{"id":24035,"date":"2014-11-19T08:51:39","date_gmt":"2014-11-19T14:51:39","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/hjem\/"},"modified":"2026-06-15T16:15:06","modified_gmt":"2026-06-15T21:15:06","slug":"hjem","status":"publish","type":"page","link":"https:\/\/www.erdheim-chester.org\/no\/","title":{"rendered":"Hjem"},"content":{"rendered":"

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1. juni til 30. juni 2026<\/strong><\/p>\n

[\/et_pb_slide][et_pb_slide heading=»@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9tZXRhX2tleSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IkRpbiBzdFx1MDBmOHR0ZSBnaXIgaFx1MDBlNXAhIiwiYWZ0ZXIiOiIiLCJtZXRhX2tleSI6IiIsImVuYWJsZV9odG1sIjoib2ZmIn19@» button_text=»Gi en gave» button_link=»https:\/\/secure.qgiv.com\/for\/erdheim-chesterdiseaseglobalalliance» url_new_window=»on» alignment=»bottom» _builder_version=»4.27.6″ _dynamic_attributes=»heading» _module_preset=»default» background_enable_color=»off» use_background_color_gradient=»on» background_color_gradient_stops=»rgba(255,255,255,0.82) 65%|rgba(53,164,187,0.6) 100%» background_color_gradient_overlays_image=»on» background_image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/01\/shutterstock_2558547307-scaled.jpg» background_enable_image=»on» link_option_url=»https:\/\/secure.qgiv.com\/for\/erdheim-chesterdiseaseglobalalliance» link_option_url_new_window=»on» custom_css_slide_image=»max-width: 250px;||» border_radii_image=»on|10px|10px|10px|10px» box_shadow_style_image=»preset1″ global_colors_info=»{}» sticky_transition=»on»]<\/p>\n

Gj\u00f8r en forskjell!<\/p>\n

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\u00c5 komme sammen som et fellesskap.<\/p>\n

[\/et_pb_slide][et_pb_slide heading=»@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9tZXRhX2tleSIsInNldHRpbmdzIjp7ImJlZm9yZSI6IlNhbW1lbiBlciB2aSBzdGVya2UhIiwiYWZ0ZXIiOiIiLCJtZXRhX2tleSI6IiIsImVuYWJsZV9odG1sIjoib24ifX0=@» button_text=»Bli med oss i dag» button_link=»@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjE5MjcyIn19@» alignment=»bottom» _builder_version=»4.27.4″ _dynamic_attributes=»heading,button_link,link_option_url» _module_preset=»default» background_enable_color=»off» use_background_color_gradient=»on» background_color_gradient_stops=»rgba(255,255,255,0.82) 65%|rgba(53,164,187,0.6) 100%» background_color_gradient_overlays_image=»on» background_image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/shutterstock_2411548497.jpg» background_enable_image=»on» link_option_url=»@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjE5MjcyIn19@» global_colors_info=»{}» sticky_transition=»on»]<\/p>\n

ECD Global Alliance – Vi gir st\u00f8tte!<\/p>\n

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Bli med i bevegelsen og skap gjennombrudd.<\/p>\n

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L\u00e6r mer om omsorgssentre<\/p>\n

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Hendelser<\/span><\/h2>\n

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Nyheter<\/span><\/h2>\n

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image_icon_custom_margin=»||0px||false|false» image_icon_custom_padding=»||0px||false|false» text_orientation=»center» custom_padding=»20px||20px||true|false» link_option_url=»https:\/\/www.erdheim-chester.org\/no\/be-om-en-brosjyre\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb _builder_version=»4.27.4″ _module_preset=»default» background_color=»#FFFFFF» min_height=»245px» custom_padding=»20px|10px||10px|false|true» global_colors_info=»{}»]<\/p>\n

V\u00e5rt m\u00e5l er \u00e5 gi de som er rammet av Erdheim-Chester sykdom med kunnskap og st\u00f8tte. Her finner du p\u00e5litelig informasjon om ECD, behandlingsalternativer, h\u00e5ndtering av symptomer og kontakt med spesialister. Utforsk ressurser som er skreddersydd for \u00e5 hjelpe pasienter og familier med \u00e5 navigere p\u00e5 reisen med selvtillit og h\u00e5p. <\/p>\n

