=»{}» theme_builder_area=»post_content»]Omtrent 44 medisinske fagfolk fra seks land deltok p\u00e5 det \u00e5rlige ECD medisinske symposiumet i 2018. Ti muntlige sammendrag ble presentert, sammen med ytterligere seks posterpresentasjoner. Som invitert foredragsholder holdt Matthew Collin et foredrag med tittelen \u00abErdheim-Chester sykdom: Kreft, men ikke slik vi kjenner den\u00bb. En kveldsresepsjon ga tid til diskusjoner som st\u00f8ttet n\u00e5v\u00e6rende og fremtidige samarbeid blant denne sv\u00e6rt kunnskapsrike gruppen av leger og forskere, alle interessert i \u00e5 l\u00e6re mer om Erdheim-Chester sykdom. [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=»4.27.6″ _module_preset=»default» width=»65%» width_tablet=»80%» width_phone=»80%» width_last_edited=»on|phone» custom_padding=»||0px||false|false» locked=»off» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_column type=»4_4″ _builder_version=»4.27.5″ _module_preset=»default» global_colors_info=»{}» theme_builder_area=»post_content»][et_pb_text _builder_version=»4.27.6″ _module_preset=»default» custom_margin=»||15px||false|false» border_width_bottom=»2px» border_color_bottom=»#35A4BB» global_colors_info=»{}» theme_builder_area=»post_content»]<\/p>\n

Deltakernes opplevelser<\/h2>\n

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\u00ab[ECD Global Alliance] har hjulpet meg og mine pasienter ved \u00e5] samle eksperter for \u00e5 oppn\u00e5 samarbeidende fremgang.\u00bb <\/em><\/p>\n

\u2013 Ronald S. Go, MD, deltaker 2018<\/strong><\/p>\n

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Programmer med agenda for symposiet<\/h2>\n

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Presentasjoner<\/h2>\n

[\/et_pb_text][et_pb_text module_class=»event-table» _builder_version=»4.27.6″ _module_preset=»default» global_colors_info=»{}» theme_builder_area=»post_content»]<\/p>\n\n\n\n\n\t\n\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t\n\t
Presenter<\/th>Presentation Slides<\/th>English Video<\/th>\n<\/tr>\n<\/thead>\n
Julio Hajdenberg, MD<\/td>Welcome Address<\/td>Not Available<\/td>\n<\/tr>\n
Matthew Collin, MD, PhD<\/td>Erdheim Chester Disease: Cancer, but not as we know it.<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Eli L. Diamond, MD<\/td>Patient-reported outcomes in adults with Erdheim-Chester Disease: Early findings from the ECD Registry<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Benjamin Durham, MD<\/td>Novel Activating Mutations in CSF1R and Additional Receptor Tyrosine Kinases in Histiocytic Neoplasms<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Ran Weissman, M.Sc<\/td>The role of microRNAs in the Pathogenesis of Erdheim-Chester Disease and their Potential Use as Biomarkers for Diagnosis and Prognosis of the Disease<\/a><\/td>Not Available<\/td>\n<\/tr>\n
Julien Haroche, MD, PhD<\/td>Slide deck not available<\/td>Imaging aspect of cardiac involvement in Erdheim-Chester disease: cardiac CT and MRI of 188 patients<\/a><\/td>\n<\/tr>\n
Gaurav Goyal, MD<\/td>Tumor mutational burden and other immunotherapy markers in Erdheim-Chester disease and other histiocytic neoplasms<\/a><\/td>Tumor mutational burden and other immunotherapy markers in Erdheim-Chester disease and other histiocytic neoplasms<\/a><\/td>\n<\/tr>\n
Ana\u00efs Roeser, MD<\/td>Auto-immunity in L-group histiocytoses<\/a><\/td>Auto-immunity in L-group histiocytoses<\/a><\/td>\n<\/tr>\n
Roei Mazor, MD<\/td>Efficacy of Dual BRAF\/MAP2K1 Blockade in BRAF mutant Erdheim Chester Disease Patients<\/td>No Videos available<\/td>\n<\/tr>\n
Skand Shekhar, MD<\/td>Hypothyroidism in Erdheim-Chester Disease: Experience from the National Institutes of Health<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Gordon Ruan, MD<\/td>Acute Pancreatitis from treatment with BRAF-inhibitors in patients with Erdheim-Chester Disease<\/a><\/td>Acute Pancreatitis from treatment with BRAF-inhibitors in patients with Erdheim-Chester Disease<\/a><\/td>\n<\/tr>\n
Eli L. Diamond, MD<\/td>Panel Discussion: TOXICITY OF ECD THERAPIES<\/td>No Videos available<\/td>\n<\/tr>\n
Julio Hajdenberg, MD<\/td>Panel Discussion: COMPLEX CASE STUDIES<\/a><\/td>No Videos available<\/td>\n<\/tr>\n
Kathleen Brewer<\/td>ECDGA Announcements<\/a><\/td>No Videos available<\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n\n

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Fotografier<\/h2>\n

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Medisinsk symposium<\/h3>\n

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Medisinsk m\u00f8te<\/h3>\n

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Orlando Medical Symposium gruppebilde 2018 Sammendrag av symposietOmtrent 44 medisinske fagfolk fra seks land deltok p\u00e5 det \u00e5rlige ECD medisinske symposiumet i 2018. Ti muntlige sammendrag ble presentert, sammen med […]<\/p>\n","protected":false},"author":20,"featured_media":77384,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[4821],"tags":[],"class_list":["post-102056","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-medisinsk-symposium"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/posts\/102056","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/users\/20"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/comments?post=102056"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/posts\/102056\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/media\/77384"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/media?parent=102056"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/categories?post=102056"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/tags?post=102056"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}