{"id":79463,"date":"2025-06-17T09:43:34","date_gmt":"2025-06-17T13:43:34","guid":{"rendered":"https:\/\/www.erdheim-chester.org\/?p=79463"},"modified":"2025-06-30T21:42:07","modified_gmt":"2025-07-01T01:42:07","slug":"stronger-together-how-building-a-team-amplifies-your-impact-for-erdheim-chester-disease","status":"publish","type":"post","link":"https:\/\/www.erdheim-chester.org\/nl\/stronger-together-how-building-a-team-amplifies-your-impact-for-erdheim-chester-disease\/","title":{"rendered":"Samen staan we sterker: hoe je door een team op te bouwen je impact op de ziekte van Erdheim-Chester kunt vergroten"},"content":{"rendered":"

Participating in the ECDGA\u2019s annual Ren, loop en rol voor hoop<\/strong><\/a> is powerful on its own\u2014but forming a team can take your involvement to an entirely new level. Whether you\u2019re rallying coworkers, uniting family members, or gathering a group of friends, creating a team for the 2025 Fun Run can multiply your impact and deepen your connection to a meaningful cause: raising awareness for Erdheim-Chester Disease (ECD).<\/p>\n

Erdheim-Chester Disease is an ultra-rare form of blood cancer. Its rarity often leads to delayed diagnoses and a lack of general awareness, even within medical communities. By forming a team, you become a louder voice in a quiet space. Teams have the potential to raise more funds, spread awareness more widely, and create a stronger sense of community and purpose for everyone involved.<\/p>\n

Why does forming a team matter? Teams generate energy and motivation. As individuals come together with a common goal\u2014whether it\u2019s to honor a loved one, support someone currently living with ECD, or simply stand in solidarity with the rare disease community\u2014they create shared momentum. This collective effort is not only encouraging for participants but also draws greater attention from others who see the unity and purpose behind your group.<\/p>\n

Teams often get creative: matching t-shirts, themed names, social media campaigns, and fundraising challenges. These personal touches don\u2019t just build team spirit\u2014they attract attention, invite curiosity, and lead to conversations that spread the word about ECD. Every step your team takes brings someone new into the conversation, helping to educate and inform.<\/p>\n

ECDGA offers resources to help your team succeed, including toolkits for recruitment, tips for team fundraising, and ideas for spreading awareness. Whether your team is walking together in person or joining from different locations around the world, you\u2019ll be united by a shared mission: to make Erdheim-Chester Disease known and to support those affected by it.<\/p>\n

So don\u2019t go it alone. Reach out, rally your people, and register a team for the 2025 Run, Walk & Roll for Hope. When we move together, we move mountains. And together, we can shine a brighter light on Erdheim-Chester Disease.<\/p>\n

Schrijf je vandaag nog in<\/strong><\/a><\/span><\/p>\n

Lees meer<\/strong><\/a><\/span><\/p>\n

De Erdheim-Chester Disease Global Alliance (ECDGA) geeft geen medisch advies, stelt geen diagnoses en biedt geen behandelingen aan. Alle inhoud is uitsluitend bedoeld ter informatie. Raadpleeg bij medische vragen een zorgverlener.<\/em><\/p>","protected":false},"excerpt":{"rendered":"

Participating in the ECDGA\u2019s annual Run, Walk & Roll for Hope is powerful on its own\u2014but forming a team can take your involvement to an entirely new level. Whether you\u2019re […]<\/p>\n","protected":false},"author":14,"featured_media":79543,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_et_pb_use_builder":"","_et_pb_old_content":"","_et_gb_content_width":"","cybocfi_hide_featured_image":"","wds_primary_category":0,"footnotes":"","_links_to":"","_links_to_target":""},"categories":[3452,51],"tags":[3477,3472,2400,374,3479,3284,3478,3292,3473,3469,3476,3475,3480,3474,3471,3470,3290,3293,3283,3285],"class_list":["post-79463","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-featured","category-news","tag-bloodcancerawareness","tag-ecdglobalalliance","tag-ecdresearch","tag-erdheimchesterdisease","tag-fundraiserforecd","tag-globalawareness","tag-joinusforhope","tag-patientadvocacy","tag-rarebloodcancer","tag-rarecancerawareness","tag-rarecommunity","tag-rollforhope","tag-runforresearch","tag-runningforacause","tag-runwalkrollforhope","tag-supportecd","tag-supportrare","tag-teamhope","tag-virtualfunrun","tag-walkforhope"],"_links":{"self":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/79463","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/users\/14"}],"replies":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/comments?post=79463"}],"version-history":[{"count":0,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/posts\/79463\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media\/79543"}],"wp:attachment":[{"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/media?parent=79463"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/categories?post=79463"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.erdheim-chester.org\/nl\/wp-json\/wp\/v2\/tags?post=79463"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}