[\/et_pb_blurb][\/et_pb_column][et_pb_column type=»1_3″ module_class=»blurb-grids» _builder_version=»4.27.4″ _module_preset=»default» background_enable_color=»off» custom_padding=»||20px||false|false» border_radii=»on|6px|6px|6px|6px» border_width_all=»6px» border_color_all=»#FFFFFF» box_shadow_style=»preset3″ global_colors_info=»{}»][et_pb_blurb title=»Informasjon til familie\/p\u00e5r\u00f8rende» url=»https:\/\/www.erdheim-chester.org\/no\/stotte-til-omsorgspersoner\/» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_pexels-kampus-7551607-1.jpg» content_max_width=»100%» _builder_version=»4.27.4″ _module_preset=»default» header_level=»h3″ header_line_height=»2em» background_color=»#35A4BB» background_enable_image=»off» text_orientation=»center» background_layout=»dark» custom_margin=»||0px||false|false» link_option_url=»https:\/\/www.erdheim-chester.org\/no\/stotte-til-omsorgspersoner\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb title=»ECD Oversikt» url=»https:\/\/www.erdheim-chester.org\/no\/om-ecd\/» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-31.png» image_icon_width=»50px» content_max_width=»100%» module_class=»small-blurb» _builder_version=»4.27.4″ _module_preset=»default» header_font=»|300|||||||» header_font_size=»14px» background_color=»#F2F2F2″ image_icon_custom_margin=»||0px||false|false» image_icon_custom_padding=»||0px||false|false» text_orientation=»center» custom_padding=»20px||20px||true|false» link_option_url=»https:\/\/www.erdheim-chester.org\/no\/om-ecd\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb title=»Ressurser for familie\/omsorgspersoner» url=»https:\/\/www.erdheim-chester.org\/no\/ressurser-for-omsorgspersoner\/» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-25-1.svg» image_icon_width=»50px» content_max_width=»100%» module_class=»small-blurb» _builder_version=»4.27.4″ _module_preset=»default» header_font=»|300|||||||» header_font_size=»14px» background_color=»#F2F2F2″ image_icon_custom_margin=»||0px||false|false» image_icon_custom_padding=»||0px||false|false» text_orientation=»center» custom_padding=»20px||20px||true|false» link_option_url=»https:\/\/www.erdheim-chester.org\/no\/ressurser-for-omsorgspersoner\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb title=»Caregiver Connect» url=»https:\/\/www.erdheim-chester.org\/no\/kontakt-for-omsorgspersoner\/» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-6.svg» image_icon_width=»50px» content_max_width=»100%» module_class=»small-blurb» _builder_version=»4.27.4″ _module_preset=»default» header_font=»|300|||||||» header_font_size=»14px» background_color=»#F2F2F2″ image_icon_custom_margin=»||0px||false|false» image_icon_custom_padding=»||0px||false|false» text_orientation=»center» custom_padding=»20px||20px||true|false» link_option_url=»https:\/\/www.erdheim-chester.org\/no\/kontakt-for-omsorgspersoner\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb title=»Be om brosjyre» url=»https:\/\/www.erdheim-chester.org\/no\/be-om-en-brosjyre\/» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-32.png» image_icon_width=»50px» content_max_width=»100%» module_class=»small-blurb» _builder_version=»4.27.4″ _module_preset=»default» header_font=»|300|||||||» header_font_size=»14px» background_color=»#F2F2F2″ image_icon_custom_margin=»||0px||false|false» image_icon_custom_padding=»||0px||false|false» text_orientation=»center» custom_padding=»20px||20px||true|false» link_option_url=»https:\/\/www.erdheim-chester.org\/no\/be-om-en-brosjyre\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb _builder_version=»4.27.4″ _module_preset=»default» background_color=»#FFFFFF» min_height=»245px» custom_padding=»20px|10px||10px|false|true» global_colors_info=»{}»]<\/p>\n

