{"id":51745,"date":"2015-07-04T15:49:08","date_gmt":"2015-07-04T20:49:08","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/pasienthistorier\/"},"modified":"2025-09-27T09:53:02","modified_gmt":"2025-09-27T14:53:02","slug":"pasienthistorier","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/no\/pasienthistorier\/","title":{"rendered":"Pasienthistorier"},"content":{"rendered":"

[et_pb_section fb_built=»1″ _builder_version=»4.27.4″ _module_preset=»default» background_image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2024\/12\/Untitled-design-96-1.png» background_position=»bottom_center» background_vertical_offset=»20%» custom_padding=»0px||0px||true|false» background_last_edited=»on|desktop» background_position_tablet=»bottom_right» background_position_phone=»center_right» global_module=»28071″ global_colors_info=»{}»][et_pb_row _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_column type=»4_4″ _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_dmb_breadcrumbs _builder_version=»4.27.4″ _module_preset=»default» body_text_color=»#FFFFFF» body_font_size=»12px» link_text_color=»#35A4BB» custom_margin=»||5px||false|false» custom_padding=»||0px||false|false» body_font_size_tablet=»12px» body_font_size_phone=»10px» body_font_size_last_edited=»on|desktop» global_colors_info=»{}»][\/et_pb_dmb_breadcrumbs][et_pb_heading title=»@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF90aXRsZSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IiIsImFmdGVyIjoiIn19@» _builder_version=»4.27.4″ _dynamic_attributes=»title» _module_preset=»default» title_font=»–et_global_heading_font|300|||||||» title_text_color=»#FFFFFF» title_font_size=»40px» custom_margin=»||3px|||» title_font_size_tablet=»» title_font_size_phone=»25px» title_font_size_last_edited=»on|phone» global_colors_info=»{}»][\/et_pb_heading][et_pb_button button_url=»https:\/\/www.erdheim-chester.org\/no\/kontakt-oss\/» button_text=»Kontakt oss» _builder_version=»4.27.4″ _module_preset=»default» custom_button=»on» button_text_size=»15px» button_text_color=»#C02E43″ button_bg_color=»rgba(10,22,64,0.53)» button_border_width=»0px» button_icon=»||divi||400″ button_icon_color=»#C02E43″ button_icon_placement=»left» button_on_hover=»off» global_colors_info=»{}» filter_opacity__hover_enabled=»on|hover» filter_opacity__hover=»70%»][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=»1″ _builder_version=»4.27.4″ _module_preset=»default» custom_padding=»||3px|||» global_colors_info=»{}»][et_pb_row column_structure=»1_2,1_4,1_4″ use_custom_gutter=»on» gutter_width=»2″ _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_column type=»1_2″ _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_text _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»]<\/p>\n

Stemmer fra ECD<\/h1>\n

Skrifter om medlemmene og organisasjonen<\/h3>\n

Medlemmer av ECD Global Alliance er dedikert til \u00e5 bidra til \u00e5 \u00f8ke bevisstheten om Erdheim-Chester sykdommen. F\u00f8lgende lenker gir tilgang til nyhetsartikler og videoer om ECD pasienter og deres familier. Hvis du \u00f8nsker \u00e5 dele en trykt eller TV-sendt historie om ECD, vennligst kontakt oss om publiseringen for \u00e5 bli inkludert her. <\/p>\n

V\u00e6r oppmerksom p\u00e5 at vi setter stor pris p\u00e5 alle artikler og all informasjon som deles om ECD p\u00e5 f\u00f8lgende nettsteder og i de tilknyttede artiklene. Noen ganger kan imidlertid noen av faktaene om ECD bli misforst\u00e5tt. V\u00e6r oppmerksom p\u00e5 at noe av informasjonen om ECD i enkelte artikler kanskje ikke er vitenskapelig korrekt. <\/p>\n

