{"id":55871,"date":"2014-11-20T13:28:58","date_gmt":"2014-11-20T19:28:58","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/chatter-i-lokalsamfunnet\/"},"modified":"2026-05-26T07:17:50","modified_gmt":"2026-05-26T12:17:50","slug":"chatter-i-lokalsamfunnet","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/no\/chatter-i-lokalsamfunnet\/","title":{"rendered":"Chatter i lokalsamfunnet"},"content":{"rendered":"

[et_pb_section fb_built=»1″ _builder_version=»4.27.6″ _module_preset=»default» background_image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png» background_position=»bottom_center» background_vertical_offset=»20%» custom_padding=»15px||15px||true|false» background_last_edited=»on|desktop» background_position_tablet=»bottom_right» background_position_phone=»center_right» global_module=»28071″ global_colors_info=»{}»][et_pb_row _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_column type=»4_4″ _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_heading title=»@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@» _builder_version=»4.27.4″ _dynamic_attributes=»title» _module_preset=»default» title_font=»–et_global_heading_font|300|||||||» title_text_color=»#FFFFFF» title_font_size=»40px» custom_margin=»||3px|||» title_font_size_tablet=»» title_font_size_phone=»25px» title_font_size_last_edited=»on|phone» global_colors_info=»{}»][\/et_pb_heading][et_pb_button button_url=»https:\/\/www.erdheim-chester.org\/no\/kontakt-oss\/» button_text=»Kontakt oss» _builder_version=»4.27.4″ _module_preset=»default» custom_button=»on» button_text_size=»15px» button_text_color=»#C02E43″ button_bg_color=»rgba(10,22,64,0.53)» button_border_width=»0px» button_icon=»||divi||400″ button_icon_color=»#C02E43″ button_icon_placement=»left» button_on_hover=»off» global_colors_info=»{}» filter_opacity__hover_enabled=»on|hover» filter_opacity__hover=»70%»][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=»1″ _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_row column_structure=»2_3,1_3″ _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_column type=»2_3″ _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_text _builder_version=»4.27.4″ _module_preset=»default» custom_padding=»6px|||||» global_colors_info=»{}»]<\/p>\n

Online-forbindelse med lokalsamfunnet ditt<\/h2>\n

ECD Global Alliance arrangerer hver m\u00e5ned virtuelle nettbaserte chatter for alle i ECD -samfunnet. Dette inkluderer pasienter, omsorgspersoner, familiemedlemmer, medisinsk personell, forskere osv. <\/p>\n

De som registrerer seg p\u00e5 ECD Global Alliance, vil motta en e-post med informasjon om hver chat-\u00f8kt som er relevant for deres rolle. Hvis du enn\u00e5 ikke har registrert deg i gruppen, anbefaler vi at du gj\u00f8r det her<\/a> for \u00e5 holde deg oppdatert og informert. <\/p>\n

Chattene er \u00e5pne for alle diskusjonstemaer innenfor rimelighetens grenser. ECD Ofte diskuteres temaer som diagnoser, behandlinger, tester, kunnskapsrike leger, symptomer, bivirkninger av behandlingen og noen ganger bare vennskapelige diskusjoner om hyggelige ting som skjer i deltakernes liv. De fleste som deltar p\u00e5 m\u00f8tene, har funnet nye kontakter og fortsetter \u00e5 korrespondere utenom chatte\u00f8ktene. M\u00f8tene gir ogs\u00e5 en st\u00f8ttestruktur for dem som er interessert i \u00e5 l\u00e6re s\u00e5 mye som mulig om ECD og gi hverandre gjensidig st\u00f8tte. <\/a><\/p>\n

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Sorgforbindelse<\/h3>\n

\u00c5 miste en av sine kj\u00e6re til Erdheim-Chester sykdom er en utrolig smertefull reise, og ingen skal m\u00e5tte g\u00e5 gjennom den alene. Selv om vi ikke lenger planlegger sorgsamtaler p\u00e5 forh\u00e5nd, er vi her for \u00e5 st\u00f8tte deg n\u00e5r du trenger det som mest. Kontakt v\u00e5r pasientnavigator for mer informasjon.<\/p>\n