\u00c5 ta vare p\u00e5 noen med Erdheim-Chester sykdom kan v\u00e6re utfordrende, men du er ikke alene. V\u00e5re ressurser er utviklet for \u00e5 gi veiledning, emosjonell st\u00f8tte og praktiske verkt\u00f8y for \u00e5 hjelpe p\u00e5r\u00f8rende med \u00e5 navigere p\u00e5 denne reisen. Finn ut mer om ECD, f\u00e5 kontakt med st\u00f8ttenettverk og finn strategier for \u00e5 ta vare p\u00e5 den du er glad i, samtidig som du tar vare p\u00e5 deg selv. <\/p>\n

[\/et_pb_blurb][\/et_pb_column][et_pb_column type=»1_3″ module_class=»blurb-grids» _builder_version=»4.27.4″ _module_preset=»default» background_enable_color=»off» custom_padding=»||20px||false|false» border_radii=»on|6px|6px|6px|6px» border_width_all=»6px» border_color_all=»#FFFFFF» box_shadow_style=»preset3″ global_colors_info=»{}»][et_pb_blurb title=»Medisinsk fagpersonell» url=»https:\/\/www.erdheim-chester.org\/no\/medisinske-ressurser\/» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_Medical-Professionals-Erdheim-Chester-Disease-Global-Alliance.jpg» content_max_width=»100%» _builder_version=»4.27.4″ _module_preset=»default» header_level=»h3″ header_line_height=»2em» background_color=»#35A4BB» background_enable_image=»off» text_orientation=»center» background_layout=»dark» custom_margin=»||0px||false|false» link_option_url=»https:\/\/www.erdheim-chester.org\/no\/medisinske-ressurser\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb title=»ECD Oversikt» url=»https:\/\/www.erdheim-chester.org\/no\/om-ecd\/» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-31.png» image_icon_width=»50px» content_max_width=»100%» module_class=»small-blurb» _builder_version=»4.27.4″ _module_preset=»default» header_font=»|300|||||||» header_font_size=»14px» background_color=»#F2F2F2″ image_icon_custom_margin=»||0px||false|false» image_icon_custom_padding=»||0px||false|false» text_orientation=»center» custom_padding=»20px||20px||true|false» link_option_url=»https:\/\/www.erdheim-chester.org\/no\/om-ecd\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb title=»Omsorgssentre» url=»https:\/\/www.erdheim-chester.org\/no\/omsorgssentre\/» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/Untitled-design-30.png» image_icon_width=»50px» content_max_width=»100%» module_class=»small-blurb» _builder_version=»4.27.4″ _module_preset=»default» header_font=»|300|||||||» header_font_size=»14px» background_color=»#F2F2F2″ image_icon_custom_margin=»||0px||false|false» image_icon_custom_padding=»||0px||false|false» text_orientation=»center» custom_padding=»20px||20px||true|false» link_option_url=»https:\/\/www.erdheim-chester.org\/no\/omsorgssentre\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb title=»Medisinske ressurser» url=»https:\/\/www.erdheim-chester.org\/no\/medisinske-ressurser\/» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-2.svg» image_icon_width=»50px» content_max_width=»100%» module_class=»small-blurb» _builder_version=»4.27.4″ _module_preset=»default» header_font=»|300|||||||» header_font_size=»14px» background_color=»#F2F2F2″ image_icon_custom_margin=»||0px||false|false» image_icon_custom_padding=»||0px||false|false» text_orientation=»center» custom_padding=»20px||20px||true|false» link_option_url=»https:\/\/www.erdheim-chester.org\/no\/medisinske-ressurser\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb title=»Studier og fors\u00f8k» url=»https:\/\/www.erdheim-chester.org\/no\/studier-og-forsok\/» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-18-1.svg» image_icon_width=»50px» content_max_width=»100%» module_class=»small-blurb» _builder_version=»4.27.4″ _module_preset=»default» header_font=»|300|||||||» header_font_size=»14px» background_color=»#F2F2F2″ image_icon_custom_margin=»||0px||false|false» image_icon_custom_padding=»||0px||false|false» text_orientation=»center» custom_padding=»20px||20px||true|false» link_option_url=»https:\/\/www.erdheim-chester.org\/no\/studier-og-forsok\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb _builder_version=»4.27.4″ _module_preset=»default» background_color=»#FFFFFF» min_height=»245px» custom_padding=»20px|10px||10px|false|true» global_colors_info=»{}»]<\/p>\n