[\/et_pb_text][\/et_pb_column][et_pb_column type=»1_4″ _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_image src=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/01\/Hiba-Tohme-Story-Francais-pdf.jpg» title_text=»Hiba-Tohme-historien-Francais-pdf» _builder_version=»4.27.4″ _module_preset=»default» custom_margin=»||15px||false|false» global_colors_info=»{}»][\/et_pb_image][et_pb_button button_url=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2022\/02\/Hiba-Tohme-Story-Francais.pdf» url_new_window=»on» button_text=»Last ned PDF» module_class=»full-button» _builder_version=»4.27.4″ _module_preset=»default» custom_margin=»||15px||false|false» global_colors_info=»{}»][\/et_pb_button][et_pb_button button_text=»Vis artikkel» module_class=»full-button» _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][\/et_pb_button][\/et_pb_column][et_pb_column type=»1_4″ _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_image src=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/01\/2021-Atnip-Virtual-Run-story-Final-pdf.jpg» title_text=»2021-Atnip-Virtual-Run-story-Final-pdf» _builder_version=»4.27.4″ _module_preset=»default» custom_margin=»||15px||false|false» global_colors_info=»{}»][\/et_pb_image][et_pb_button button_url=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2021\/06\/2021-Atnip-Virtual-Run-story-Final.pdf» url_new_window=»on» button_text=»Last ned PDF» module_class=»full-button» _builder_version=»4.27.4″ _module_preset=»default» custom_margin=»||15px||false|false» global_colors_info=»{}»][\/et_pb_button][et_pb_button button_text=»Vis artikkel» module_class=»full-button» _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][\/et_pb_button][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=»1″ _builder_version=»4.27.4″ _module_preset=»default» custom_padding=»0px||||false|false» global_colors_info=»{}»][et_pb_row _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][et_pb_column type=»4_4″ _builder_version=»4.27.4″ _module_preset=»default» global_colors_info=»{}»][dpdfg_filtergrid include_categories=»272″ post_number=»1000″ show_thumbnail=»off» use_overlay=»off» title_link=»on» meta_separator=»|» show_author=»off» show_terms=»on» show_terms_taxonomy=»post_tag» terms_separator=» |» terms_links=»off» show_content=»on» truncate_content=»200″ truncate_excerpt=»on» read_more=»on» read_more_text=»Se hele historien» show_filters=»off» s_df=»on» df_y=»2024, 2017, 2016, 2015, 2014, 2013, 2012, 2011, 2009″ s_df_m=»off» filter_layout=»select» filter_dropdown_show_tags=»off» filter_dropdown_placeholder=»Velg en kategori» show_pagination=»off» items_width=»30%» bg_filters=»#FFFFFF» bg_filter_active=»#F2F2F2″ bg_filter_label=»#FFFFFF» module_class=»blog-grid» _builder_version=»4.27.4″ _module_preset=»default» dpdfg_entry_meta_font=»|600||on|||||» dpdfg_entry_meta_text_color=»#C02E43″ dpdfg_entry_meta_font_size=»11px» dpdfg_filters_text_color=»#35A4BB» dpdfg_filters_active_text_color=»#C02E43″ custom_read_more_button=»on» read_more_button_text_size=»13px» read_more_button_text_color=»#35A4BB» read_more_button_bg_color=»rgba(53,164,187,0.15)» read_more_button_icon=»$||divi||400″ read_more_button_on_hover=»off» read_more_button_alignment=»left» read_more_button_custom_padding=»0px|34px|0px|0px|true|false» hover_enabled=»0″ locked=»off» global_colors_info=»{}» read_more_button_text_color__hover_enabled=»on|hover» read_more_button_text_color__hover=»#FFFFFF» read_more_button_bg_color__hover_enabled=»on|hover» read_more_button_bg_color__hover=»#35A4BB» read_more_button_bg_enable_color__hover=»on» sticky_enabled=»0″ thumbnail_action=»none»][\/dpdfg_filtergrid][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"

[et_pb_dmb_breadcrumbs _builder_version=»4.27.4″ _module_preset=»default» body_text_color=»#FFFFFF» body_font_size=»12px» link_text_color=»#35A4BB» custom_margin=»||5px||false|false» custom_padding=»||0px||false|false» body_font_size_tablet=»12px» body_font_size_phone=»10px» body_font_size_last_edited=»on|desktop» global_colors_info=»{}»][\/et_pb_dmb_breadcrumbs]Stemmer fra ECD Skrifter om medlemmene og organisasjonen Medlemmer av ECD Global Alliance er dedikert til \u00e5 bidra til […]<\/p>\n","protected":false},"author":14,"featured_media":23804,"parent":0,"menu_order":0,"comment_status":"open","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","_wds_title":"","_wds_metadesc":"","_wds_focus-keywords":"","_wds_meta-robots-adv":"","_wds_meta-robots-noindex":false,"_wds_meta-robots-nofollow":false,"_wds_meta-robots-index":false,"_wds_meta-robots-follow":false,"_wds_autolinks-exclude":false,"_wds_canonical":"","_wds_redirect":"","_wds_opengraph":[],"_wds_twitter":[],"cybocfi_hide_featured_image":"","footnotes":"","_links_to":"","_links_to_target":""},"class_list":["post-51745","page","type-page","status-publish","has-post-thumbnail","hentry"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/pages\/51745","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/comments?post=51745"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/pages\/51745\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/media\/23804"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/no\/wp-json\/wp\/v2\/media?parent=51745"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}