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Engelskspr\u00e5klige grupper<\/h2>\n

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New events coming soon.<\/div>\n

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New events coming soon.<\/div>\n

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Internasjonale grupper<\/h2>\n

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Kanadisk samfunnschat<\/h3>\n

[\/et_pb_text][et_pb_image src=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/08\/download-5.png» title_text=»nedlasting (5)» _builder_version=»4.27.4″ _module_preset=»default» border_radii=»on|8px|8px|8px|8px» global_colors_info=»{}»][\/et_pb_image][et_pb_text _builder_version=»4.27.4″ _module_preset=»default» text_font_size=»18px» text_line_height=»1.8em» text_orientation=»center» custom_css_main_element=»color: #ffffff;» global_colors_info=»{}»]<\/p>\n

New events coming soon.<\/div>\n

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Chat para los que hablan espa\u00f1ol<\/h3>\n

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New events coming soon.<\/div>\n

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Chat i Australia og New Zealand<\/h3>\n

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New events coming soon.<\/div>\n

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Chat della comunit\u00e0 italiana<\/span><\/span><\/span><\/h3>\n

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New events coming soon.<\/div>\n

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Chat francophone<\/h3>\n

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New events coming soon.<\/div>\n

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Deutschsprachiger Chat<\/h3>\n

[\/et_pb_text][et_pb_image src=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/04\/German-Chat.png» title_text=»Tysk chat» _builder_version=»4.27.4″ _module_preset=»default» border_radii=»on|8px|8px|8px|8px» global_colors_info=»{}»][\/et_pb_image][et_pb_text _builder_version=»4.27.4″ _module_preset=»default» text_font_size=»18px» text_line_height=»1.8em» text_orientation=»center» custom_css_main_element=»color: #ffffff;» global_colors_info=»{}»]<\/p>\n

New events coming soon.<\/div>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=»1″ _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_row _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_column type=»4_4″ _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_video src=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/05\/Community-Chats.mp4″ _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][\/et_pb_video][et_pb_image src=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/06\/Housekeeping.png» title_text=»Rengj\u00f8ring» _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=»1″ _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_row _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_column type=»4_4″ _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_text _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»]<\/p>\n

Tidligere har ECDGA gjennomf\u00f8rt maskinskrevne, direkte nettbaserte chatter for samfunnet. Sammendrag av tidligere chat-\u00f8kter ble samlet og arkivert her.<\/a> <\/p>\n

Vennligst les v\u00e5re retningslinjer for virtuell deltakelse f\u00f8r du deltar<\/a> p\u00e5 et m\u00f8te eller webinar p\u00e5 ECD Global Alliance.<\/p>\n

MERK: Sjekk tidssonen din her: Tidssoneomregner<\/a>.<\/p>\n

Det vil ikke<\/u> v\u00e6re noen medisinsk fagperson som bist\u00e5r i disse samtalene. Hver pasient er unik, og vi kan ikke gi medisinske r\u00e5d her; vi oppfordrer til \u00e5 dele alle ideer med leger. Vennligst les v\u00e5re retningslinjer for virtuell deltakelse<\/a>. <\/p>\n

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Online-forbindelse med lokalsamfunnet ditt ECD Global Alliance arrangerer hver m\u00e5ned virtuelle nettbaserte chatter for alle i ECD -samfunnet. Dette inkluderer pasienter, omsorgspersoner, familiemedlemmer, medisinsk personell, forskere osv. De som registrerer […]<\/p>\n","protected":false},"author":14,"featured_media":58686,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-55871","page","type-page","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/pages\/55871","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/comments?post=55871"}],"version-history":[{"count":17,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/pages\/55871\/revisions"}],"predecessor-version":[{"id":134200,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/pages\/55871\/revisions\/134200"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/media\/58686"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/media?parent=55871"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}