Finn verkt\u00f8y og informasjon som st\u00f8tter arbeidet ditt med pasienter p\u00e5 ECD. F\u00e5 tilgang til oppdaterte kliniske retningslinjer, innsikt i medisinske spesialiteter og muligheter for forskningsfinansiering. V\u00e5re ressurser er utviklet for \u00e5 gi helsepersonell mulighet til \u00e5 gi best mulig behandling og bedre resultater for dem som lever med Erdheim-Chester sykdom. <\/p>\n

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Oppdag finansieringsmuligheter for \u00e5 st\u00f8tte forskning og initiativer for \u00e5 l\u00e6re mer om Erdheim-Chester sykdom for \u00e5 forbedre resultatene for pasienter og omsorgspersoner. Utforsk \u00e5pne kliniske studier for pasienter p\u00e5 ECD. <\/p>\n

[\/et_pb_blurb][\/et_pb_column][et_pb_column type=»1_3″ module_class=»blurb-grids» _builder_version=»4.27.4″ _module_preset=»default» background_enable_color=»off» custom_padding=»||20px||false|false» border_radii=»on|6px|6px|6px|6px» border_width_all=»6px» border_color_all=»#FFFFFF» box_shadow_style=»preset3″ global_colors_info=»{}»][et_pb_blurb title=»Fellesskapsaktiviteter» url=»https:\/\/www.erdheim-chester.org\/no\/stotte-til-omsorgspersoner\/» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_Community-Activities-1.png» content_max_width=»100%» _builder_version=»4.27.4″ _module_preset=»default» header_level=»h3″ header_line_height=»2em» background_color=»#35A4BB» background_enable_image=»off» text_orientation=»center» background_layout=»dark» custom_margin=»||0px||false|false» link_option_url=»https:\/\/www.erdheim-chester.org\/no\/stotte-til-omsorgspersoner\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb title=»Chatter i lokalsamfunnet» url=»https:\/\/www.erdheim-chester.org\/no\/chatter-i-lokalsamfunnet\/» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-10.svg» image_icon_width=»50px» content_max_width=»100%» module_class=»small-blurb» _builder_version=»4.27.4″ _module_preset=»default» header_font=»|300|||||||» header_font_size=»14px» background_color=»#F2F2F2″ image_icon_custom_margin=»||0px||false|false» image_icon_custom_padding=»||0px||false|false» text_orientation=»center» custom_padding=»20px||20px||true|false» link_option_url=»https:\/\/www.erdheim-chester.org\/no\/chatter-i-lokalsamfunnet\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb title=»Fellesskapsarrangementer» url=»https:\/\/www.erdheim-chester.org\/community-events\/» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-11-1.svg» image_icon_width=»50px» content_max_width=»100%» module_class=»small-blurb» _builder_version=»4.27.4″ _module_preset=»default» header_font=»|300|||||||» header_font_size=»14px» background_color=»#F2F2F2″ image_icon_custom_margin=»||0px||false|false» image_icon_custom_padding=»||0px||false|false» text_orientation=»center» custom_padding=»20px||20px||true|false» link_option_url=»https:\/\/www.erdheim-chester.org\/community-events\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb title=»Webinarer Connect» url=»https:\/\/www.erdheim-chester.org\/no\/webinarer\/» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-15-1.svg» image_icon_width=»50px» content_max_width=»100%» module_class=»small-blurb» _builder_version=»4.27.4″ _module_preset=»default» header_font=»|300|||||||» header_font_size=»14px» background_color=»#F2F2F2″ image_icon_custom_margin=»||0px||false|false» image_icon_custom_padding=»||0px||false|false» text_orientation=»center» custom_padding=»20px||20px||true|false» link_option_url=»https:\/\/www.erdheim-chester.org\/no\/webinarer\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb title=»Caregiver Connect» url=»https:\/\/www.erdheim-chester.org\/no\/kontakt-for-omsorgspersoner\/» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-6.svg» image_icon_width=»50px» content_max_width=»100%» module_class=»small-blurb» _builder_version=»4.27.4″ _module_preset=»default» header_font=»|300|||||||» header_font_size=»14px» background_color=»#F2F2F2″ image_icon_custom_margin=»||0px||false|false» image_icon_custom_padding=»||0px||false|false» text_orientation=»center» custom_padding=»20px||20px||true|false» link_option_url=»https:\/\/www.erdheim-chester.org\/no\/kontakt-for-omsorgspersoner\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb _builder_version=»4.27.4″ _module_preset=»default» background_color=»#FFFFFF» min_height=»345px» custom_padding=»20px|10px||10px|false|true» global_colors_info=»{}»]<\/p>\n

