[et_pb_section fb_built=»1″ _builder_version=»4.27.4″ _module_preset=»default» background_image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png» background_position=»bottom_center» background_vertical_offset=»20%» custom_padding=»0px||0px||true|false» background_last_edited=»on|desktop» background_position_tablet=»bottom_right» background_position_phone=»center_right» global_module=»28071″ global_colors_info=»{}»][et_pb_row _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_column type=»4_4″ _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_dmb_breadcrumbs _builder_version=»4.27.4″ _module_preset=»default» body_text_color=»#FFFFFF» body_font_size=»12px» link_text_color=»#35A4BB» custom_margin=»||5px||false|false» custom_padding=»||0px||false|false» body_font_size_tablet=»12px» body_font_size_phone=»10px» body_font_size_last_edited=»on|desktop» global_colors_info=»{}»][\/et_pb_dmb_breadcrumbs][et_pb_heading title=»@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@» _builder_version=»4.27.4″ _dynamic_attributes=»title» _module_preset=»default» title_font=»–et_global_heading_font|300|||||||» title_text_color=»#FFFFFF» title_font_size=»40px» custom_margin=»||3px|||» title_font_size_tablet=»» title_font_size_phone=»25px» title_font_size_last_edited=»on|phone» global_colors_info=»{}»][\/et_pb_heading][et_pb_button button_url=»https:\/\/www.erdheim-chester.org\/no\/kontakt-oss\/» button_text=»Kontakt oss» _builder_version=»4.27.4″ _module_preset=»default» custom_button=»on» button_text_size=»15px» button_text_color=»#C02E43″ button_bg_color=»rgba(10,22,64,0.53)» button_border_width=»0px» button_icon=»||divi||400″ button_icon_color=»#C02E43″ button_icon_placement=»left» button_on_hover=»off» global_colors_info=»{}» filter_opacity__hover_enabled=»on|hover» filter_opacity__hover=»70%»][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=»1″ admin_label=»section» _builder_version=»4.16″ global_colors_info=»{}»][et_pb_row column_structure=»1_3,2_3″ admin_label=»rad» _builder_version=»4.16″ background_size=»initial» background_position=»top_left» background_repeat=»repeat» global_colors_info=»{}»][et_pb_column type=»1_3″ _builder_version=»4.16″ custom_padding=»|||» global_colors_info=»{}» custom_padding__hover=»|||»][et_pb_image src=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Symptom-Flyer-with-Jaw.png» title_text=»Symptomflyer med kjeve» show_in_lightbox=»on» _builder_version=»4.27.4″ _module_preset=»default» border_width_all=»1px» border_color_all=»#d3d3d3″ global_colors_info=»{}»][\/et_pb_image][et_pb_text _builder_version=»4.27.4″ _module_preset=»default» custom_margin=»||6px|||» global_colors_info=»{}»]<\/p>\n
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Klikk for \u00e5 se i full st\u00f8rrelse.[\/et_pb_text][et_pb_button button_url=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/09\/Symptom-Flyer-with-Jaw.pdf» url_new_window=»on» button_text=»Last ned PDF-versjonen» module_class=»full-button» _builder_version=»4.27.4″ _module_preset=»default» custom_padding=»6px||6px||true|false» global_colors_info=»{}»][\/et_pb_button][\/et_pb_column][et_pb_column type=»2_3″ _builder_version=»4.16″ custom_padding=»|||» global_colors_info=»{}» custom_padding__hover=»|||»][et_pb_text admin_label=»Text» _builder_version=»4.27.4″ background_size=»initial» background_position=»top_left» background_repeat=»repeat» global_colors_info=»{}»]<\/p>\n
Symptomene p\u00e5 ECD avhenger av hvilke(t) organ(er) som er involvert, noe som varierer fra pasient til pasient. Derfor vil symptomene p\u00e5 ECD variere fra pasient til pasient. <\/p>\n
En og samme pasient kan ha ulike kombinasjoner av disse symptomene, i tillegg til andre. F\u00e5 pasienter har alle symptomene ovenfor. Dette er noe av det som gj\u00f8r ECD vanskelig \u00e5 diagnostisere. En ECD diagnose krever en gjennomgang av symptomene i kombinasjon med billeddiagnostikk (PET-CT og MR, hvis tilgjengelig) og biopsier utf\u00f8rt av et kyndig medisinsk team. <\/p>\n
Alle som mistenker at de kan ha ECD, b\u00f8r opps\u00f8ke en kyndig helsearbeider. En tidligere diagnose vil potensielt gi pasientene de beste mulighetene for en vellykket behandlingsplan. <\/p>\n
I slutten av 2018 resulterte pasientregisteretECD <\/a> i f\u00f8lgende artikkel om symptomvurdering. Funnene inkluderer en prosenttabell over pasientrapporterte symptomer. Se En skala for pasientrapportert symptomvurdering for pasienter med Erdheim-Chester sykdom<\/strong><\/a> for \u00e5 l\u00e6re mer. <\/p>\n Bare helsepersonell kan stille diagnosen ECD, men noen av de vanligste symptomene kan v\u00e6re ett eller flere av f\u00f8lgende:<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row admin_label=»rad» _builder_version=»4.16″ background_size=»initial» background_position=»top_left» background_repeat=»repeat» global_colors_info=»{}»][et_pb_column type=»4_4″ _builder_version=»4.16″ custom_padding=»|||» global_colors_info=»{}» custom_padding__hover=»|||»][et_pb_text admin_label=»Text» _builder_version=»4.27.5″ background_size=»initial» background_position=»top_left» background_repeat=»repeat» hover_enabled=»0″ global_colors_info=»{}» link_text_color=»#35A4BB» sticky_enabled=»0″]<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=»4.27.4″ _module_preset=»default» locked=»off» global_colors_info=»{}»][et_pb_column type=»4_4″ _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_text _builder_version=»4.27.4″ _module_preset=»default» locked=»off» global_colors_info=»{}»]Neste><\/strong> Diagnose<\/a>[\/et_pb_text][et_pb_text _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»]<\/p>\n Sist oppdatert:<\/strong> 02\/27\/25<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":" [et_pb_dmb_breadcrumbs _builder_version=»4.27.4″ _module_preset=»default» body_text_color=»#FFFFFF» body_font_size=»12px» link_text_color=»#35A4BB» custom_margin=»||5px||false|false» custom_padding=»||0px||false|false» body_font_size_tablet=»12px» body_font_size_phone=»10px» body_font_size_last_edited=»on|desktop» global_colors_info=»{}»][\/et_pb_dmb_breadcrumbs] Symptomene p\u00e5 ECD avhenger av hvilke(t) organ(er) som er involvert, noe som varierer fra pasient til pasient. Derfor […]<\/p>\n","protected":false},"author":14,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-57145","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/pages\/57145","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/comments?post=57145"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/pages\/57145\/revisions"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/media?parent=57145"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}\n