{"id":41688,"date":"2025-01-15T17:17:11","date_gmt":"2025-01-15T22:17:11","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?post_type=tribe_events&p=41688"},"modified":"2025-11-18T22:37:11","modified_gmt":"2025-11-19T04:37:11","slug":"10th-annual-ecd-medical-symposium","status":"publish","type":"tribe_events","link":"https:\/\/www.erdheim-chester.org\/nl\/event\/10th-annual-ecd-medical-symposium\/","title":{"rendered":"10e jaarlijks ECD-medisch symposium"},"content":{"rendered":"

Registreer je hier<\/a><\/span><\/p>\n

Medical professionals from around the world will gather in Barcelona May 26-28 to share scientific findings, patient outcomes, and case studies related to Erdheim-Chester Disease. We welcome you to join your professional colleagues to share and learn about new findings related to the science of ECD, the diagnostic details, and the care of those living with ECD. This is the only meeting where medical specialists from different fields join together to discuss ECD. We look forward to you joining in the discussions and hope you might find opportunities for collaboration.<\/p>\n

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Abstract Submissions<\/strong> Abstracts related to ECD and\/or adult histiocytosis are being solicited for presentation at the Medical Symposium.\u00a0 Abstracts are being accepted<\/a> for oral and\/or poster presentation.\u00a0 This is a great opportunity to share your work and the work of your colleagues.\u00a0 Please let them know of the opportunity.\u00a0 Abstracts must be submitted no later than February 24, 2025.<\/p>\n

Submit Abstract<\/a><\/span><\/p>\n

Evenementenkalender<\/strong> Zondag 25 mei 2025 \u2013 Activiteit voorafgaand aan de bijeenkomst<\/u><\/strong><\/p>\n

17.00 \u2013 18.00 uur Katholieke mis<\/strong> Iedereen die ge\u00efnteresseerd is, is van harte welkom bij een katholieke mis die voorafgaand aan de conferentie wordt gehouden. Pastoor Charles Balnaves, de initiatiefnemer van de bijeenkomst voor pati\u00ebnten en hun families, zal de mis leiden.<\/p>\n

Monday, May 26, 2025 \u2013 Patient & Family Gathering.<\/u><\/strong><\/p>\n

8 \u2013 8:30 am Registration & Continental Breakfast<\/strong> Geniet samen met anderen van een licht ontbijt en bereid je voor op een informatieve dag vol hoop.<\/p>\n

8:30 am \u2013 4:30 pm Patient & Family Gathering<\/strong> Breng de dag door met het vergaren van meer kennis over ECD, van medische professionals, pati\u00ebnten en anderen.<\/p>\n

6 \u2013 8 pm Celebration Evening<\/strong> Breng de avond door met pati\u00ebnten, familieleden, vrienden en medisch personeel voor een avond vol hoop en feestelijkheid.<\/p>\n

Tuesday, May 27, 2025 \u2013 Medical Symposium.<\/u><\/strong><\/p>\n

8 \u2013 8:30 am Registration & Continental Breakfast<\/strong> Geniet samen met anderen van een licht ontbijt en bereid je voor op een informatieve dag vol hoop.<\/p>\n

8:30 am \u2013 4:30 pm Medical Symposium<\/strong> Spend the day learning more about ECD from other investigators and clinicians. Discover possible future collaboration opportunities.<\/p>\n

6:30 \u2013 8:30 pm Medical Reception<\/strong> Spend time relaxing and meeting with friends.<\/p>\n

Wednesday, May 28, 2025 \u2013 Care Center Meeting.<\/u><\/strong> 8 \u2013 11 am Care Center Meeting<\/strong> Discuss patient care and opportunities to work together to improve patient outcomes. Wie neemt eraan deel?<\/strong> The event is open to the entire ECD community of medical professionals. Please feel free to invite your colleagues.<\/p>\n

Registreer je hier<\/a><\/span><\/p>\n

Gastheer<\/strong> \"\"<\/a>Xavier Solanich, MD, PhD is this year\u2019s host of the ECD Meeting. Dr. Solanich is a medical specialist in internal medicine at the University Hospital of Bellvitge where he has practiced since August 2010. He leads the ECD Referral Care Center at Bellvitge and in addition to ECD patients, he attends to patients with other rare diseases such as Rosai-Dorfman, primary immunodeficiencies, and some hereditary metabolic diseases (especially Gaucher). He sees patients with systemic autoimmune diseases, mainly systemic vasculitis, periaortitis \/ retroperitoneal fibrosis, and IgG4-related diseases. He is also a consultant to the ophthalmology service for diagnosis and management of patients with uveitis, immune \/ ischemic optic neuritis, and orbital pseudotumor. Dr. Solanich also works in the Systemic Diseases and Aging group at the Bellvitge Biomedical Research Institute (IDIBELL). He has participated in multiple national and international research projects to study systemic autoimmune diseases, immunodeficiencies, and other rare diseases. He has also participated in several clinical trials as principal investigator or collaborator, obtaining competitive public funding. As a result of his research, he is the author of several articles published in indexed scientific journals.<\/p>\n

Agenda<\/strong><\/p>\n

V\u00f3\u00f3r de conferentie zal er een gedetailleerde agenda beschikbaar zijn. Hotel<\/strong> Er is een kamerblok gereserveerd voor de bijeenkomst voor pati\u00ebnten en familieleden in \u2013 Het Renaissance Barcelona Fira Hotel<\/a> Plaza Europa, 50-52, L’Hospitalet de Llobregat, Barcelona, Spain, 08902 Please make your reservations using the link below before the hotel deadline. Book your group rate for the ECD Global Alliance Conference<\/strong><\/a> Group Room Rate: Single: 240 Euro\/night; Double: 260 Euro\/night Hotel reservation deadline: April 21, 2025<\/p>\n

Reizen<\/strong> Barcelona wordt bediend door de luchthaven Josep Tarradellas Barcelona-El Prat. De vervoersmogelijkheden tussen de luchthaven en het hotel zijn onder meer:<\/p>\n