Sammen gj\u00f8r vi en reell forskjell i kampen mot Erdheim-Chester sykdom. Utforsk hva som er mulig takket v\u00e6re engasjementet og gavmildheten i samfunnet v\u00e5rt, fra \u00e5 fremme forskning og forbedre pasientbehandling til \u00e5 fremme globale forbindelser og st\u00f8tte. Se hvordan ditt engasjement f\u00f8rer til meningsfulle endringer og gir h\u00e5p til dem som er rammet av ECD. <\/p>\n

[\/et_pb_blurb][\/et_pb_column][et_pb_column type=»1_3″ module_class=»blurb-grids» _builder_version=»4.27.4″ _module_preset=»default» background_enable_color=»off» custom_padding=»||20px||false|false» border_radii=»on|6px|6px|6px|6px» border_width_all=»6px» border_color_all=»#FFFFFF» box_shadow_style=»preset3″ global_colors_info=»{}»][et_pb_blurb title=»Utmerkelser» url=»https:\/\/www.erdheim-chester.org\/no\/medisinske-ressurser\/» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/02\/batch_AdobeStock_253395317.jpeg» content_max_width=»100%» _builder_version=»4.27.4″ _module_preset=»default» header_level=»h3″ header_line_height=»2em» background_color=»#35A4BB» background_enable_image=»off» text_orientation=»center» background_layout=»dark» custom_margin=»||0px||false|false» link_option_url=»https:\/\/www.erdheim-chester.org\/no\/medisinske-ressurser\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb title=»Tilskuddsmuligheter» url=»https:\/\/www.erdheim-chester.org\/no\/finansiering-av-forskning\/» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-12.svg» image_icon_width=»50px» content_max_width=»100%» module_class=»small-blurb» _builder_version=»4.27.4″ _module_preset=»default» header_font=»|300|||||||» header_font_size=»14px» background_color=»#F2F2F2″ image_icon_custom_margin=»||0px||false|false» image_icon_custom_padding=»||0px||false|false» text_orientation=»center» custom_padding=»20px||20px||true|false» link_option_url=»https:\/\/www.erdheim-chester.org\/no\/finansiering-av-forskning\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb title=»Tidligere bevilgninger» url=»@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjQ2MjQwIn19@» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-13.svg» image_icon_width=»50px» content_max_width=»100%» module_class=»small-blurb» _builder_version=»4.27.4″ _dynamic_attributes=»url,link_option_url» _module_preset=»default» header_font=»|300|||||||» header_font_size=»14px» background_color=»#F2F2F2″ image_icon_custom_margin=»||0px||false|false» image_icon_custom_padding=»||0px||false|false» text_orientation=»center» custom_padding=»20px||20px||true|false» link_option_url=»@ET-DC@eyJkeW5hbWljIjp0cnVlLCJjb250ZW50IjoicG9zdF9saW5rX3VybF9wYWdlIiwic2V0dGluZ3MiOnsicG9zdF9pZCI6IjQ2MjQwIn19@» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb title=»Nominere til pris» url=»https:\/\/www.erdheim-chester.org\/no\/fellesskapets-priser\/» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-14.svg» image_icon_width=»50px» content_max_width=»100%» module_class=»small-blurb» _builder_version=»4.27.4″ _module_preset=»default» header_font=»|300|||||||» header_font_size=»14px» background_color=»#F2F2F2″ image_icon_custom_margin=»||0px||false|false» image_icon_custom_padding=»||0px||false|false» text_orientation=»center» custom_padding=»20px||20px||true|false» link_option_url=»https:\/\/www.erdheim-chester.org\/no\/fellesskapets-priser\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb title=»Tidligere utmerkelser» url=»\/past-awards\/» image=»https:\/\/www.erdheim-chester.org\/wp-content\/uploads\/2025\/03\/Untitled-design-15.svg» image_icon_width=»50px» content_max_width=»100%» module_class=»small-blurb» _builder_version=»4.27.4″ _module_preset=»default» header_font=»|300|||||||» header_font_size=»14px» background_color=»#F2F2F2″ image_icon_custom_margin=»||0px||false|false» image_icon_custom_padding=»||0px||false|false» text_orientation=»center» custom_padding=»20px||20px||true|false» link_option_url=»\/past-awards\/» global_colors_info=»{}»][\/et_pb_blurb][et_pb_blurb _builder_version=»4.27.4″ _module_preset=»default» background_color=»#FFFFFF» min_height=»346px» height=»346px» custom_padding=»20px|10px||10px|false|true» global_colors_info=»{}»]<\/p>\n

