{"id":136777,"date":"2026-06-04T15:49:16","date_gmt":"2026-06-04T20:49:16","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?post_type=tribe_events&p=136777"},"modified":"2026-07-28T23:58:35","modified_gmt":"2026-07-29T04:58:35","slug":"omgaan-met-pijn-en-vermoeidheid-bij-ecd","status":"publish","type":"tribe_events","link":"https:\/\/www.erdheim-chester.org\/nl\/event\/managing-ecd-pain-fatigue\/","title":{"rendered":"Onderwerp: Omgaan met pijn en vermoeidheid bij ECD"},"content":{"rendered":"
Spreker: Kevin O\u2019Brien
\nRN, MS-CRNP, verpleegkundig specialist,
\nKlinisch onderzoeker, Instituut voor Genoomonderzoek,
\nNationaal Instituut voor Gezondheid<\/h5>\n

Datum:<\/strong> Donderdag 25 juni 2026
\nTijd:<\/strong> 13.00 uur CDT<\/p>\n

Kevin O\u2019Brien is verpleegkundig specialist en klinisch onderzoeker bij het National Human Genome Research Institute (NHGRI) van de National Institutes of Health in Bethesda, Maryland. Hij behaalde zijn Bachelor of Science aan de Johns Hopkins University en zijn Master of Science en diploma als verpleegkundig specialist aan de University of Maryland.<\/p>\n

Kevin heeft een sleutelrol gespeeld in het klinisch onderzoek van het NHGRI, waaronder protocol 15-HG-0006, een klinische studie naar dabrafenib en trametinib bij BRAF-positieve pati\u00ebnten met de ziekte van Erdheim-Chester (ECD), evenals het onderzoek naar de natuurlijke geschiedenis van ECD. <\/p>\n

Registreer je hier<\/a><\/span><\/p>","protected":false},"excerpt":{"rendered":"

Speaker: Kevin O’Brien RN, MS-CRNP, Nurse Practitioner, Clinical Investigator, Genome Research Institute, National Institutes of Health Date: Thursday, June 25, 2026 Time: 1:00 PM CDT Kevin O\u2019Brien is a nurse […]<\/p>\n","protected":false},"author":20,"featured_media":136778,"template":"","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","_tribe_events_status":"","_tribe_events_status_reason":"","_tribe_events_is_hybrid":"","_tribe_events_is_virtual":"","_tribe_events_virtual_video_source":"","_tribe_events_virtual_embed_video":"","_tribe_events_virtual_linked_button_text":"","_tribe_events_virtual_linked_button":"","_tribe_events_virtual_show_embed_at":"","_tribe_events_virtual_show_embed_to":[],"_tribe_events_virtual_show_on_event":"","_tribe_events_virtual_show_on_views":"","_tribe_events_virtual_url":"","wds_primary_tribe_events_cat":0,"footnotes":"","_links_to":"","_links_to_target":""},"tags":[],"tribe_events_cat":[361],"class_list":["post-136777","tribe_events","type-tribe_events","status-publish","has-post-thumbnail","hentry","tribe_events_cat-webinars","cat_webinars"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tribe_events\/136777","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tribe_events"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/tribe_events"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/20"}],"version-history":[{"count":1,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tribe_events\/136777\/revisions"}],"predecessor-version":[{"id":174351,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tribe_events\/136777\/revisions\/174351"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media\/136778"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=136777"}],"wp:term":[{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tags?post=136777"},{"taxonomy":"tribe_events_cat","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tribe_events_cat?post=136777"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}