{"id":95238,"date":"2025-09-12T09:12:27","date_gmt":"2025-09-12T14:12:27","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?post_type=tribe_events&p=95238"},"modified":"2025-10-03T08:28:23","modified_gmt":"2025-10-03T13:28:23","slug":"onderwerp-overleving-bij-de-ziekte-van-erdheim-chester-waarbij-de-stem-van-de-patient-wordt-meegenomen","status":"publish","type":"tribe_events","link":"https:\/\/www.erdheim-chester.org\/nl\/event\/topic-survivorship-in-erdheim-chester-disease-incorporating-the-patient-voice\/","title":{"rendered":"Onderwerp: Overleving bij de ziekte van Erdheim-Chester: de stem van de pati\u00ebnt meenemen"},"content":{"rendered":"

Datum:<\/strong>\u00a023 september 2025
\nTijd:<\/strong>\u00a013.00 uur CT<\/p>\n

Spreker: dr. Gaurav Goyal.
\nUniversiteit van Alabama in Birmingham<\/h3>\n

Dr. Goyal is geboren en getogen in India en heeft zijn specialisatieopleiding hematologie-oncologie afgerond aan de Mayo Clinic in Rochester, Minnesota. Tijdens zijn verblijf bij de Mayo Clinic heeft hij zich gespecialiseerd in histiocytische aandoeningen, waaronder de ziekte van Erdheim-Chester, Langerhanscelhistiocytose en de ziekte van Rosai-Dorfman. Hij voerde meerdere onderzoeken uit naar histiocytose en speelde een sleutelrol bij de oprichting van de eerste multidisciplinaire werkgroep voor histiocytose, die tot doel had de zorg voor mensen met deze zeldzame aandoeningen te verbeteren.<\/p>\n

Dr. Goyal trad vervolgens in dienst bij de afdeling Hematologie-Oncologie van de Universiteit van Alabama in Birmingham (UAB), waar hij een zorgcentrum voor de ziekte van Erdheim-Chester oprichtte. Bij de UAB startte hij bovendien, in samenwerking met de Erdheim-Chester Disease Global Alliance (ECDGA), de \u2018Histiocytic Disorder Survivor Study\u2019, waarmee hij het onderzoek naar en de ondersteuning van pati\u00ebnten met histiocytische aandoeningen verder bevorderde.<\/p>\n

 <\/p>\n

Registreer je hier<\/a><\/h4>\n

\"\"<\/a><\/p>","protected":false},"excerpt":{"rendered":"

Date:\u00a0September 23, 2025 Time:\u00a01:00 PM CT Speaker: Gaurav Goyal, M.D. University of Alabama at Birmingham Dr. Goyal was born and raised in India and completed his Hematology-Oncology Fellowship at the […]<\/p>\n","protected":false},"author":20,"featured_media":91910,"template":"","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"yes","_tribe_events_status":"","_tribe_events_status_reason":"","_tribe_events_is_hybrid":"","_tribe_events_is_virtual":"","_tribe_events_virtual_video_source":"","_tribe_events_virtual_embed_video":"","_tribe_events_virtual_linked_button_text":"","_tribe_events_virtual_linked_button":"","_tribe_events_virtual_show_embed_at":"","_tribe_events_virtual_show_embed_to":[],"_tribe_events_virtual_show_on_event":"","_tribe_events_virtual_show_on_views":"","_tribe_events_virtual_url":"","wds_primary_tribe_events_cat":0,"footnotes":"","_links_to":"","_links_to_target":""},"tags":[],"tribe_events_cat":[361],"class_list":["post-95238","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry","tribe_events_cat-webinars","cat_webinars"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tribe_events\/95238","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tribe_events"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/tribe_events"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/20"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tribe_events\/95238\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media\/91910"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=95238"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tags?post=95238"},{"taxonomy":"tribe_events_cat","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tribe_events_cat?post=95238"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}