ECD Global Alliance har finansiert forskning p\u00e5 Erdheim-Chester sykdomsforskning siden den f\u00f8rst fikk 501(c)3-status i 2010 (med tilbakevirkende kraft til 2009). Organisasjonen tildeler vanligvis et stipend til en ung forsker hvert \u00e5r p\u00e5 mellom 50 000 og 60 000 dollar. I den grad det er mulig, finansierer organisasjonen ogs\u00e5 st\u00f8rre prosjekter som opprettelsen av pasientregisteret ECD, overlevelsesstudier og en unders\u00f8kelse av opprinnelsen til ECD. <\/p>\n

[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=»1″ _builder_version=»4.27.4″ _module_preset=»default» background_color=»rgba(10,22,64,0.9)» background_enable_image=»off» background_blend=»multiply» custom_padding=»10px||10px||true|false» global_colors_info=»{}»][et_pb_row _builder_version=»4.27.0″ _module_preset=»default» width=»88%» global_colors_info=»{}»][et_pb_column type=»4_4″ _builder_version=»4.27.0″ _module_preset=»default» global_colors_info=»{}»][et_pb_text _builder_version=»4.27.0″ _module_preset=»default» header_2_font=»|600|||||||» header_2_font_size=»50px» background_layout=»dark» custom_margin=»||10px||false|false» header_2_font_size_tablet=»50px» header_2_font_size_phone=»36px» header_2_font_size_last_edited=»on|phone» global_colors_info=»{}»]<\/p>\n

Kunngj\u00f8ringer<\/span><\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=»4.27.4″ _module_preset=»default» text_font=»||||||||» background_layout=»dark» custom_margin=»||-23px||false|false» custom_padding=»25px||||false|false» global_colors_info=»{}»]<\/p>\n

Et nettverk av ECD-omsorgssentre er tilgjengelig for \u00e5 hjelpe pasienter med \u00e5 finne kunnskapsrike leger for \u00e5 bekrefte en diagnose og for \u00e5 tilby behandlinger og kontinuerlig omsorg. Disse institusjonene er forpliktet til \u00e5 ha et team av spesialister tilgjengelig for \u00e5 gi den beste omsorgen til ECD-pasienter. I tillegg er det p\u00e5g\u00e5ende ECD-studier\/fors\u00f8k som for tiden tar imot ECD-pasienter. Kontakt v\u00e5r pasientveileder<\/a> for mer informasjon. <\/p>\n

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Ta kontakt med oss<\/span><\/h2>\n

[\/et_pb_text][et_pb_text _builder_version=»4.27.0″ _module_preset=»default» custom_padding=»40px||||false|false» global_colors_info=»{}»]<\/p>\n